Skin infections and Crohns ?? Doctor thinks I have pyoderma gangrenosum r/t Crohns anyone ??

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paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 9/21/2007 1:21 PM (GMT -7)   
I posted yesterday b/c I have thought I may have MRSA in a wound on my leg. Today I seen an infectious disease MD and he thinks I have pyoderma gangrenosum.  Which is a skin disorder where cuts can turn into ulcers in people with Crohns Disease !!!! I can't believe it,  I have to get a biopsy to be sure and then tx may include steriods (YUCK) ... I never knew this we are even prone to skin problems but sure enough when i researched it its there Anyone else deal with this before..?? If not guess its an FYI to be aware anything that goes wrong and seems so not connected to the Crohns.. It may be..

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/21/2007 1:33 PM (GMT -7)   
Hi I had some skin issues years ago and the steriod cream helped not sure that was what I had but wouldn't be surprised. Hope you get it DX soon and something for it there are others who have had it so hopefully they will be along. Sure makes a person wonder how one disease can have so many problems but we need to be aware of it. How bad is your leg? Is it a very big area? Hope things get better soon. lol gail

gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 9/21/2007 1:44 PM (GMT -7)   
One of the moderators, Lyn suffers terribly from these. I'm not sure how its treated though, someone will be along with more helpful advise. Your right though about being made aware of how this sodding disease manifests itself, we need to be vigilant of any changes on the surface of our skin.
Take care, I have a bluish/purple blemish on my right leg I've had for a couple of years, when did you notice yours?
Tess

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/21/2007 3:01 PM (GMT -7)   
I suffer from Pyoderma gangrenosum.I was diagnosed with it about a year ago.I had what looked like five or six little red dot and after about two days later they started to look not only red but turned into what appeared to be blister and once these pop(on there own)then my skin and the meat was being eaten away the one on my face got really bad that it litterly at down to my check bonne was visable.I have a really bad scare because it.I know have three new one on my back.I have a stroid med's that I use to help heal them.Lyn will be along soon that will give her input.
Curley
.........
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/21/2007 3:08 PM (GMT -7)   
HI there
Yes I do from this and have for many many yrs ............
MIne start out as pimple like putules and go into big I mean huge sores I almost have lost my leg and a finger over this DD
Look up PG in above search engine and it may show my pics if not go to A/P and look in back pages like around page 15 or so ........there is pics there and they are rather groos but I felt they had to be shown .....should be on here as well somewhere although this forum is much busier .........

One thing I do know and have learnt thru experience is NOTHING grows from biopsy and it is not bacterial..........I am however put on antibitics when they get to strting to get bad and the Rocephin will help .IV..........as well as Methotrexate and Folic acid ............

There is a few others that also have this ..YES it is a rare "gift " of the CD but more ppl I find are getting it .........

Email me at side email and I can send you some pics........or any  other Q you may have

Trauma to the body such as banging self .......tripping and STREESS does make it worse
So at my times with outbreaks I have to take 4 ativan per day to keep blood from going so quick thru ststem...

It is an autoimmune disorder...........

I am praying this is not what you have...there is Erythonydosum (sp) that can do cause skin problems but not like this from my understanding.........
...........LYN


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 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
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Post Edited (Howlyncat) : 9/21/2007 4:45:54 PM (GMT-6)


paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 9/21/2007 3:16 PM (GMT -7)   
Thanks for the feedback. I can recall what i thought was a bug bite on the front of my leg since July and then at teh end of August it started with puss. It is now about 3 inches by 3 inches, redish, purplish with an open center..Is the treatment usually topically? I am just dreading if i have to start prednisone for this thing which is what I have also read... So Curley I am feeling for you.. You have really been through the ringer with this. So when you get a new area do you go see your GI? I have been stable for over a year with Imuran. Does this mean that I am not doing as well as I feel if this is maifesting into these ulcers.. Take Care everyone and appreciate all the feedback.. Amber

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/21/2007 3:37 PM (GMT -7)   
As I posted some are pretty graphic so ........


i141.photobucket.com/albums/r64/Howlyncat/000_0323.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics066.jpg
i141.photobucket.com/albums/r64/Howlyncat/MomsPics063.jpg
i141.photobucket.com/albums/r64/Howlyncat/000_0325.jpg
i141.photobucket.com/albums/r64/Howlyncat/MomsPics057.jpg
i141.photobucket.com/albums/r64/Howlyncat/MomsPics050.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics024.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics017.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics046.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics049.jpg

i141.photobucket.com/albums/r64/Howlyncat/MomsPics060.jpg

I have a severe case OF pg as does Curley and I do hope you do not ..............

I HAVE had Dermy's refuse to treat me in Ontario due to fear of lawsuits ect........
Will be going into a med journal with my doc and I with what I have gone thru.

My family Doc has been the only ONE to stand beside me in this and make sure I am not in any pain .............like I did say I had biopsy's and I was told first it was
lichen Planus and so many other DD til I saw the one Top dermy in London,ontario who said it came out of being dormant after I had botched Hysterectomy.............
 
THE ppl and this site have helped me with every outbreak I have had ..........
 
I get them on legs fingers arms and now neck and have had 2 on face.........never on trunck of my body ......so far.........


    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  

Post Edited (Howlyncat) : 9/21/2007 4:49:24 PM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/21/2007 3:44 PM (GMT -7)   
I forgot how to make links lol sorry so if one of fellow Mods could I would appreciate it .........

I have one on finger now as well as Brochitis so I am caught between a rock and a hard place
Supposed to be on one antibiotic for the Broch .......and the other one Rochephin for the PG .....Cannot take both and yes I do take steroids as well ........Prednisone.....IMHO definitely helps them........

Hope this helps

LYN

Thanks Curley I knew you have it but didnt want to say tilll you offered info yourself ya know ......

Luvs
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/22/2007 5:44 AM (GMT -7)   
Went back to page 87 on a/p forum for theses PICS..............Hope they help .....paintedsongs..........
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  


tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 9/23/2007 8:44 PM (GMT -7)   

see my post under crohn's w/o medication posted earlier tonight.

i have horrible skin rash from remicade.


trying4hope
New Member


Date Joined Oct 2007
Total Posts : 19
   Posted 10/3/2007 1:24 PM (GMT -7)   
all this new to me don't know how to navigate. have pyoderma gangrenosum-just got diagnosed w2nd case on edge of pg wound 2 years old & still healing. everything done wrong first time-dx spider bite and sent to wound center-cut every week for over 2 months. finally got pg dx--very slow healing and now this. anxiety thru roof now becuz of what i went thru b4.. feel like i'm falling thru cracks of med sys hp 2 find help & encouragement here.. any way to stop the mvmt of emoticans-? hv CFS,FM, and sarcoidosis too. thks
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