Adhesion Blockages

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Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/19/2007 10:42 AM (GMT -7)   
I just spent a few days in the hospital for an adhesion blockage. Or at least thats what I said it was and the doctors agreed with me. I love that I know more than the so called experts, but whatever. I have had these spells for years. I get maybe 5 a year (not really sure, cause I've never kept track, but I guess I should). All of a sudden, I get intense pain and my belly swells up like I'm 8 months pregnant, and all things stop moving. No belly sound, no gas, no D. Usually it passes in 6 to 8 hours. Most of the time I can even stay at work, 2 percocet and I'm able to function until things start moving. Thats not to say I'm not in a ton of pain, but I'm a CDer who refuses to let CD win. I continue to take water but nothing solid, and once things start going again, I keep to a very soft diet for a few days and then things are ok.

But this time, the blockage lasted a good 24 hours maybe a bit longer, and I couldn't take water. Every time I would take a sip of water I would get really nauseaus(?). I didn't throw up much, cause I just stopped drinking altogether. Finally I was afraid I was getting dehydrated so I went to the ER. 3 days later, they let me come home. I have told my doctors about these episodes before, but they've never really said much. But the Hospitalist thinks I should have a surgeon consult about having my adhesions taken care of. I'm not really sure what all that entails and wouldn't that just make more adhesions?

Does anyone else deal with this and has anyone else done anything to resolve it. The more I think about it the more I wonder if I under play how often this happens and if I really should be looking in to solutions rather than just dealing with it. Any advice would be welcome.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/19/2007 10:54 AM (GMT -7)   
Why are you so sure it's adhesions and not the CD? Have you had other tests done? If you go to a surgeon, they're going to want more tests for sure. But yes, you should be looking into what's causing the obstructions and how you can treat them. Obstructions can become dangersous and you don't want to have emergency surgery.

Hopefully it's an easy fix for you. Keep us posted.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 9/19/2007 10:59 AM (GMT -7)   
I would definitely get something done. That doesn't sound healthy or even safe to suffer thru till the next one. Blockages can cause serious problems and make things much worse. I wouldn't want to wait till the next one and see if I make it thru...or rupture...or fistulize to get around...etc. Get your doc to find some solution weather it be resection or something to remove the adhesions. Don't wait!
Dx 2003 but probably had it 10 years prior
GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05
Currently on 100mg 6mp and Remicade every 8 weeks, Ambien as needed, preds as needed


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/19/2007 11:19 AM (GMT -7)   
you know I have dealt with it. I would bet it is adhesions due to all your surgeries. the surgeon told me that EVERYONE who has surgery has adhesions, it just depends where they are if they give you trouble or not. You wil have to have a laporscopy to know; no xrays show adhesions.
email me if you want to talk about this. take care. yp


48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and imipramine...living with pain, but doing ok.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/19/2007 11:24 AM (GMT -7)   
I had three similar attacks in Feb and March of this year. They did catscans out the wazoo and couldn't find a blockage, but I know what obstruction pain feels like and that was what I was having. When I had my last resection in 2005 the surgeon had to spend the first 2 hours just cleaning up my adhesions. I know that they don't like going in and cleaning up adhesions as this just creates more of them. They already know I now have more, because last summer they tried to do a colonoscopy and the left side of my colon is now adhered to my body cavity by "adhesions". I have put myself and kept myself on a low residue diet and things have improved. I would rule out other things first, like the others have suggested, and if it is the adhesions causing all your problems, you can decide how you want to handle it going forward. Good Luck to you.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/19/2007 11:25 AM (GMT -7)   
I've had every test under the sun. Some I had to go to the city to get because they are only done in one hospital in New England. The doctors can only find small areas of active disease. Not much going on CD wise. All of the trouble I have had in the last several years has been attributed to other causes or unknown causes, gastritis multiple times, but unknown as to why, pain when I eat, but not enough active disease to be causing the pain. Stomach bug that made my husband sick for a few days put me in the hospital for a week. So basically I am left with my CD is calm, I won't use the R word.

My mother always had these episodes and just suffered through them so I always did too. Like mother, like daughter I guess. This one, just really was worse. And I guess scared me a bit cause I'm not bouncing back like I normally do. I did a little bit around the house this morning and was just wiped out. Not at all like me.

I am having a colonoscopy next week, it was already scheduled, so I guess if there is anything major going on they will see it then. I just don't want to jump out of the frying pan and into the fire so to speak. I've always thought that having more surgery would just create more adhesions.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/19/2007 11:56 AM (GMT -7)   
Suzanne you are right, having more surgery just creates more adhesions. After my last attack in March is when I started the low residue diet. I know my obstructions (just me knowing) are from the adhesions and I think they cause my bowel to get kinked by adhesions or something, because the pain is really bad. You sound exactly like I did afterwards too. I was so weak and shaky for awhile. I also had to do a round of Pred too. I think they just gave that to me in case there was some inflammation going on somewhere they couldn't see.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/19/2007 1:16 PM (GMT -7)   
I've been doing low residue for years. I've had so much bowel taken out that if I eat anything with fiber I might as well live in the bathroom for the next day. But the really strange thing is that I was put on Topamax in July and it has totally decreased my appetite so I don't even have the urge to cheat on my low residue diet. Normally, I might have wondered if I had eaten something that I shouldn't have, but I have to force myself to eat (totaly out of character for me). So I know that this was not food based.

I did increase my prednisone a bit for the next couple of days just to boost myself up, because I was so shaky today. And I will go back down quickly. I've been tapering for the last 9 months 1mg every 6 weeks or so, so I don't really want to go too high or for too long, but just enough to get me over this hump.

I just am not sure what to push for in the future. My doctors are really great in that they know I am a very well educated CD patient. So they really don't push me, they let me kind of lead the way. Most of the time thats what I want, but right now it has me a bit flumuxed as to what to push for. Much as I hate to admit it, maybe I didn't bounce back as quickly becasue I'm getting older, argh!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/19/2007 1:36 PM (GMT -7)   
I am so sorry you are going through all this Suzanne. we are sharing a seat on the roller coaster, yes?? yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and imipramine...living with pain, but doing ok.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/19/2007 1:58 PM (GMT -7)   
Yes, I've always loved rollercoasters.

Did having the adhesions cut help you, make things worse, or make no change? I'm sure my insides are a mess. I had 6 abdominal surgeries in 10 years, so there must be a slew of adhesions in there. Like I said above, I'm loving my new doctors, they really do let me lead the way, but right now, I'm just not sure what path to take.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/19/2007 2:25 PM (GMT -7)   
yes, the surgery helped some. my colon was stuck to the inside of my body and folded over itself, so some of the pain stopped. that said, of course surgery can cause more problems, but I was living on oxycodon and really a mess, and now I am having more manageble pain. the surgeon who did it is "the god of laparoscopies" and he told me he wouldn't do it again, so I hope the humira helps and my adhesions stay under control.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and imipramine...living with pain, but doing ok.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/19/2007 2:36 PM (GMT -7)   
I hope the Humira helps you too. Its been such a long road for you. I think the severity of this one scared me. We have a major vacation planned in November and normally I would just suck it up if I had a blockage while away. What's 8 hours? It happened once before, we rented a wheelchair, I limited my movement and sucked it up. But this was different in the length and intensity. I would be down for the count. Irony, the vacation is to Disney so its all about the thrill rides and rollercoasters for us! Thanks for the info. I think I will be discussing this with my GI while he's getting ready to do my colonoscopy next week to at least see what he thinks my next step should be. Definitely before they give me the lala meds!!
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/19/2007 2:50 PM (GMT -7)   
it was from my colonscopy that the doc suspected adhesions, because he had such a hard time with the scope as nothing moved. if it is hurting your quality of life i would consider surgery.
send me an email and you gotta be better for disneyland; I am a disney freak! Betz
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and imipramine...living with pain, but doing ok.

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