pb4 or anyone else, your expertise please!!!

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Sad Mom!
Regular Member

Date Joined Aug 2007
Total Posts : 58
   Posted 9/19/2007 2:16 PM (GMT -6)   
Hi pb4, can you tell me when is the best time to take the probiotic Reuteri. I put my son on it after reading about it over and over again and I am sure glad I did. He is also taking Aloe vera gel (2onces) with apple juice at night. I just want to make sure that he is getting the maximum effects from the probiotic, the lady at the nature store told me to have him take it with yogurt (fat free activia is the one I use) in order to maximize the good bacterias. What do you think? I know you are pretty good at this and thank God for it. I am trying to control this DD with the lease meds as possible. He is taking Pentasa 2x500mg 4xday, 1x mutivitamin, 1x vitamin B complex, 1x Omega 3,6,9, 2x 300mg Euro Sulfate Ferrous (Iron), 2 onces of Aloe Vera gel, 1 Reuteri probiotic. I also made him take a vitamin C supplement but it seems to upset his stomach, I made sure that I purchased the Ester form of vitamin C, since it is better absorbed and smoother on the stomach. What do you think pb4?
Thanks and Hello to everyone else also. By the way, the GI who is a Crohn's specialist, thinks that I am wasting time and money, since according to him, he should be on 6MP. However, this love potion prescribed by doctor Mom, seems to work for the time being! yeah
Bye for now!
Sad Mom!

Post Edited (Sad Mom!) : 9/19/2007 1:44:50 PM (GMT-6)

Regular Member

Date Joined Aug 2007
Total Posts : 41
   Posted 9/19/2007 3:32 PM (GMT -6)   
Doctor Mom,
My GI, who is a Crohn's specialist as well thinks I'm crazy for stopping my medication and going on the natural route. She thinks I need to be on 6MP as well.
Good luck to your son!

Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
Just got off of Entocort (too many side effects) and Cipro. I'm now trying the Maker's Diet as well as a bunch of vitamins and probiotics. Let's hope this helps a bit!
This site is great for support.

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 9/19/2007 4:19 PM (GMT -6)   
I take my primadophilus in the evening, not for any specific reason other then that's what time it was when I got home and took my first one (I like to take things on a 24 hr basis).

It's fine for him to eat yogurt as well, the more the merrier.

I take vitamin C-Calcium Ascorbate, it's much easier on the gut, I've had no problems with it at all.

In my opinion, any good GI will encourage taking probiotics, there's enough research on it to show it benefits both IBDers and IBSers since both tend to have bacterial over-growth issues and there is a huge link to bacteria and IBD (IBS too).

If your son is still experiancing D you might want to add a fibre supplement to his regime, my GI TOLD ME to take it everyday for the rest of my life...starting out small amount is best and only increase if necessary, it may cause bloating and gas but this is a normal adjustment period and happens to healthy people as well, it can be difficult to stick with because of those symptoms but believe me it's so well worth it...the list of benefits I've gotten from fibre supplements is too long to mention right now.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined May 2003
Total Posts : 2480
   Posted 9/19/2007 8:02 PM (GMT -6)   
Hi sad mom,
I am so glad to hear that what your're doing is helping your son. That's awesome.
My GI encourages me to try natural stuff because he sees way too many crohnies whose meds don't help. He even encouraged me to try the worm therapy! Many of his colleagues (in Toronto) are involved in much research for crohns, including the use of probiotics.
Anyway, I was wondering if you've tried any of the diets we talk about here, the maker's diet or the SCD?
Best wishes,

Sad Mom!
Regular Member

Date Joined Aug 2007
Total Posts : 58
   Posted 9/19/2007 9:55 PM (GMT -6)   
Hi Roni,
Thank you so much for your kind words. No we have not tried any diet except avoiding garlic and onions which seems to bother him. I am trying to keep him on a minimum impact on his life. God knows how much he has been through already and I would trade place with him in a heartbeat if I could. Anyhow, I am just trying to be strong and I am listening to what his gut is telling us and respecting it. He was just Dx in July 2007 so we are still very new at this, but this place is really awsome and the people are just great. I am so gratefull that I have found this site with so many expirience people who are willing to share. I found that this is a place that is soothing for me since I could express my feelings. I will be seeing the doctor in October because I am going towards a depression. I am having a hard time dealing with all this.

Thanks again and keep well!

Veteran Member

Date Joined Aug 2007
Total Posts : 990
   Posted 9/19/2007 10:51 PM (GMT -6)   
Hi Sad Mom! Do I remember your son is around 21? He might like to read the Maker's Diet simply because he would really be able to relate to Jordan Rubin's story (19 yrs. old when diagnosed, 22 or so when he reached remission). The first 1/3 or so of the book is all about what he personally went through. The diet may or may not be for your son, but the seed would be planted.

I find with my son everything is about timing. I have to catch him in a really good mood to plant those seeds! But then, he's still coming to terms with this whole thing, so I can't blame him.

You sound like you are really on top of things! A big hug to you for all you are doing! Hang in there!

Roni, I want your GI for my son!!! Ours is more like nazeha's and sad mom's. He thinks supplements (yes, even probiotics) and diets are "not proven" or something like that.... Roni, you're in/near Toronto? Darn! Too far away...


Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.
Just starting the Maker's Diet.

Regular Member

Date Joined Jun 2007
Total Posts : 210
   Posted 9/21/2007 4:37 PM (GMT -6)   


I hope you will find good probiotics for your son. I do use some of them too, and Elaine Gottschall which is the Mother of the SCD Diet says that there are some probiotics that helps the intestines better than other and some that you absolutely should avoid cause they could make more problems than help. Here are the good ones: Lactobacillus Bulgaricus, Streptococcus Thermophilus and Lactobacillus Acidophilus. She says that we have to avoid Bifidobacterium Bifidus, but to be sure, avoid all that has a name with Bifidobacterium first....

At her website, www.scdiet.com you may read a lot of interesting things about how she did her research to help her daughter which had IBD, and how she has helped a lot of people with Crohns all over the world. The diet craves a lot of work from the implicated, but it's a great pay off.

Yoghurt is excellence, the best yoghurt to use is the one you'll read about at Elaines pages, you make it your self at home, and you add probiotics in it as a yoghurt starter. This prosess makes the yoghurt almost lactose free, and it will throughout a fermentation going on for 24 hours be filled with a lot of probiotics! So the home made yoghurt will be a natural immunsystem booster with all it's good and right probiotics. Other yoghurt that u buy in the stores contains a lot of sugar and lactose, and it's better to avoid those stuff.

You don't have to choose to go for all the diet, or maybe chose another diet for your son, but, the yoghurt will be of great help for his health. If you decide to use a common yoghurt for your son....maybe u could find one without sugar and with some good probiotic strains.

I have bought a yoghurtmachine, I make my own yoghurt and it's really delicious! I add blueberrys and ripe banana, and it's tasting sweet - really yummy :-)

With all the best to you and your son,

From Ingrid in Norway :-)

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