Blurry vision dx

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songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/14/2007 4:36 PM (GMT -7)   
well they finally looked into my blurry vision problem today....its vasculitis or bleeding on the retina...they said related to the Crohn's
 
anyone else have this?? or experienced it
 
he didnt seem overly concerned, said that he saw previous damage going back in the eye and that if the vision became even worse to come back??!! confused
 
 

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/14/2007 10:15 PM (GMT -7)   
I have several bouts of iritis and uveitis, both conditions are associated with Crohn's and Ankylosing spondylitis so I don't know which disease to blame since I have both. Did they give you anything to treat your problem?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/15/2007 2:48 AM (GMT -7)   
Songstress, that's so interesting that you posted this topic.  Over the past few months my vision is getting worse/blurry/fuzzy.  I need to go to the eye doctor.  Did your doctor give you any suggestions, or is it just something you have to "deal" with?  Take care, Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/15/2007 6:06 AM (GMT -7)   
yeah see thats the funny thing...the doc didnt say there was anything I could do....he didnt even seem overly concerned

he said he could tell this wasnt a new problem..that he saw old blood from bloodvessels that had burst or so behind the retina

he said he wanted to see me if the vision got either way worse and of course in 2 mths to make sure there wasnt extreme damage going on. Im just wondering if its a relatively benign condition or if you lose some of your vision over time?

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


Kurt
Regular Member


Date Joined Feb 2004
Total Posts : 65
   Posted 9/15/2007 8:49 AM (GMT -7)   
YES-YES  I have had blurred vision  for some time, I ask my Doc (PCP) if it could be related to CD or the Remicaid, said NO. I have not went to see the vision Doc. Also, I have been on remicade for 3 + years, I get the max (10) per liter or what ever, also My teeth started turning black , decaying , drying out etc, just bad. I had to have a bunch pulled, have 1 left in my mouth and they are bad and hurt. I just finished paying off the oral surgeon and he said it would cost $6,000 to pull the rest and get false teeth. I do not have dental or vision insurance, only health. At 64 I do not have many options. Which first ? Vision or teeth? I can by a blender and drink or gum my food. Right now I buy the $1.00 glasses at the $1.0 store. I understand about the blurred vision. I had to go back to work and cant see very well. I hope your insurance covers you.

KURT HILL


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 9/15/2007 9:06 AM (GMT -7)   
Vision or teeth?

A hard choice no doubt.
If I had to pick it would be vision, you can always fix your teeth later.
CD dx @ 13 (1987)
Prednisone 15mg every other day
Imuran 150mg day
Colazal 750mg 1 tablet 3x day
Pain Meds
Vitamins


songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 9/15/2007 4:04 PM (GMT -7)   
wow...Remicade affecteed your teeth?? how so...what symptoms did you notice...??

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 9/15/2007 8:16 PM (GMT -7)   
does anyone know if it's crohn's related if it can effect one eye and not the other?

Kurt
Regular Member


Date Joined Feb 2004
Total Posts : 65
   Posted 9/17/2007 2:26 AM (GMT -7)   
On my teeth, they started to turn black , crack and split open. They decaded around the gums etc ..I beleive there has been several posting of remicade and teeth. Not Fun !
KURT HILL

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