Where is your Crohns located?

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Regular Member

Date Joined Aug 2007
Total Posts : 41
   Posted 9/19/2007 3:41 PM (GMT -6)   
I just found out mine is located in the terminal ileum, right colon and perianal.
I've heard most people have it in the ti...anyone in the right colon or perianal?
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
Just got off of Entocort (too many side effects) and Cipro. I'm now trying the Maker's Diet as well as a bunch of vitamins and probiotics. Let's hope this helps a bit!
This site is great for support.

Regular Member

Date Joined May 2007
Total Posts : 28
   Posted 9/19/2007 7:53 PM (GMT -6)   
My crohn's is all in my small intestine.  All but the middle 5-6 ft.  But I am actually in remission now. YAY!
Crohn's since age 18, Dx in August 2006 at the age of 23.  Crohn's discovered after botched fistula surgery.  Doctor tells me all but the middle 4-5 ft of small intestine is affected with a stricture.  The good news is I have been in remission since Sept. 2006 with 100mg of Imuran daily. 

Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 9/19/2007 7:57 PM (GMT -6)   
Mine is also located in the TI. I have had an anal fistula, so I know a that point I had diease there too.
Diagnosed with mild Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Asacol and Questran.

Veteran Member

Date Joined Apr 2004
Total Posts : 2284
   Posted 9/19/2007 9:28 PM (GMT -6)   
TI for me too.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.


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Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 42 years.

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 9/19/2007 10:06 PM (GMT -6)   
TI for me, too.

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 9/19/2007 11:09 PM (GMT -6)   
When I first got sick it was in my TI, colon, rectom and anus...it's still constant in my colon and anus (with perianal crohns skin tags), comes and goes in the rectom but luckily (if there's such a thing) it hasn't been in the small intestines for yrs...I've had it for 16 yrs straight now with no full remission.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 9/20/2007 12:46 AM (GMT -6)   
Mine is in my TI but also esophagus.
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 9/20/2007 4:19 AM (GMT -6)   
Mine is the right side and TI
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Feb 2007
Total Posts : 33
   Posted 9/20/2007 5:00 AM (GMT -6)   
Mine is in the large colon and rectum.

Veteran Member

Date Joined Jan 2005
Total Posts : 1710
   Posted 9/20/2007 5:33 AM (GMT -6)   
TI was removed 25 years ago, CD is still active in that area. Also duodenum, stomach, espohagus and even my mouth.....full coverage!

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 9/20/2007 5:38 AM (GMT -6)   
Hi Cecum and small intestine left side or at least that was where it was when scoped in Jan. Also had 2 fistula's and large abcess. lol gail

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/20/2007 8:18 AM (GMT -6)   
Mine was diagnosed in 1975 ileo-colitis. When I had my first resection they removed 12 in. in the TI and part of my Cecum. As stated above most have it in the TI
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 684
   Posted 9/20/2007 8:34 AM (GMT -6)   
Mine was in the sigmoid and the descending colon.  But it has been removed so I'm not sure where it will pop up next.  I'm loving this remission. tongue
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
Daughter (26) also has Crohn's since she was 12.
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor

Regular Member

Date Joined Jul 2007
Total Posts : 73
   Posted 9/20/2007 8:39 AM (GMT -6)   
TI, secum, and rectum
Munchkin 81
26 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
currently taking 9mg Entocort EC and 1200mg Asacol 3xday
Aciphex 20mg 2xday  Iron, B-12, and folic acid

Regular Member

Date Joined Apr 2007
Total Posts : 217
   Posted 9/20/2007 9:06 AM (GMT -6)   
hi, TI and they found apthous ulcers in my left colon but there's no inflammation
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg . starting imuran 250 mg  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.

Veteran Member

Date Joined May 2007
Total Posts : 589
   Posted 9/20/2007 12:53 PM (GMT -6)   
TI and probably some other places i cant remember, plus fissures on my anus. 80% of the pain is from the fissures, though.
19, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 9/20/2007 4:26 PM (GMT -6)   
I have it both in my small and large intestin and I have it in my mouth and espohagus as well and just found out that I have it in my stomach.

Regular Member

Date Joined Mar 2007
Total Posts : 57
   Posted 9/20/2007 8:26 PM (GMT -6)   

My daughter has perianal crohn's. She has absesses and fistulas.


Angels Mama

Regular Member

Date Joined May 2005
Total Posts : 75
   Posted 9/20/2007 8:41 PM (GMT -6)   



My crohns is located throughout my entire colon, rectum, and mildly in the beginning of my ileum.

Regular Member

Date Joined Sep 2007
Total Posts : 160
   Posted 9/23/2007 11:20 AM (GMT -6)   
My crohns is in the ti area grrrrrrrrr i had my resection lst year had 6 really good weeks felt like the bionic woman (haha) then all started going downhill 6 weeks after was admitted again.never ever thought i would attending the hospital every friday plays havoc with your social life but what can you do whats more important your health or your social life!!!!!!!!!!
so fatr the methos working im on 5mg folic acid for the side effects the only thing i really notice is that your hair falls out saved a lot of money on hairdressers these past few months (haha)
are there anyone else on metho injections?i asked my doctor if these injections are only available weekly and she said yes anyone else on metho and how often are you receiving these injections?

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 9/23/2007 12:49 PM (GMT -6)   
Mine was in the descending colon and rectum, but I had them removed a year ago and have been in remission ever since.
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)

Regular Member

Date Joined Oct 2006
Total Posts : 148
   Posted 9/23/2007 1:10 PM (GMT -6)   
Mine was originally located all in my colon which is why I was diagnosed with pan colitis. We recently found out that I have CD by doing an endoscope and I have it in my stomach and the duodenum. I also get ulcers in my mouth at times..
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Colazal 3 3x's a day which was stopped 9/11/07
Can not tolerate Prednisone in the slightest amount
Imuran 100mg a day. Which I started 8/24. Stopped 9/11/07
Methylpred 40 mg a day.


Veteran Member

Date Joined Feb 2006
Total Posts : 842
   Posted 9/23/2007 1:43 PM (GMT -6)   
Mainly TI, I've had fissures, and have a skin tag, so I suppose there's some disease activity in the colon/rectum as well.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira: got 4 shots on 9/12, finally got approval on 9/21, next 2 shots on 9/26
Dicyclomine and hyoscamine for intestinal cramping and spasms
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!

not creative
Regular Member

Date Joined Mar 2007
Total Posts : 466
   Posted 9/24/2007 5:16 PM (GMT -6)   
Had a scope in May, GI says it's restricted to the last 3cm of my rectum which I guess means a resection is out of the question so if it ever gets too bad, Ill have to have an ostomy.
Laurenne, 23 Student @ UC Davis.
Dx'd w/ IBS and CD in 2002
Currently taking Lialda and doing well

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/24/2007 10:36 PM (GMT -6)   
Like most mine is in the TI, more recently skipped to the sigmoid, and more recently yet in the mouth and possibly stomach.
Boy it sure has a way of creeping up on you...

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

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