Remember Keah's Worms ???

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CrohnieToo
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   Posted 9/15/2007 5:05 AM (GMT -7)   
devil   Sorry 'bout that, Keah. Calling them "your" worms. Anyway, there's been some success treating Crohn's w/sterile worm eggs that was developed right here in the US that Keah had some success with.
 
Well, now Necator americanus, a hookworm, has been found to have some success in treating hay fever and asthma sufferers. They stimulate the body to produce white blood cells called regulatory T-cells, that dampen down the immune response. There are plans for studies on Crohn's disease and multiple sclerosis.
 
"If you superimpose a map of where hookworms are found, you will see that asthma and hookworms seem to be mutually exclusive," he said. "Similarly, Crohn's disease seems to be a disease of the developed world."
 
It was decided the correct dosage was ten - any more resulted in discomfort; any fewer and the immune-suppressing effects were not strong enough. The worms cannot reproduce inside the body and are eradicated with tablets.

The full article can be found at:

http://news.scotsman.com/health.cfm?id=1476962007


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 9/15/2007 6:12:05 AM (GMT-6)


dragonfly137927
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   Posted 9/15/2007 6:39 AM (GMT -7)   
did you know hookworms canenter your body by burrowing thru your skin..thats y it is a bad idea to walk on grass barefoot...learned that at thr animal hospital I worked at. I cant imagine intentionally putting parasites in my body too fear factor for me
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


songstress
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Date Joined Jul 2005
Total Posts : 393
   Posted 9/15/2007 7:03 AM (GMT -7)   
I got one word "ewww"! lol

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently being treated with 4000mg of Pentasa daily, 60mg solumedrol, and Remicade.


teddybearweiser
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Date Joined Oct 2004
Total Posts : 3042
   Posted 9/16/2007 2:21 AM (GMT -7)   
No thanks yuk!!!!!!!!!
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Skjura
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Date Joined Jun 2007
Total Posts : 210
   Posted 9/16/2007 5:07 AM (GMT -7)   
It is said that hookworms is a helper, and it's healthy to walk barefoot in the grass, just because we are depending on those to keep a good immune system. So throw your shoes, and walk in the sunshine ...... and may we hope it's a wormy day ;-)
 
 
Ingrid :)

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 9/16/2007 5:38 AM (GMT -7)   
Hook worms or no.....I hate shoes! If they help, so be it!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Remicade, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain.  Lactose Intolerant?
 
 
Attitude: When I stand before G-D at the end of my life, I want to be able to say; I used every talent you gave me in a positive way to help others along their way!


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 9/16/2007 6:11 AM (GMT -7)   
I am surely not a Worm person unless it is on the end of my hook lol for a fish ............

If it works for others thats great ............

thanks for the info

Luvs
LYN
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 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
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killerzoey
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Date Joined Jul 2007
Total Posts : 161
   Posted 9/16/2007 12:37 PM (GMT -7)   
I think this is fascinating. Necator americanus, I think, could be much more practical than the T Suis that you have to ingest every 2 weeks. It lives for up to 5 years. Imagine getting your Crohn's treatment once every 5 years! The ick factor for me is not a huge one. The danger from parasite infection comes from being exposed to many more times the amount they give you for treatment. At this dose (10 or so), and with this particular hookworm, there is apparently so little blood loss. And if it's effective, how would this ick factor compare with that of the disease when active?
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.


CrohnieToo
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Date Joined May 2003
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   Posted 9/16/2007 5:16 PM (GMT -7)   
The curiosity factor here is that on the other side of the coin the UK is also researching the use of Viagra to treat Crohn's on the theory of improving blood flow to the intestines. Interestingly, Viagra was developed originally as an alternative medication to nitroglycerin.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 9/16/2007 8:16 PM (GMT -7)   
So why cant it be a tape worm so I could eat what I want with no pred weight gain. Hmmmmm,, a hook worm on viagra ?? Now theres a bait that will catch fish..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gemini kiwi
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Date Joined Nov 2006
Total Posts : 1136
   Posted 9/16/2007 8:19 PM (GMT -7)   
yea but it wouldn't stay hooked shaped would it.
LOL

HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 9/17/2007 5:08 AM (GMT -7)   
Well I'm glad my mind wasn't the only one going downhill---thanks Sniper and Gem for the giggle!

My Sis with UC and I were discussing worm therapy this weekend. We both can't get past the yuck, ick not me thought. Why can't they make this into a drug with an incredibly difficult name so we don't know what we are taking. I still have a hard time believing I ate a bunny---call it some gourmet name and I am ok with it though :-)
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


hspenser
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Date Joined Dec 2005
Total Posts : 544
   Posted 9/18/2007 6:42 AM (GMT -7)   
Well...My wife has put the brakes on combining both treatments...she figures that with the boost from the Viagra she might end up with my worms and that is way too much to think about....it really is an "in the mood" killer.
dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 9/18/2007 7:50 AM (GMT -7)   
Bring on the worms! I would definitely give them a try.

In my opinion,worm therapy is alot less scary than some meds,especially steroids.I would try the worms before I would try remicade.

Certainly,we have all unknowingly ingested far more disgusting stuff in processed,pre-packaged, & pre-prepared foods.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


tsitodawg
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Date Joined Sep 2006
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   Posted 9/18/2007 11:52 PM (GMT -7)   
I am just curious if anyone here has ever seen a hook worm in real life?  For 2 years, I lived in the back country of the Philippines and I have seen hundreds of people that are suffering from the hookworms that have burrowed into their skin.  Most of the people that had them were children and men that worked all day in the water of the rice paddies. At first the worms are really small and burrow into someones skin or bottoms of their feet without the person knowing.  Then they begin to live off of the flesh of the person and begin to grow.  The area in which the worm occupies looks like a big vein that just is close to the skin.  As the worms grow longer and fatter, they will circle and curve and become very noticeable.  Many of the workers have them on their lower legs and extend all the way up to their upper torso.  I watched a doctor pull one out once, all he did was make an incision at the base of the bludge of the vein lookalike and began to pull the worm out.  It was over 8 feet long before he finally got it out. I was instructed to never let my bare feet touch the soil or floor there at anytime.(flipflops are worn in the shower)
  As for the tapeworm post, I sufferred from a tape worm for nearly 18 months of my stay there.  I lost 35 lbs. my first month, and began to have a visit from my friend(his name was Al) every time that I went to the bathroom.  Believe it or not, the symptoms of the tapeworm and crohn's were almost identical for me.(all except seeing 6-8 inches of worm in the toilet everyday)  Infact, when I began getting sick and was diagnosed with crohn's, my doctors really thought at first that I still had the tapeworm.
  I am not trying to knock down your excitement about the article that you presented(it was very interesting), but trust me when I say from personal experience that I would much rather have remicade, surgery, steroids, and all the other crappy crohn's drugs over having any type of worm enter my body again.  The only good thing that came out of that situation is that when my wife eventually gets pregnant for the first time, I might be able to relate on some level about having something that is growing and living in my body.j/k

mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 9/19/2007 10:21 AM (GMT -7)   
Ewww...now I am really turned off by the worms, was thinking maybe... but now?
Dx 2003 but probably had it 10 years prior
GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05
Currently on 100mg 6mp and Remicade every 8 weeks, Ambien as needed, preds as needed


JudyK89
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Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:31 AM (GMT -7)   
Worms are parasites, they live off our bodies and cause damage in the process. Not sure the trade off would be worth it.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 9/19/2007 10:55 AM (GMT -7)   
Wasn't there a study involving worms that weren't alive? Like freezedried larvae or something? I just remember listening the the guy who did part of the research and he said, "I tell people to mix them with gaterade so it goes down easier."

dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 10:59 AM (GMT -7)   
working for an animal hospital I saw live worms, dead worms, worm segments, and eggs. Plus all those lovely lunch seminars of slide shows showing people with worms....what a lovely topic at lunch
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 9/19/2007 9:00 PM (GMT -7)   
C yogi, the study was done with the worm eggs and they could not hatch.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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