fistulas and diet

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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/17/2007 7:25 PM (GMT -7)   
Well the Doc confirmed it is in fact a fistula that is on my belly...the hole that its drianing from is right under my belly button.  He said continue to pack wet gauze in there and he is leary to put me on ABs due to my doc thinking I may have C diff.  He also said I dont have to do any special diet...tpn etc.  He said that since he feels this one was caught early and its draining from the body...not gushing.   I was wondering if anyone avoids any of their "safe foods" while trying to have a fistula heal?  Tonight I made ramen noodles (without the season packet) with some of my homemade sauce...its flavorful but bland at the same time.  I also ate 2 of my meatballs knowing that do to this I am loosing protien.  I may opt for some chicken and mashed potatoes tomorrow, but unsure if I should avoid certain foods even though under other circumstances (even when in a flare) they dont have ill effects on me
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 9/17/2007 8:30 PM (GMT -7)   
The doctor feels it will be okay for me to start my job on monday. Even in the job description it stated the ability to sit down for long periods of time. There is no filing since all patient records are on the PC. My main duties would consist of scheduling appts, and obtaining and updating patient info. The practice is made up of residents and board certified docs as well as faculty. It is teaching opportunitsy to Brown school gradutates to learn how to run their own family medical practice. There is no billing or anything. There are 15 docs daily in each of the 3 divisions, and some are "faculty" so very rarely do they see patients. My last job was very physically demanding as a vet assistant. Cats and dogs scratch bit etc and trying to keep a 150 pound evil dog on an elevated table was no easy task being I am 99 pounds and 4'9.5" Both my surgeon, RA doc, ENT and my GI are affiliated with the hospital I am going to be working for. My shift will end at 4:30 and if I have to leave 15 mins or so early for a DR appt I will and legally I dont think they can reprimand me for that. One paper I filled out was for "demigraphics" to see if they are interviewing disabled or ethnic backgrounds. I didnt have to fill it out, but I did say disabled on mine and you didnt have to put your name on it but I chose to do so. I know its illegal to ask things like that but I figured what the heck...whats the worst thing that could happen. I did make my name quite illegible though
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 9/18/2007 5:05 AM (GMT -7)   
Hi I just ate what worked best for me and did keep a high protien intake as it helps heal for me it was low roughage protien not to hard on the system .So glad you are able to keep your job and I can tell from reading your post that you are looking forward to it. Your right not having to struggle with the animals like you did before should be alot easier on the body.lol gail

Sugarmarie
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Date Joined Jul 2003
Total Posts : 1205
   Posted 9/18/2007 6:28 AM (GMT -7)   
He can put you on Flagyl its was is used to treat C-diff and my doc says it helps heal Fistulas so why waste time I would ask him to get you on Flagyl NOW you can't loose going on Flagyl.
I had a fistula next to my anus and was on flagyl 3 weeks and it went away.
sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 9/18/2007 7:13 AM (GMT -7)   
Try to eat turkey if you can.  It's one of the best food sources of Zinc, and Zinc is really helpful with wound healing.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 8:52 AM (GMT -7)   
I just called my GI office and he will be in the office this afternoon. I asked about flagyl when I spoke to the receptionist, that or vanco since both also are used to treat c diff. I figure my best bet may be flagyl while humira gets approved and then hopefully when I see him on the 10th I will have the humira shots with me and he will okay the use.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Sugarmarie
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Date Joined Jul 2003
Total Posts : 1205
   Posted 9/18/2007 9:39 AM (GMT -7)   
No dont do VANCO you must save that antibiotic for last resort once you use Vanco you set your self up for anitbiotic resistant bugs save that for things like MARS or TB. . ITs a very expensive drug too.
Do not drink not one drop of alcohol on flagyl even mouth wash. Also take with food and drink lots of water your pee will be a little yellow so water helps and your poop will have a funny metal smell also your mouth will have a metal taste dont let this scare you it aint so bad but just wanted you to know if you havent taken it before.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

Post Edited (Sugarmarie) : 9/18/2007 10:41:21 AM (GMT-6)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 10:27 AM (GMT -7)   
I was on lots of vanco when I was in the hospital I was getting it IV. I had 5 different bacterias growing in the abscess I had at the time as well as candida. Then later they also found I was VRE (vanco resistant ecoli) yay me. I was on flagyl back when first diagnosed as well as when I was initially admitted in the hospital back in February. They had me on flagyl and cipro IV. Maybe I should get in a taste of my smirnoff pomegranite if my Doc prescribes flagyl so I can taste if before starting the drug.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


JudyK89
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Date Joined Dec 2006
Total Posts : 1986
   Posted 9/18/2007 10:30 AM (GMT -7)   
Oh Stef,

You just can't get a break can you? I'm confused a little. When you had all those surgeries, did they take the diseased portions out or just bypass them for a rest? If they didn't take them out, I guess that's why your disease is back so fast. If they thought they got it all, I guess they were mistaken.

Anyway, I hope you can get this latest cleared up quick. I've always had luck with Flagyl and 6MP for fistulas if caught early enough.

As far as the diet, I think if it was me I'd stay away from anything that may clog or get stuck (like corn or anything that won't break down) at the fistula or in it since you know you have stool coming through.

Keep us posted.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 11:15 AM (GMT -7)   
They did get it all, prior to this I had no large bowel involvement. I do now considering I see the pentasa beads coming out of it and I believe that only releases lower in the GI tract. They had removed part of the large bowel in my ostomy Sx since 1/3 of it didnt wake up. Even the biopsies done showed the "all clear" I am waiting to hear back from my GI....everytime the phone rings I expect it to be him even tho I am sure he wont call til after he sees his patients. I just want to get better, I am so done at this point. I feel like I am never going to get better again and be able to have a family. I am going to have to tell them on Monday about my Doc appt that I had to make for the 27th (next thursday) and Ill have to leave a little early....my health is more important and being a hospital I hope they will understand.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/18/2007 11:39 AM (GMT -7)   
Forgive my ignorance, but why do you have to watch your diet when you have a fistula? I have never (knock on wood) had a fistula, so just curious why diet matters so much. Thanks for the info.

And Stef, (((Big Hugs))) to you. You are having such a rough time. I have had some tough times during my life with Crohns, but I think you got the short end of the stick this time. I know that you have the fistula pain, but how does your tummy feel? Are you nauseous or crampy or anything like that? Just curious because you are starting a new job and just think it would suck to feel like crap at what should be an exciting new start for you. We need to get the anti-Crohns genie to swing their magic wand over you and get you healthy again. Good Luck and definetly have a sip or two of your Smirnoff Pomegranite while you can......HURRY!!!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 11:56 AM (GMT -7)   
Lol I just got off the phone with my GI. I am going to collect my C diff sample tomorrow and bring it to the lab. He said those results come back within a cpl days. If that is all negative I just have to wait for the pharmacy to get the hunira in since it is now approved for me. As for diet and fistulas, I know if they are really bad TPN is commonly used either that or an elemental diet.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/18/2007 12:30 PM (GMT -7)   
Do you have to watch your diet with fistula's because you have obstructive type pain or because food will come out the fistula's? I'm dumb I guess (LOL) I just don't get the food and fistula connection. Thanks. Did you have your sip or two yet???? LOL
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 1:48 PM (GMT -7)   
Nah not yet...I still have dilaudid in my system, plus he isnt putting me on Flagyl at least if the c diff comes back negative, even if pos it wont be until monday that I would get meds for it since it takes a few days for the results to come in. Fistulas heal better , so I have read, with less intestinal motility/digestion.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2044
   Posted 9/18/2007 1:51 PM (GMT -7)   
The only diet advice my GI gave me due to having a fistula was to avoid something like corn or nuts since they can get lodged and cause an infection. Other than that, it was whatever I can tolerate.
48 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.

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