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Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 9/18/2007 9:41 AM (GMT -7)   
My PCP ran some blood tests and she said my B12 is low, but not dangerously low or anything. She said she would prescribe the B12 shots but insurance will not cover it unless the levels are very low.
 
Has anyone else heard of this? I would rather take a shot than do more pills!
 
Since I am not doing the shot (for now) do you think crohn's can handle a daily multivitamin that has 100% of your daily Vitamin B in it? Or should I just take a pill that is only Vitamin B?
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/18/2007 9:45 AM (GMT -7)   
Did you ask how much the shots cost? It may be worth paying for them.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/18/2007 10:36 AM (GMT -7)   
if you are anemic, chances are your b-12 stores are low too. i started taking b-12 supplements about a month ago. i was told i was anemic back in july and needed a transfusion of 2 units of blood. if you cant get shots, get a sublingual b-12 supplement or a time released capsule or caplet as it is not absorbed well in the stomach. take it with calcium too. the commercially available name you'll find in supplements is cyanocobalamin. b-12 is naturally found in animal products like beef and pork and liver and eggs - the foods you eat to increase your iron stores when anemic.

since CD is a digestive disorder that interferes with proper digestion and assimilation of nutrients, i am taking a b-12 supplement but at a different time of the day from my daily multi. your body does best on vitamins that are organic or natural. it doesnt assimilate or process synthetic ones very well. when looking at vitamins, if it has d in front of it that is good. if it has a dl, that is bad denoting it is a synthetic form of the real vitamin. vitamins are cheap cos most are synthetic. since your body doesnt really use synthetic vitamins, your urine glows in the dark. ie you are expelling the vitamins you took via your urine. money well spent...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/18/2007 10:47 AM (GMT -7)   
Crazyharry has it right, if your insurance won't pay for the shots, the sublingual is your best bet to get it into your system.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 9/18/2007 11:16 AM (GMT -7)   
I use a nasal spray for B-12. I know that the last time my doc checked my B-12 levels they weren't severely low so maybe I don't need very much. The nasal spray is easy - just one spray a week and I think it is fairly inexpensive. MB

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/18/2007 12:26 PM (GMT -7)   
My B12 is very low and even with the shots every month I had to increase the frequency to every 2 weeks. But, I believe it is VERY cheap. So even if your insurance won't pay for it, you might want to pay for it out of pocket. Also, if you have AAA, some pharmacies will give you a discount with that. When I went to get my last Rx, it was cheaper to get the syringes using my AAA than my insurance and I think that 20 syringes cost me less than 10 bucks. The vial of B12 was under 10 too. If I remember correctly. I have so many meds that sometimes I get them confused.

Since the long term effects lack of B12 are nerve damage you really don't want to mess with this.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/18/2007 2:25 PM (GMT -7)   
Hi Lauren, I have been giving myself B-12 shots since I had surgery for the Crohn's my insurance pays
almost all the cost.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 9/18/2007 5:28 PM (GMT -7)   
Check this web site out. This person knows more about B12 than most doctors.
http://roseannster.googlepages.com/home
And yes B12 injections are very reasonable if given by yourself or a friend.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


juliewith2
Regular Member


Date Joined Apr 2005
Total Posts : 56
   Posted 9/19/2007 4:59 AM (GMT -7)   
i have been geting B12 shots for over 5 years now.. Talk to your Dr and getting a large bottle of B12 they usually last a year. My insurance wont pay.. But a large bottle only cost $ 15.00 - 20.00 verses 10.00 ever 2 months

mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 9/19/2007 8:32 AM (GMT -7)   
Hi Lauren,the vials of b12 are really cheap.My insurance does not cover it either.Because I didn't want to try the injections first,my doc had me try 2000 mcg sublingual dots per day.My b12 level went from like 289 to 1,094 in a little over 3 months.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/19/2007 10:19 AM (GMT -7)   
i just talked to my GI doc's nurse practitioner. normal b-12 levels fall in the range of 211 to 911. as of september 14 i am at 332. looks like i got some work to do seeing how i started a b-12 supplement almost a month ago...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:25 AM (GMT -7)   
A little tidbit I learned on this site. Normal B12 levels in other countries are between 400-1000+. The US is the only one that says 200-400 are normal? If my levels were below 400, I'd push for some sort of supplementation.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


TN Girl
Regular Member


Date Joined Dec 2006
Total Posts : 37
   Posted 9/27/2007 7:13 PM (GMT -7)   
I take B-12 shots on a regular basis and my husband gives them to me. It's cheaper for me not to turn my B-12 prescription in on my insurance because my co-pay for it would be $10 but I only pay $4.69 for a large bottle and the syringes are fairly cheap also. I haven't had to purchases any syringes in a while so I don't remember how much they costs. Hope this helps.
Living with Crohn's Disease in TN. 
Peri-anal Fistula in 1993 twice but wasn't diagnosed until 1995.
2 surgeries (1995 & 2005)
Happily Married to my Soul Mate for 18 years


genoist
Regular Member


Date Joined Mar 2007
Total Posts : 41
   Posted 9/28/2007 5:41 AM (GMT -7)   
When I went to fill my script for 3 1cc bottles of B-12 the pharmacy didn't have any, so they filled it with 1 30cc bottle. It was about $12 IIRC.
Current meds: 100mg Imuran, Prilosec, Humira, fish oil, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.

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