New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

juliewith2
Regular Member


Date Joined Apr 2005
Total Posts : 56
   Posted 9/17/2007 8:23 AM (GMT -7)   
 

I was wondering if there was anyone else around that had Crohns but was medication FREE.

I was Dx over 26 years ago and for the past 16 years have been medication free. I was just wondering if I was the only one that was able to control their chrons with diet and watching there stress.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/17/2007 8:44 AM (GMT -7)   
This is a great question! I am anxious to see if you get many responses. We are too new to know how it will be, but are hoping to be medication free. My son--well actually the whole family--is now undertaking The Maker's Diet and things are good so far. I'm afraid to say the "r" word yet...

It is really encouraging to hear you've been doing so well for so long!!! Congrats!
EMom

Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007. Took 8 weeks of Prednisone. Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 9/17/2007 8:48 AM (GMT -7)   
Julie,
I had a long span of no meds -- almost 20 years, then I had a major flare and have had to go back on meds. I've wondered since then if I had been on some type of maintainence if I would have had another flare. Any way , I'm currently on sulfasalzine & 6 mp to manage CD.

Good luck and I hope you can continue to stay med free.
 


jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1131
   Posted 9/17/2007 8:53 AM (GMT -7)   
Meds free for 4 years, have been in remission for 7. Woohoo! =o)

 .jb
 
Support me in the CCFA Team Challenge!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/17/2007 10:42 AM (GMT -7)   
I once had a 20 year remission without drugs. Would I do it again, NO WAY!! My remission ended with an emergency resection. All the while during my remission I paid no attention to my Crohns, but it didn't forget about me, it was ticking away doing its damage the whole time. I think if I would of been on maintenance meds I wouldn't have gotten so bad. JMHO!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


nazeha
Regular Member


Date Joined Aug 2007
Total Posts : 41
   Posted 9/17/2007 10:48 AM (GMT -7)   
I'm medication free..but that is because I chose to be. My doc wants me on 6MP but I don't want to go on a heavy medication. So I just stopped taking my meds and am currently on the Maker's Diet. I just started all this about a week ago and so far, so good.
<3
Maya
Maya
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
Just got off of Entocort (too many side effects) and Cipro. I'm now trying the Maker's Diet as well as a bunch of vitamins and probiotics. Let's hope this helps a bit!
This site is great for support.
<3
 


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/17/2007 11:32 AM (GMT -7)   
My daughter is med free since she became an adult and decided no more. Trouble is she is not even under doctors care for her Crohn's. Off meds for 8 years. I know that when she does flare, it's going to be bad. She does have some signs of disease activity. Has accidents and has to run to the restroom. Has bloating and pain but she is still rebellious. I have made her promise to see a doctor as soon as she gets insurance for herself.

She has a six year old daughter and is concerned of crohn's because it seems to run in the family. My granddaughter is 6 and only weighs 32 lbs. Teeny-tiny thing. Her pediatrician is running blood tests on her today just to be on the safe side.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1131
   Posted 9/17/2007 12:14 PM (GMT -7)   
I wanted to add to my meds free zone....... 1) my doctor is in agreement with my meds free zone. 2) I do annual testing to check for inflammation and disease activity. =o)

 .jb
 
Support me in the CCFA Team Challenge!

juliewith2
Regular Member


Date Joined Apr 2005
Total Posts : 56
   Posted 9/17/2007 1:22 PM (GMT -7)   
its nice to hear that i am not the only one med. free..
I should add i don't go the Dr. for my crohns. I tryed the other day but i just about told the DR. off when he said that he wanted to test to make sure i had cronh's ... My comment to him was if i dont this practice would be SO screwed. Most of my youner life from age 7-18 was spent in the hospital doing thousands of tests.
So after that appoitment i told the Dr. that i really think that i knew more about crohns then he did and i was not going to be his ginie pig to try all his new medications on.
I actaully went to see him to have my blood levels checks..
No thanks for know on i will go to my prymary Dr. he is willing to work with me and get my B12 and iron level back to where they should be

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/17/2007 9:17 PM (GMT -7)   
I'm RX med free...and have been for yrs, I'm either allergic or non-responsive to traditional meds...but I do take natural supplements for my CD, bee propolis, omegas 3-6-9, probiotics and fibre supplements with much relief, no full remission but 5 or less times a day is much better than 30X a day.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 3:02 AM (GMT -7)
There are a total of 2,735,216 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
203 Guest(s), 3 Registered Member(s) are currently online.  Details
clo2014, THE HAPPY TURTLE, NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer