This is a very unscientific answer, but there were 4 things that occurred prior to my Crohn's diagnosis. (1) I noticed loss of muscle (mass, not tone) in my arms and torso, maybe a bit in my legs (2) dark circles, sunken eyes (3) mucus in my stool and (4) aches and pains. I haven't discussed or had the loss of muscle analyzed in any way, thus the unscientific answer part.
Since I was not exercising as much due to the aches and pains, was breastfeeding (have been for 2 years now) and had just been pregnant, I found it difficult to chalk up any of the symptoms other than the mucus in my stool to anything independent of the pregnancy/childbirth/breastfeeding cycle. Especially since I'd never been pregnant before and had nothing to compare it to.
My hunch is that I was suffering from malabsorption and that contributed both to the dark circles under my eyes and loss of muscle mass. Though I wasn't exercising as much, caring for a child requires the equivalent of an upper body workout every day and I wouldn't expect to look scrawny. I also found it hard to keep weight on, but this was attributed in my mind to breastfeeding.
36 year old mother of a fabulous toddler.
Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.
On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).
Current biggest complaints: LRQ fullness and slight burning, gastritis symptoms, horrible right hip and low back pain.