I really don't understand crohn's!!!!

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megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/18/2007 8:14 AM (GMT -7)   
ok here goes
 
I started to go on boost on friday,saturday and sunday morning....we were having a barbeque on sunday afternon so I said to myself ....well obviously the pain is a bit better BUT still in pain so I decided to eat everything I mean everything....so after a couple of hours I was a bit in pain but very very bearable...I was a bit in pain cuz I needed to go to the bathroom.....anyway yesterday ( monday ) I have no pain and it was a miracle that I have no pain b4 going to the bathroom....I DON"T GET THIS....
I Really don't understand I am so so frustrated...that I can eat something and doesn't bother me and then on another day it will
 
does that happens to u guys?
 
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/18/2007 8:21 AM (GMT -7)   
Yeah that happens to me everytime I eat spaghetti. I can eat it one night for dinner with no problems, then take some leftovers for lunch the next day and get sick. Go figure!!! Isn't life with Crohns grand. Seems as if you can't win for losing with this disease.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 9/18/2007 8:50 AM (GMT -7)   
If it makes you feel any better -- I was dx 25 years ago and STILL don't understand CD. I can normally eat red meat with no problem, but on Sunday I had a big ole Delmonico steak and I've had a belly ache ever since. But it was worth it!
 


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/18/2007 2:02 PM (GMT -7)   
I understand Crohn's in this way "Expect the Unexpected", it pretty much sums up this disease.!
Tess

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/18/2007 5:13 PM (GMT -7)   

 

 

      redface One more reason to keep an updated food diary!

 

           Matthew


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/23/2007 9:39 AM (GMT -7)   
hi matthew i dont understand crohns either lol i can eat one thing one minute feel fine next im in hospital lol i can eat a pork chop feel fine then be in bed for weeks grrrrrr lol this disease is so unpredictable i went shopping to asda (WALLMART)AND ended up being wheeled out on a stretcher i never even got my chicken lol.you can either laugh or scream lol.
what i really miss is currys oh how i miss a vindalooooooooooooooo (haha)i think i need sectioned this disease drives me nuts i cant understand why you have surgery to remove the diseased part then a few months it re-occurs i could write a book on what ifs why this and that!!!!!!!!!!!!!there is no explanation as to why this disease occurs whether its the foods we eat or whether its something to do with your immune system if there was a choice given to swallow the worm i would have no hesitation i would swallow it im so tired of meds and injections

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/23/2007 1:01 PM (GMT -7)   
If I understood it, maybe I could find a cure. Alas, I'm just like the rest of you. My illness follows certain patterns for years & then just changes. What the heck???

Matthew

Azstrait
Regular Member


Date Joined Dec 2005
Total Posts : 259
   Posted 9/23/2007 4:54 PM (GMT -7)   
I had pain from eating a hamburger recently and ended up in the hospital with a severe flare. Sometimes it doesnt matter what I have eaten. I practically was trying to starve myself because drinking just liquid was painful. I ended up on IV steroids, antibiotics, bowel rest etc and it worked after 9 days. I hadnt had any major attacks or minor ones in about 2 years.
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/24/2007 4:51 AM (GMT -7)   
thank you guys for your response....I feel too that it doesn't matter what I eat...if I am going to be in pain I will be in pain
 
 
thanks
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 9/24/2007 7:51 AM (GMT -7)   
I am now to the point that I do not eat anything that does not taste good. I figure if it is going to hurt By God it better taste good. I have a problem with things that have too many preservatives in it.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/24/2007 11:14 AM (GMT -7)   
Hey, well I'm the one Crohnie here that can usually get by on fast food. But if I eat at BurgerKing, God help me! The makers of Immodium get a major profit out of it.

Matthew

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 9/24/2007 2:24 PM (GMT -7)   
This happens to me a lot!!
The other night I went with my bf and his mum to Hooters (it's a family restaurant, dontcha know!) and I had grilled cheese, fries, and fried pickles knowing I was going to die from it but doing it anyway. Lo and behold, no pain, no issues, NOTHING, not even gas. I couldn't believe it.

I don't think I'll ever understand what's going on with this disease!
Laurenne, 22 Student @ UC Davis.
Dx'd w/ IBS and CD in 2002
Currently taking nothing and regretting it.

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