I'm still new on here and don't post much. I love reading everyone's posts though. Helps alot.
So I just got back from my doctors. I've been taking Entocort and Cipro for about 7 months. I was just diagnosed in Jan. 07. These medications were helping me greatly for the first 3 months. It was awesome! But now they don't seem to be helping at all.
My doctor wants to put me on 6MP. I've read a bit about it and honestly I'm scared. I don't like the whole blood cancer risk. I don't want to be on anything heavy like that.
She also gave me the option of being on Orencia which is a study drug. It's out on the market for some sort of arthritis. It's being studied for CD. There is unknown side effects, which kind of freak me out. Also, the only reason she gave me that option is because she knows I don't have insurance and because it's a study drug all the blood work, medications and Drs. visits would be free.
Anyone heard of Orencia being treated for CD? What about 6MP....anyone having that help them or have expirience w/it in general?
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
I'm currently on Cipro and Entocort (3mg/3xday). The Entocort has given me lots of issues. Really puffy cheeks, the inability to lose any weight while working out constantly, lots of acne, weird hair growth, and these random stretch marks on my thighs and breasts. I told my Dr. I thought I had Cushings Syndrome, which is an effect of Entocort, but she doesn't believe me.
This site is great for support.