medication after surgery

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Eryn
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/20/2007 7:01 AM (GMT -7)   
I had surgery about 7 weeks ago for Crohn's, so as I understand it, I technically don't have active Crohn's right now.  However, my doctor is looking to start me on Humira since my Imuran isn't working.  Are any of you starting new drugs even though your Crohn's isn't active?  

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/20/2007 7:08 AM (GMT -7)   
My doctor put me on 6-mp after my surgery as a maintenance drug. I couldn't stay on it though so I'm only on pentasa now. When you say the Imuran isn't working what do you mean? Do you have any disease activity or was it just causing problems?


Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Eryn
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/20/2007 7:15 AM (GMT -7)   
The doctors have done metabolite level testing on me to see if I am actually metabolizing Imuran at helpful levels. Those have come back showing that I do not have enough of it in my blood to actually do any good. Sorry, I didn't clarify. I actually haven't had any flareups since surgery (although that wasn't long ago), so it is just maintenance. However, Humira seems like an extreme maintenance drug...??? I'm a little scared to be on it for a long time.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/20/2007 7:44 AM (GMT -7)   
I'm facing the same thing right now. Personally, I won't go on Humira for maintenance, because of the high cost for me if nothing else. But I agree, I feel it's pretty extreme for a maintenance drug. The problem is what are your options? I wonder if using 6MP instead of Imuran will make a difference? I know Imuran never worked, but 6MP did for me.

My problem is my liver, we have to do a bunch of blood work before we can decide if I can go back on 6MP.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dizzyd
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/20/2007 10:04 AM (GMT -7)   
 
 My doctor also wanted me to go on imuran after my surgery.  I did not agree as I was symptom free and imuran does not guarentee anything.  He did suggest I quit smoking (which I am on again off again) and said that it is probably just a matter of time before it comes back.  He did like the fact that I work out 3 times a week and kayak on weekends. (said it was probably keeping me in remission).  Anyway it's been 3 years since my surgery and I feel great.
If the crohns does come back I will re-think the imuran but in the mean time I do not see the point of inviting a host of other problems to try and combat something that may or may not come back.
Do what's right for you.  Weigh the pro's and con's and maybe look into other aspects of your life to help keep you in remission.  Good luck.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/21/2007 3:27 AM (GMT -7)   
Hi, Even though you had surgery for the crohn's and your fine now. You still have it. It does not ever
go away. I had surgery a long time ago and I am on Remicade which is keeping me in remission.
Thats why they are putting you on humira to keep you in remission.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/21/2007 4:15 AM (GMT -7)   
Hi How bad was your surgery and how much surgery did you have? I am wondering why your Dr. wants you on Hum. You have no disease now have you had test to see what is going on in there and can they really be sure there is no disease .Hum. would probably give you a longer remission but who knows. At least the Dr. is giving you a chance to make that decision. lol gail

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/21/2007 4:55 AM (GMT -7)   
I have had 3 resections, the shortest time I went with no symptoms after surgery was about 4 weeks. The longest about 1 year. The maintenance drugs are in place to keep anything that might be going on microscopically. It is the rare person who is not on some form of maintenance drug. I would not be comfortable not taking any maintenance drugs, because even if I can't feel something going on, it might still be there. I want to be treating everything and not letting it get to the point that I'm in pain before I call a doctor and start seeking out treatment. The sooner each minor flare is treated the less scar tissue and damage is done, meaning the longer between surgeries.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/21/2007 6:45 AM (GMT -7)   
Since my last resection the only maintenance drug I am on is Asacol. It helps to keep the inflammation down. Its working great for me. I personally want to save the heavy guns for when I really might need them. I am feeling, for the most part, pretty good, so for me I will stay with the lighter meds.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/21/2007 8:37 AM (GMT -7)   
I had my ostomy reversal 3 months ago. Unfortunatly my CD has returned and I was on pentasa as a maint drug. The GI said that Pentasa is the least effective (all I recall is a 4 in the percentage that he gave me...could have been 4% could have been 40% that it helps I cant recall). I now have a fistula and I will get my first doeses of humira today. I hope to at least have some of this abdominal pain lessen by Monday when I start work....or at least have this fistula stop audibly farting
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/21/2007 10:11 AM (GMT -7)   
After my last resection, my GI put me on remicade, 6 weeks after. I had a bad reaction to it, so I only use steriods right now.
However, he told me for him it was normal practice to put patients on maintenance drugs following resection. My opinion is,
how are we ever going to know whether resection can work to put us into remission, if powerful drugs are used from the out
set. That having been said, I've never really been in remission following any surgeries or drugs!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts

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