CAn on emouthful of granola do this to me?

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awatt
Regular Member


Date Joined Mar 2006
Total Posts : 34
   Posted 9/19/2007 3:58 PM (GMT -7)   
I have been in remission fro about 6 months. I take Pentasa, Entocort, Levaquin and low dose naltrexone.  Have a stricture in the TI.  Generally doing well. The only symptom I have is I do get some pain in the RLQ mid-cycle for some reason, even when in remission. Also, if I eat too much iI will have a loose BM.
 
Anyway I've been following a gluten free diet, and it helps. Tonight I tried one mouthful of gluten free granola and it has wrecked me! Have gone to the bathroom 3 times since, the last one bsing diarrhea.  Is it possible for such a small amount of food to have this effect?  Or am I wrong in blaming it on the granola?

Lucillemom
Regular Member


Date Joined Apr 2005
Total Posts : 183
   Posted 9/21/2007 7:30 AM (GMT -7)   
No your not wrong blaming Gronala. I love Granola, but I do not dare to eat it. As soon as I eat it, I running to the bathroom all day





Hemi and Fissure surgery that developed 2 abcess deep in my left cheek, by my rectum...(oh how fun!) Medication: Asacol 12 pills a day, Immuran 200 mg, Welchol 4 pills a day for diarhea

Pregnant for my second baby that is due Nov. 1, 2007

Thank God for my adorable daughter, who makes me smile
<FONT color=red>everyday!


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/21/2007 7:43 AM (GMT -7)   
      Granola?.....Ouchee!!!! nono
 
Add to your no, no list...hope you get through this soon.
~Sukay~
 
Crohns Disease-Remicade since 1999, Methotrexate
Fibromyalgia & Arthritis
Bipolar & Panic/Anxiety-Trileptal, Xanax, Trazadone, Wellbutrin


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/21/2007 12:33 PM (GMT -7)   
Add it to the banned food list!


Matthew

awatt
Regular Member


Date Joined Mar 2006
Total Posts : 34
   Posted 9/21/2007 3:04 PM (GMT -7)   
Thanks for your replies and support. Feeling much better, although not 100% yet.  Never again will granola touch my lips.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 9/21/2007 4:50 PM (GMT -7)   
And that is how we all learn what we can and can not eat! Paprika felt more like straight moonshine all the way down my GI tract and into the toilet! Don't have problems with regular black pepper? Go figure. Glad you're feeling some better!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 9/22/2007 4:50 AM (GMT -7)   
awatt,


It's also a NO NO to use entocort and LDN at the same time. Never use steroids with low dose naltrexone. Please, get better information about this by visiting your doctor. LDN is supposed to never be taken with narcotics, steroids and immunesuppresives. sad

From Ingrid

awatt
Regular Member


Date Joined Mar 2006
Total Posts : 34
   Posted 9/22/2007 1:22 PM (GMT -7)   
Thanks Ingrid, I did not realize that.  My doctor unfortunately didn't know about LDN, I had to gice him teh paper from the pilot study and ask him for a RX.

killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 9/22/2007 2:29 PM (GMT -7)   
Ingrid is right, no steroids with LDN, though I have read that short term for bad flares if they occur may be OK. There is a lot of room for interpretation about LDN, apparently. Also, may I ask why you are taking Entocort while in remission? Is your doctor prescribing it as a maintenance drug?
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/23/2007 3:28 AM (GMT -7)   
I use to love my Granola

BUT it is definitely on my "NO NO list" and has been since first time I ate it after DX
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Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 9/24/2007 3:43 PM (GMT -7)   
Hi awatt,

I am not sure what Granola is, we don't eat (or drink?) that in my country. :-) I have been reading your post again, and I am wondering why you use all those medication while you are in remission? Are you still tapering off of the entocort? I understand that pentasa be used alone or with a steroid (like Entocort), but LDN is not supposed to be used with any steroid. Except when you use a small dose prednisone, like 5 mg a day or Entocort at it's lowest dose, just before you taper off it. But usually those two are contraindicated.
So, be careful with big doses of steroids with LDN.
I have red that a lot of Crohnies really should find out if they have a sort of gluten intolerance or gluten allergy. New science shows that gluten intolerance is found in the intestines even if the tests don't show it. (Researches shows gluten sensibility while they have examined pasients during endoscopy)
Maybe you are one of those having this sensibility?

I too have a stricture in the TI, and I have started using LDN four days ago. How do you feel by using LDN? I think that the pain you have in your LRQ is due to the stricture. Even if the inflammation is in remission, and the intestines in general is in good shape now, if there is a stricture, there is still a stricture - and this one will make you feel pain now and then when you have been eating something that have trouble passing it.

So take care by avoiding long fiber food. Chew your food well, drink a lot of water while eating, or sip the water is better. Also: avoid seeds, popcorn and unpealed fruits and strawberries. Vegetables: cook them close to soup like....

Have a nice day,
from Ingrid :-)
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