dietician and crohn's

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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/16/2007 2:48 PM (GMT -7)   
hi
have you ever gone to the dietician for your crohn's?
if so, did it work?
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/16/2007 3:05 PM (GMT -7)   
I was sent to one by one of my old RA docs since my joints have always been a major issue with me. The RA doc flat out told me I dont want you getting fat....I was on paxil at the time which made me go to 130 pounds, I am 4'9.5" and typically weigh around 100 - 105. They basically went over portioin sizes with me...like shoot when I feel good I am going to eat darn it. When I flare I can lose so much weight in such a short time. I did go to one back in the 80s after my diagnosis but cant remember that far back. I have just learned what foods bother me and what ones I can tolerate only so much of in a certain period of time without gut issues
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/16/2007 4:07 PM (GMT -7)   
No, she was next to useless. Actually told me to eat meat for Protein , despite the fact I've been vegetarian for over 20 years.
What I've learned has been by trial and error and pain and ER visits.
Tess

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 9/16/2007 7:44 PM (GMT -7)   

I went when I was first diagnosed and have to agree with gemini kiwi as to them being useless unless you get lucky to have one that specializes in IBD.  Unless you are trying to learn portion control or for diabetes. 

I originally requested a dietician specializing with crohn's patients and was told this one knew what she was talking about.  #1 she asked me if I wanted to continue to lose weight.  I told her that I had lost 20# in a month and "no I didn't want to lose weight at this time I just want to know how to eat nutritious and make what meals I DO eat count."

#2 She also told me to eat things that I was told not to eat until I called her on it. whole nuts... beef... fiber...  For example, I was told when I was in the hospital to eat a low risidual diet 2 weeks prior to the appt to give my intestines a rest and this woman wanted me to eat kashi cereal right away until I asked her: "if you went without fiber for 2-3 weeks aren't you supposed to slowly introduce fiber back into your diet?  I told her I didn't feeling like having a blockage and going from no fiber to 10g of fiber doesn't sound appealing. 

I would get your information from the internet or from books.  Basically I learned it's trial and error.  When I was first introducing foods into my diet, I would try something new with the stuff I KNEW worked for me and waited for a reaction.  I also kept a journal for about a month so I atleast had a base of some kind of food I could eat.  No reaction=add to menu.  Reaction=chalk up to it being non crohn's approved for now and wait a while and try it again to see if you get same result before you permanetly axe from diet.  ie one day I tried peanut butter and got really bad cramps.  3 weeks later, I tried it again (I LOVE peanut butter) and am fine. 

Things you might want to check out....

http://www.mypyramid.gov/  food pyramid

http://www.mypyramid.gov/related_links/index.html related food info links

http://www.cfsan.fda.gov/~dms/foodlab.html how to read food labels

http://www.nutrition.gov/

http://www.cfsan.fda.gov/~dms/ds-savvy.html regarding making informed decisions on supplements.

http://www.environmentaldefense.org/documents/4966_fishflyer.pdf information on fish and mercury levels.  what things are safer to eat.

hope this helps...

~malaki

 


Newbie - 35 yrs old Diagnosed: 08/03/07
Meds Asacol 3x day


momoftwoangels
Regular Member


Date Joined Jul 2007
Total Posts : 222
   Posted 9/16/2007 9:29 PM (GMT -7)   
I started seeing a nutritionist before I was diagnoised to try and lose some weight. She is great, but since I have gotten this disease she pretty much goes by trial and error to see what works. I haven't lost any weight since I got out of the hospital which was almost a year ago now. I know that this is partially my fault for not doing what I am suppose to, but it is SOOOO frustrating. She really does try and help. I guess the one piece of advice I would give you from her is to add good fats in. Like olive oil, peanut oil, I guess nut oils in general are good. She says this coats the digestional tract and helps body process foods better....
Heather

ps sorry for rambling I'm feeling a little tired.
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
 
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/17/2007 5:18 AM (GMT -7)   
Hi Yes I have and it helped me alot and was one of the best things I could have done for my CD .I was in the hosp. and had a blockage and she visited me and helped me with low roughage diet and now I don't have pains learned what to eat and now do not eat things that cause pain. So thank goodness she came when she did one of the big things I changed was from whole wheat to white bread and of course chew and chew some more. So hope you give one a try because telling me to eat what is soft really helped that was in Jan. and I am still on it and I am used to it and loving myself so much better. Best Wishes .lol gail

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 9/17/2007 8:14 AM (GMT -7)   
I've found 'em to be pretty useless. They're going to give you the standard "eat whatever you want unless you find something that bothers you personally" line or they'll put you on some kind of low residue diet. I haven't found one that knew that much about IBD or anything about healing diets and supplements.

I'd suggest doing your own research. There are a lot of great books out there on eating right for IBD by folks who know alot more than your garden variety nutritionist.
Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 

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