burning sensation

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/18/2007 3:01 PM (GMT -7)   
Hi all,
 
With my newly Dx fistula I notice after eating etc the area burns.  Is that normal?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 9/18/2007 4:52 PM (GMT -7)   
Hi I never noticed any burning feeling when I had mine when eating or after.lol gail

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 9:17 AM (GMT -7)   
I noticed today that my skin is getting raw around the area where the gauze is wet with saline and absorbing the fecal matter and pus coming out.  I used some skin prep left over from my ostomy on the area that is affected.  While getting ready to do that my body decided since I was nice and clean after my shower to push poo out the fistula.  It was the first time I actually saw it poo normally I just see it on the gauze.  In the morning I also noticed there was quite a bit of yellow what I assume is pus.  Is that characteristic if a fistula?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 9:47 AM (GMT -7)   
I have seen people "pouch" a fistula. You can get the little baby pouches, use some paste or an Eakin and protect that skin. I think Convatec even has "wound" pouches that are great for this kind of thing (called the "wound manager" I think), at least they used to. Maybe a call to your ET nurse is in order.


Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 

Post Edited (JudyK89) : 9/19/2007 10:51:46 AM (GMT-6)


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:02 AM (GMT -7)   
Wound Manager® Sterile Drainage Pouch with Durahesive® Skin Barrier
For use with post-op draining wounds, dehiscent wounds; fistulas, penrose drains and wounds where leakage occurs around the base of a drainage tube. Wound Manager® is a lightweight drainage pouch designed with comfortable fabric-like pouch backing, a large access port, an odor filter and a drainage outlet, which can be attached to a secondary collection container. The pouch incorporates the Durahesive® Skin Barrier, a built in adhesive border and a measuring/cutting guide.

UPC Code Qty. H C P C S
(Universal Product Code)
30003-037405 5 per box A6154
Accommodates wounds up to 7.6 cm x 7.6 cm (3” x 3”)
30003-037406 5 per box A6154
Accommodates wounds up to 7.6 cm x 18 cm (3” x 7”)
30003-037407 3 per box A6154
Accommodates wounds up to 10 cm x 23 cm (4” x 9”)
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 10:35 AM (GMT -7)   
ty so much I will have to check that out. For now I used skin prep I have left over from before...shoot even thought about putting one of my wafers and bags over the area but it isnt draining that much. The Doc suggested I change the dressing 2 times a day, I may do it more frequently tho but concerned on how I would go about that at work nrxt week.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:42 AM (GMT -7)   
I'd use one if you have stool coming out. It will stop any odor and prevent your skin from becoming inflamed. It will also be easier to manage at work. I hope this is a short term problem for you, but I'd be prepared for longer, they can take a while to heal. Why don't you call Convatec and see if they'll send you a couple samples of the smallest one?

I had a drain in an abscess years ago and it used to leak around the drain. I used a small pouch until the drainage slowed down. Along with my regular pouch and the "bulb" used to collect the drainage, it made my lower abdomen a little lumpy, I had to wear bloomers under sweats, lol.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 10:44 AM (GMT -7)   
they want me to keep gauze packed into the wound not tight but enought so it will not close up. They have me using saline ( I have a cpl bottles from when they would flush and clean my incision, they are not sterile anymore since they have been open but that doesnt matter since what is coming out is poop). I also bought a sterile saline spray at the pharmacy. It shoots a stream of sterile saline in the wound to flush out the area. I use that before putting the new gauze in and around the area. Do you think using the skin prep will allow the excoriated skin below to heal? Should I get something like desatin instead?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:49 AM (GMT -7)   
I'd at lease get some no-sting instead and Desitin might be a good idea. If this is a fistula, don't they want it to heal? Are the going to put a Seton in? I don't know, I had an abdominal fistula and we just let it heal, and I never had problems. Luckily, mine was close enough to my stoma that I was able to "pouch" it with my stoma.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 11:06 AM (GMT -7)   
They think since it isnt gushing out feces that it will heal once I start humira. I dropped off my stool sample today to test for C Diff. If that comes back nrgative I just have to wait for my pharmacy to get it in. I am using the no sting barrier wipes that I have left over from my ostomy. I have another full box of a different one too, I wont use that though until I am out of the no sting and the skin is healed. Then I may switch to that one right after the skin heals so if it does become excoriated again I will have no sting ones on hand. I also have the no sting spray in addition to the wipes. I informed my GI about the tx the surgeon has me doing and he agrees. My surgeon is back from vacation this upcoming week so I took my old appt for Thursday the 27th at 4:30...last wed it was you look great see u in a month, although ai had informed him of pain I was having hence the C diff...there was no visible sign of any fistula at the time and my insides are "soft" according to both docs (mine and the one I saw monday). The next step was going to be a MRI but now that the fistula came to the skin and is now open I think we know the problem. Since it has "popped" the pain is lessening greatly although I am sore in the general vacinity of the actual drainage site. I have oxycontin and dilaudid for pain pills at home. I also have more pain patches but wont use those unless directed to as a last resort.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/19/2007 12:01 PM (GMT -7)   
Hi Girls Hope your both doing good .I was told not to keep saline after 15 days by the top ER nurse. Not whats coming out but more a matter of not getting anything in it I guess.That minny ot sounds helpful at least at work I worried about the darn thing having a fart in public although there was very little poo .Are you near a hos that you could ask if covering it like that would be ok. Some air after work might help it breathe. I always put hand santizer on after washing my hands that at least made me feel sanitary when doing the dressing. What kind of tape are you using? I used the stuff that wasn't too sticky not the plastic type because that almost pulled my skin off and hurt .Another thing I did was to bathe instead of showering at the end so as not to get too much water in it but that was just me. Anymore word on starting the Hum? Hopefully things are looking up for you both .lol gail

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/19/2007 12:11 PM (GMT -7)   
I can only use paper tape I am allergic to all the others. I see my doc on the 27th so the covering one I saw was the 17th so that will be 10 days of the saline dressings, he will be able to guide me from there. I have wound/ostomy site cleanser left from my ostomy so I use that it can be used in a wound. I squirt that around the area at the end of my shower and rinse it off. It is also used for incontinence cleansing. I also bought sterile saline in a can at CVS. It squirts out and it flushes the area clean beofre placing a dressing. After I used that and dried the internal area with qtips and sterile gauze was when it decided to poop. Luckily I had a face cloth under it but it still went in that little valley of my scar down to my underwear. I have my period now too so cramping is pretty bad, I have an ovarian cyst that likes to come and go as it pleases even with the pill. I just ordered some wound care supply samples from hollister, I dont want to try a diff company since I have many allergies to tapes, adhesives etc so I know I dont have reactions to hollister products. Hopefully they wont take too long to come in, my health insurance doesnt cover ostomy or wound care supplies which stinks.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 

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