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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/15/2007 4:29 AM (GMT -7)   
Hi,
please help me understand why I am in pain since I am not eating anything....I 'm only drinking  high protein boost drink along with ginger or menthe herbal tea...I must admit that yesterday was my first day,but I woke up with pain this morning(4am) and still in pain....I just don't understand.....
 
btw I upted my entocort to 9 mg(previously 3 mg but only for  a few day and gi said to increase it) and it doesn't seem to work and I don't know how long long it takes b4 it will work because I was on it before...I just started imuran but I know it will take 3 month b4 it works
 
 
any suggestion ????
 
than you in advance
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/15/2007 4:54 AM (GMT -7)   
I would call ur GIs office someone should be on call. The GI may want u to go to the ER or maybe do a clear liqiud diet for a cpl days.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


rickymadi
Regular Member


Date Joined Jun 2007
Total Posts : 25
   Posted 9/15/2007 7:04 AM (GMT -7)   
it might be the protien drinks i know they bother me i cannot drink them.how about some soup and gotorade.that helps me.i got really sick too from the entocort.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/15/2007 8:37 AM (GMT -7)   
It takes the Entocort about 2 weeks to start working. Maybe as bad as it sounds you should switch to Prednisone. I also agree maybe those drinks are contributing to your problems. Try something different and see if that helps. Good Luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/15/2007 8:58 AM (GMT -7)   
If your disease is active, normal digestion can be painful depending on what is going on in there. You don't need food for the digestive process of paristalsis (waves through your intestines) to begin, the mere smell of food can set it off, so liquids can also.

I would ask the doctor for pain meds until your other meds kick in, but like someone above mentioned, entocort doesn't always work (never did for me) and sometimes takes time, prednisone may be a better option at this point for your acute attack.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2007 4:37 PM (GMT -7)   
Hi Hate to say it but ginger used to bother me hoping your pain will subside soon .Best Wishes lol gail

megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/16/2007 8:54 AM (GMT -7)   
thank you  for your suggestion. I am going to try the clear diet and stop the ginger

Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/17/2007 5:08 AM (GMT -7)   
Hi I was just dx 3 weeks about and am on entocort and pentasa. What helped me greatly is starting last Friday I switched to clear liquids for the weekend, broths, jello, gatorade, etc..my pain has greatly been reduced. The gas and all the sounds though are still loud as ever! I am calling the doc today. This morning I tried rice krispies w/ rice milk. I am really missing coffee but the pain is enough to keep me from going over to the coffee pot and making some. Where was your crohns diagnosed. Mine is in terminal ileum very inflamed and ulcerated.
Stay in touch
Chris
My email is nikki0294@aol.com

laura l
Regular Member


Date Joined Oct 2006
Total Posts : 94
   Posted 9/18/2007 9:52 AM (GMT -7)   
Hi! i am not a doctor but from what i understand, just because you dont eat doesnt mean the pain will stop. if the disease is active, the pain will be there no matter what till your meds kick in and slow down the disease from causing the pain. i feel for you as we have all been there and still go thru it every day. hang in there, think positive and it will get better!!

Laura lee-diagnosed with crohns-1986/1st surgery-1998 small bowel resection,(removed part of illeum/appendix) 8yrs of remission-Oct'06 diagnosed with crohns being back! 


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/18/2007 11:41 AM (GMT -7)   
Hi Chris...my crohn's is in my terminal ileum there is aphtous ulcer in my middle left side colon b ut no infammation....I was dx in july of this year and at the time the gi said it was mild ...now I am not sure gi says its not that mild cuz I need maintenance drug.
my email is jtadcan@hotmail.com

thanks laura lee..I try to be positive but its so hard
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 

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