cant sleep through the night

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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/14/2007 4:06 PM (GMT -7)   
I was wondering if anyone else has this issue.  Mine isnt caused by having to get up to have a bm though.  In the recent weeks my joint pain has been horrible that I wake up randomly in thie night and I am unable to fall back to sleep.  Pain meds do not make me drowsy they have the total opposite effect.  I remember my mom telling me that when I was 3 I was strapped into my car seat, I had a bad cold (this was all before my CD Dx) and due to asthma etc I was on cough meds with codiene.  Well she looked in the rear view and saw that I had unbuckled myself and was hanging out the window.  It seems all pain meds wire me rather than help me sleep.  I have taken ambien even and I still cant sleep thru the night due to the joint pain. 
 
Any tips?  I need more than a few hours sleep this is getting crazy
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 9/14/2007 4:45 PM (GMT -7)   
I go to bed around 10ish and Im up at 2 then 3 the 4 then cant get back to sleep. I dont know. I need sleep as well
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone
myspace.com/finalmacgyver


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/14/2007 4:55 PM (GMT -7)   
I have no issues falling asleep but darned if I cant stay asleep or at least fall back to sleep
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 9/14/2007 5:15 PM (GMT -7)   
Is there any chance you have ADD? Children w/ ADD tend to have opposite reactions to chemicals. Caffeine makes them sleepy as well as other stimulants while alcohol and marijuana and other depresents will make them hyper. Ritalin, a drug used to treat ADD will actually stimulate non-ADD people. If you do have ADD that maybe why the pain meds and ambien do not help and in fact hurt your sleep. Just something to keep in mind. I havent been sleeping much either because of school work and stress. I meditated for 5 minutes last night before bed and slept so much better, and through the whole night. I layed in bed on my back and closed my eyes and pictured just a black dot. I focused on that dot and just let my mind be empty. I did deep breathing holding for ten in and out. I touched my fingers together and felt the energy go through my body and out. I consciously tensed and relaxed each muscle starting from my head to my toes... you should try it!
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/14/2007 5:21 PM (GMT -7)   
No I dont have add, alcohol knocks me out 1 drink and Im sleeping, caffeine wires me, the ambien had helped. It is due to the joint pain that I am having issues now. I layed in bed from 2am til 5:30 trying to fall back to sleep this morning, I had a pre employment physical this morning at 8...under other circumstances just knowing I had to be up by a certain time would make me have the falling back to sleep issue. However this has been happening all week and today was the only day I had to be somewhere in the morning
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/14/2007 7:59 PM (GMT -7)   
im on prednisone 40 mg and i cannot sleep either, i know it is due to this. but in the past i have had trouble sleeping becasue if pain also. the only thing that helped on the pain side was to go see a pain mgmt doc. right now i am on a fentanyl patch and this really cits out any pain. maybe if you could get on another pain med it would help.
as far as the sleeper meds go i have tried everything. ambien, lunesta, vistoril, trazadone and nothing helps. right now i am on rozerem and i dont really get relief from that either. im going to talk to my doc about this and see if theres yet another we can try.
i really do hope you can get some sleep. sometimes ill be up for nights at a time and i know how difficult it is to be out of bed let alone function on no sleep.
good luck :*
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


ChristinaG
Regular Member


Date Joined Nov 2005
Total Posts : 113
   Posted 9/14/2007 8:31 PM (GMT -7)   
Dragonfly,
I have the same problem...well, I cant sleep very well through the night either. Pain meds do make me drowsy, sorry to hear they have to opposite effect for you. I have taken to taking one tylenol pm before bed and it helps me sleep. But usually i am really restless due to joint or back pain, or just my mind wondering. And I find that when i dont sleep that well, tossing and turning irritates my si joint/hip. Poeple always wonder why i need 9 to 10 hours of sleep a night, well i usually only get about 6 because i just cant sleep. I hope you are able to find something that helps soon!
Take care, Christina
"At the center of your being you have the answer; you know who you are and you know what you want." -Lao Tzu


Kurt
Regular Member


Date Joined Feb 2004
Total Posts : 65
   Posted 9/15/2007 9:37 AM (GMT -7)   
YES ! Since I have had CD, I have been on every drug known to man. I have had part of my illium taken out with the CD. All the drugs that I was on I could NOT sleep at all !!! I mean I would be up 6-10 days with NO sleep at all, I watched TV. I tried all the so called sleep meds on the market nothing worked, Until just recently (6) months ago. What I had been doing for the last 10-12 years was go with out Sleep from Sunday night till Friday night because of work. Then to sleep I would take a handfull for PM tablets and drink 1-2 six packs of beer Friday and Saturday nights to sleep. This was the norm. about six months ago I changed my PCP for the first time in 10-12 years and found someone who cares. She read thru everything. She said there was a new drug ( you seen it on TV - Roserm ) she gave me samples. Said take one, tried it...nothing. Took another - nothing - Took five the first night and could not fall a sleep. She said Wow, when I went back. Then she said there was one out there that been around for some time and it works for some people, I said Doc, I will try anthing. IT GENERIC ! Its called TEMAZEPAM , I take (2) 15 mg tabs at night and I sleep 4-6 hours. I have not had a beer for some time, I do not need the beer to sleep. My wife cannot believe it. But, let me warn you if you take this drug , the first night I was sitting watching tv with my wife waiting to see how long it would take to work, if it would. I was eathing sandwich and feel asleep in the chair with in 7 minutes my wife said, I said bull. But I did sleep. I said a fluke. Next night I took them and I was standing in the kitchen talking to my wife and eating a banana and I fell on my face on the front room carpet. My wife got me to bed. And another thing with this drug, you dont remember what you did...Wonder sleep drug for someone who did not know what sleep really was all about !!!!!!!! Try It !!
KURT HILL


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2007 4:23 PM (GMT -7)   
Hi Sometimes a pillow between the knees helps releave pressure on the back. lol gail

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 9/15/2007 5:41 PM (GMT -7)   
i have had trouble sleeping even before my diagnosis. i have tried everything under the sun from exercising to excercising in the morning to tylenol pm to valerian root to melatonin to sleep md to stopping my diet coke habit to breathing exercises to blacking out everything in my room & sleeping with a small fan...my brain doesn't shut off! when i started having crohn's related pain i finally broke down and asked for some sleep meds. i had been taking 5mg ambien that i got from my mom so that's what i asked my dr. for. as my pain incresased my sleep decreased tremendously and i was moved up to 10mg. well, there is something about generic ambien (zolpidem) that makes me and my mom very groggy the next day and i started getting terrible headaches. next was amitriptyline. that was a horror show. sure it made me drowzy, but as soon as i would start falling asleep my legs would jerk me awake. AWFUL! so now i am on 100mg trazodone. which is working out pretty well for me. it's supposedely non habit forming. it does make me fall asleep, i still wake up during the night here and there. if i don't get up to get a drink or use the bathroom i usually fall back to sleep. otherwise, i am up! if it's real early i will take ativan to fall back to sleep. so there's my whole sleep history! but if pain is waking you up, ask your dr for some samples of ambien or lunesta. i really liked ambien. the ambien cr worked pretty good, too. but i couldn't justify the cost ($10 vs $40).

good luck getting some zzzz's

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/15/2007 6:45 PM (GMT -7)   
I use to be on trazadone for sleep and it worked well for me but my doc decided it wasnt for me. For my migraines I am on amitriptyline but since my neuro knows I want to have kids in the near future he is decreasing my dose montly by 25 mg. I am at 50 now then I will remain at 25 til I am pregnant. I use to be on 100. I also take tizanadine (its a muscle relaxer), benadryl, I have the 10mg ambien if needed, and I have tylenol PM on hand too. The ambien works fine when I have trouble falling asleep but I still have the waking up issues, maybe I should try the ambien CR next
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 9/15/2007 8:12 PM (GMT -7)   
ugh! well, one thing i used to do was take 5mg ambien and then if i woke up i would take another 5mg. but try the cr's and see if that helps you. jeez, good luck with that.

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 9/16/2007 12:42 AM (GMT -7)   
There is nothing worse than being in pain, unable to sleep , and watching the time go by. I often go to bed at night and pray'God, how am I ever going to get through this night"" and wake up in the morning after seemingly only minutes of sleep and praying"God how am I ever goiing to make it through this day" .
I am on clonazepam for RLS, and celexa for depression, plus all my CD meds....you'd think that would punch my lights out for the night.....but noooooooo. I have a terrible time getting to sleep , then like you. am awakened with joint/leg pain, restless legs, headache....and have a terrible time throughout the rest of the night. I sometimes give in and take one tylenol#1 and one Advil for pain....but then I know I will suffer with stomach problems the next day...and the tylenol often makes my restless legs worse......
Seems a lot of us are in the same "sleepless" boat . I empathize with you and hoping that things will get better for you soon.
Love and prayers

"tired old Mary"
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/16/2007 7:30 AM (GMT -7)   
I know were you are coming from and it suck's to.I never had a problem falling to sleep and staying asleep that is untill the bottom end fell out thank's to crohns.My pain meds don't wiere me but they don't make me sleepy either.I have as well tried sleep aid over the counter and script meds as well and none of them have worked.I have found one thing that has helped with my joint pain at night and that is a heated mattress cover it works for me.It soothes my hurting joint's.
Curley
.........
 

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