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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/21/2007 8:11 PM (GMT -7)   
Hi all,
 
I got my humira today for the 1st time, I hope it gives me relief soon.  I went out to eat with my hubby tonight and stayed clear of the salad bar etc.  I am in so much pain now though from eating.  I have had D 3 times since getting home, I took a dilaudid before dinner and I felt okay unilt after my first BM after eating.  I just had to change the dressing onmy fistula again too, you could see that the gauze covering the saline one that is partly inside was even turning brown already.  I changed that a cpl hours ago.  It wasnt extremely full of poo and pus but enough to make me change it.  I took an Oxycontin 20 mg and hope it actually stays in me rather than coming out whole in my D like it has done before.  I dont see my surgeon again til thursday and start work monday.  I think one of my problems is I tend to overeat at supper compared to other meals/snacks.  I really dont "overeat" but it seems more than I can handle without severe pain.  I was up til 3am lastnight in pain too.  I think I am going to take an ambien and hope for the best between that and my trusty heating pad.  I'll probably sleep with it on low tonight since I feel so awful.
 
Sorry just had to vent and complain
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/22/2007 2:09 AM (GMT -7)   
Sorry to here your not feeling well. It sounds like you probable over ate. I have done that in the
past. My recomandation is eat small meals. This should help.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/22/2007 2:23 AM (GMT -7)   
That is my plan, unfortunatly I wont take home fish and chips for leftovers. Today we are going to my folks for lobster, crab, potatoes, and clams. I love living in RI, you can buy Maine lobsters right off the lobster boats
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 9/22/2007 3:45 AM (GMT -7)   
Sounds like a lot of eating going on. Be careful.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/22/2007 6:46 AM (GMT -7)   
I agree hun
If you are already feeling like Crud I would kinda just slow up on eating and just have small good meals you know your body will take ........

** my understanding is that the coating on the Oxycontin will pass thru not the whole pill ........

I might be wrong and I dont mind being corrected .......learn what ya can is my motto


I have Bronchitis and on Tetracycline for that and now a couple of new sores so I cannot take another antibiotic for them ........so a suffering I go lol.........got the B from a lil nephew ......nope they DONT get it about my immune system or lack therof

Hope you feel better

Luvs
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/22/2007 6:50 AM (GMT -7)   
I know that about the Oxycontin, however it was proven when the whole pill passed in my ostomy bag with the writing on the pill still legible. I also informed him that it passed in my B< after my reversal too. When I am having more D it tends to pass in my stool not long after I take it. I plan on a little of each type of the seafood today not a bunch of each. I rather take some home and have leftovers than be in severe pain
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 9/22/2007 7:33 AM (GMT -7)   
See I learnt something today ....THANKS ..........

Yeppers better to have the leftovers than the pain IMHO

Take care

Luvs
LYN
    Contribute today to support Healing Well Forums...Donate @
 
Moderator for Anxiety /Panic
Moderator for Alzheimer's
Co Moderator for Crohns Disease 
 
 DX with Crohns, Pyoderma Gangrenosum,Anxiety /Panic
 
  
          Be Thankful for the Difficult times..During those times we GROW
 
                 EMPATHY is Always Better than APATHY
 
                 " Friends Are Cheaper Than Therapists "
 
  
                                  


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/22/2007 4:19 PM (GMT -7)   
Hi Supper sounds nice I cain't tolerate seafood only fish. If it were me having enough pain to be on meds for pain (oxycotin) I would be on a soft food low roughage. Sounds like the Hum. might be helping the fist.hope so and hope you have a good evening. lol gail

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/22/2007 5:03 PM (GMT -7)   
I agree about the eating,h***right now I can only eat grapes belive it or not it is the only thing I can keep down.Let us know how you are doing and I am interested my self as for the pain pill.Take care and hope you feel better soon.
Curley
.........
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/22/2007 6:05 PM (GMT -7)   
Well I didnt eat too much but I am in pain. My papa was supposed to join us at dinner (he is my late nana's hubby). Both he and my dad put in a new cement step at my papa's house this am, we went to the Apple festival as planned and walked around looking at the crafts etc. Not long after getting home while waiting for the water to boil for the lobsters, my papa started feeling ...well not great. To both my mom and I he didnt look great. We figure it may be because this was the first time we gathered at my parents house for dinner since my nana's passing almost 1 month ago. Well while in the midst of eating our lobsters the phone rang and he was concerned since he was still having pain in his chest, at the house he said it was from the lemonade...which it could be indegestion. My aunt and uncle who live around the corner went over to his house and called the rescue. My parents felt bad but they left us at their house to continue eating and clean up.

They are keeping my papa overnight to monitor him. He has had high blood pressure for a while and been on meds, his BP when taken was 190/100 (those arent exact #s but they were in that range). It has gone down to 150(something)/100(something). He got a bit sick to his stomach from the nitro glycerin that they gave him in the rescue in case it was a heart attack. The pain is no longer traveling to his back. A cpl weeks ago he was complaining of burning while urinating and he is one who prides himself on only urinating a few times a day....we keep telling him to drink more and that he should be going more often. I dont know if those symptoms cleared up or if he is still having them.

Please pray that he is going to be okay, I dont think I can take him passing or becoming really ill at this point so soon after my nana. We are moving in with him in a month and have the moving company date for Oct 28
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


EruditePaul
Regular Member


Date Joined Jan 2006
Total Posts : 266
   Posted 9/22/2007 6:12 PM (GMT -7)   
I can eat most seafood including lobster without any problems.  But I can't eat salad, or high fat food. 
 
I like RI for its nice and free state parks.

Diagnosed with CD in 1994;

Currently being treated with TCM.

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