feel great from humira please need feedback

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Regular Member

Date Joined Jun 2007
Total Posts : 25
   Posted 9/15/2007 9:12 AM (GMT -6)   
hello everyone.like i said i did my 1st doses of humira yesterday and i feel great hope it last.only went to the bathroom once today so far.usually i have gone 7or 8 times 1st thing in the morning.just wondering if anyone is taking humira and how you are feeling from it.thanks
dgnsd crohn's 7 years 28 years old 89 pounds have 2 children
7 year old and 19 months. 

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 9/15/2007 9:37 AM (GMT -6)   
I haven't taken humira, but wanted to say I am glad that you are feeling better and hope that you have many more good days ahead.
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Regular Member

Date Joined Aug 2007
Total Posts : 350
   Posted 9/15/2007 12:35 PM (GMT -6)   
That was the firs tchange I noticed and I have not "relapsed" back to the 7 or 8 a day like before.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (22 years old 160lbs). On HUMIRA, Prednisone

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/15/2007 6:13 PM (GMT -6)   
Yah you two so glad it is working !!! lol gail

Regular Member

Date Joined Jan 2007
Total Posts : 200
   Posted 9/15/2007 10:20 PM (GMT -6)   
i started humira last week and as far as i can tell it is working. so far so good. less trips to the bathroom and less abdominal pain. hope it stays this way!!!
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Using Darvocet & Lortab for Pain
Tigan for nausea

Veteran Member

Date Joined May 2007
Total Posts : 589
   Posted 9/16/2007 3:27 AM (GMT -6)   
so far its working for me. ive been on it for 5 weeks now, my symptoms are gradually going away.
19, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 9/16/2007 9:37 AM (GMT -6)   
I am on Humira and I it has helped me in way's that alot of the other meds didn't.I am glade that you are feeling better.

Regular Member

Date Joined Aug 2006
Total Posts : 331
   Posted 9/16/2007 4:50 PM (GMT -6)   
I've been on it since late June.  At first I felt good.  Now I've noticed within the week of the injection, my joints hurt again, & when I brush my teeth, I gag so much I vomit a little.  Also, very tired & nauseated.  My lower back stiffness has gone away, but, for the other body aches, esp in the neck & shoulders are worse.  Also, my gut gets so big within that week too.  Immediately after my last dose, I layed down & when I woke up, my thoat was extremely sore & scratchy, now I have a sinus & respitory infection, along with a bad cough.  Don't know if its from the humira or just the change of weather.  Anyone have advice?  Going to the gi in a week & my next dose is Tuesday.  God Bless.

Dx with CD 1987, 3 resections, 3 abcess sx, OA back & hips, bulging disk, Major depression/anxiety, kidney stones & sx to remove, now 44 yrs old.  Still trying to figure this disease out & of course all the little extra complications that come with this rollarcoaster of a life with CD. 
Meds:  Hurmira every other week 40 mg, Imuran .75 daily, cymbalta 60 mg daily, Lortab 7.5/500 x 4x, fish oil, fovia,vit e,folic acid,Vit B12,inject monthly,

Veteran Member

Date Joined Dec 2005
Total Posts : 544
   Posted 9/18/2007 9:01 AM (GMT -6)   
With a 50% or more rate of success it only stands to reason that there will be failures....and not trying to drag down a mostly positive post I have really mixed feelings with my response.
the first four loading shots left me feeling very renewed and with lots of energy.  My bathroom trips seemed to drop way down to just one or two per day.....and when I went to the bathroom, while it still hurt and the cramps were just about the same...i wasn't as dragged out after each trip as I usually am and I could recover within minutes rather than being down for a few hours at a time.  I even gained 2. 3 pounds in two weeks.   I noticed in the second week after the 4 shots that I was going more often...and the fatigue was setting back in.  The first three days after the shots my joints were on fire, then all of my joint pain went away.
My appitite is back...three full meals and snacks everyday (except yesterday)
Last Thursday I got two more shots and the joint pain came back and has stayed this time. I got my boost of energy and it has stayed in place, the next day (friday) I used the bathroom at least 12 times and each one was very painful.  Saturday and sunday were easy days with lots of energy and only one or two trips....Now yesterday was the day from hell....almost 20 trips...blood, cramps, the big D, nausea and joint pain galore.  But lots of energy...nothing like being wide awake and in pain.   On top of everything else...I can hardly sleep...but that is okay...I am still not tired...too weird.
I have made the commitment to keep going on this....it does not seem to be making me all that much worse (except the joint pain)....and the good days are the best I have had in years...so for now I keep trying and hope the stuff eventually works....BTW I am supposed to take two doses every other week.
dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old

Regular Member

Date Joined Mar 2007
Total Posts : 257
   Posted 9/18/2007 10:09 AM (GMT -6)   
hspenser - I have had a similar experience to you.  In the beginning I thought it was great but I am not reaching remission with it.  I have very good days and I still have bad days.  But like you said - it is not making me worse so you might as well stick with it.  I have been on it since the end of April.  I am only doing one shot every other week.  I am going to see the dr. next month so maybe increasing the dosage might be the key.  I really would like to have the good days more often, as I am sure we all would.  Good luck to anyone starting it.
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