Loss but alot of GAIN

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miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/22/2007 7:21 AM (GMT -7)   
I want to thank all of you for the prayers while I was having the mastectomy on Friday.
I had my left breast removed on Friday...everything went great, the lymph nodes came back clean...thanks to all the prayers.... Although.I more then likely will be having Chemo, but no radiation.
I came home on Saturday, and that evening a knock at my door to  notify me that my dad  passed away in Alabama, I had to drive from chicago to alabama on Sunday to release his body.
Believe it or not, the Crohns is so far very under control.
Between Saturday and Sunday a lady had stolen all of my fathers bank accounts jewlery etc., I now have an attorney in Alabama helping with the criminal chargers, his estate, and my sanity.
 
I have come back from Alabama a changed person, it all has been a life changing time.
Life is so short to deal with un wanted drama.
 
Remember this IT is so important,,EVERYDAY TELL YOUR LOVE ONEs YOU LOVE THEM>
If you are distant with someone you care about, Eliminate the distance.
I had not spoke with my dad in almost a year, for one reason or another, but when I picked up his personal belongings from the hopital, I opened his wallet and my picture was right there, everyday when he opened his wallet he thought of me!!!!!!!!!!!!!! I am so thankful for that, It made me realize how much he did love me although he hardly ever spoke those words.
I have lost alot this week, my breast, my father BUT.....I have also gained alot, A new ME....a New understanding of life but most of all, a new understanding of my love for my family and my dearest friends...INCLUDING all of you!
 
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/22/2007 7:45 AM (GMT -7)   
I am so sorry about your father. I also am glad that your Sx went well and hope that you have the same results with the other side. I also hope that they catch and place that woman, that stole his things, in jail what a horrible thing to do
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


immunosci
Regular Member


Date Joined Jun 2006
Total Posts : 326
   Posted 9/22/2007 7:52 AM (GMT -7)   
It's a relief to hear that your surgery went well. Let's hope that the chemo as smoothly as it can. I'm sorry to hear about your father. I know how difficult it is to lose a parent, particularly when you don't live nearby. It's terrible that this woman stole your father's things! I'm continually amazed at what horrible things people will do when given an opportunity. I can't imagine going through all that you are right now. My thoughts and prayers are with you. Good luck with getting your father's things back. Keep us posted on what happens!

Hugs,
Jen
-Formal diagnosis of Crohn's Disease in ileum in July 2005.
-Experienced what were most likely flares for 12-15 yrs.
-6-MP, protonix, cymbalta, wellbutrin, trazadone, miralax, allegra, celebrex


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/22/2007 8:01 AM (GMT -7)   
What a traumatic week it's been for you. I admire your courage in the face of everything you've been through. I don't think I would be as stoic, I think I would be angry at the world.

I hope your chemo is smooth sailing and that you will stay in remission forever.

I also hope the person who stole from your father gets what is coming to her (there's that anger, I'll be angry enough for both of us, lol).
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/22/2007 8:01 AM (GMT -7)   
Wow! is about all that I can think of to say. Your post touched me so much. I would like to praise you for your courage and
fortitude, not only dealing with your surgery, but the sudden loss of your father. I live away from my oldest son, and 3 of my
siblings, so your words meant a lot to me. I shall be mailing my son this morning. Like you say, just to say I love you.
Bless you and I hope they find the culprit, who stole your Dad's possessions.
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/22/2007 8:03 AM (GMT -7)   
Wow, I can't believe you were able to drive that far right after surgery. I'm so glad that you have found peace and are keeping such a positive outlook. You will still be in my prayers.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/22/2007 3:56 PM (GMT -7)   
Hi Glad your surgery is done and hope you are on the mend it is wonderful your nodes are good that certainly makes a big difference. Hope in time your lost will become less painfull .Best Wishes and continued good health glad the CD is not giving you problems now. lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/22/2007 6:57 PM (GMT -7)   

You truly are a miracle.  I want to tell you that I think you are the most amazing person in the world.  While the world is throwing constant curveballs at you, you continue to be a inspiration to us all.  My sincerest condolences on the loss of your father.  I am glad your surgery turned out well and will continue to pray that your chemo goes as well.  I wish there was something more I could do for you, but what I can do, is to do as you ask and let all those I love know how important they are to me.  May God fill you with his peace and grace and mercy.

God Bless,

Gail *Nanners*


Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/23/2007 1:15 PM (GMT -7)   
I feel very fortunate. THis cancer scare is a whole lot better then it could have been,i have met somewonerful people helping me through my illnesses, and with my father. the lady cashed a forged check the day my dad died....but such good will come from so much evil.

have any of you heard of holy tea
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 


Nana CC
Regular Member


Date Joined May 2007
Total Posts : 121
   Posted 9/23/2007 4:55 PM (GMT -7)   
I am so so sorry for your loss. As others have said you are an inspiration to us all. May you find the things you need at this time to sustain you and if there is anything we can do please don't hesitate to ask. Hopefully the chemo will go gently on you, you deserve it.
Diagnosed 4/07 with Crohn's after hospital stay. Meds: Asacol, Librax, Azathioprine, Prednisone, Prozac, Buspar, and Xanax and percocet PRN.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 9/23/2007 6:28 PM (GMT -7)   
Miracles, I hope that from this point on, your good news far outweighs your bad news. What a week you've had! I'm glad your surgery went well. I'm very sorry for your loss. I think you have a few more chapters for your book. I know it will have a happy ending! Take care.
CD dx'd Aug 05. Initially on Pentasa, now on Imuran 125 mg and iron.


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/24/2007 12:20 PM (GMT -7)   
Thanks to all of you!!!!!!!!!
I have found so much compassion and so many that care, If I thought of life the way I have seen it through the death of my dad & athe evil I have seen, I would not have the energy to fight. But instead I choose to see all of the good in life...People like all of you, the idea that the cancer has not spread ( what a relief itself) is truly a miracle, for in my mind I knew that it had.
The friends I have near me to just be there for anything I need, even if it is just to talk.
I am very fortunate that I have not let any of the bad in my life right now make me bitter.
I said to a good friend the other day.." I must be the most un-lucky person in the world" He looked at me as if I had 3 heads and said "You are the luckiest person I have ever met" When I sat back and thought about everything, he was so right..
I am so lucky! SO Blessed! And although I may be walking through one passage of hell right now, it will make me a better person once I have been there and made it through.
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 


tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 9/24/2007 5:03 PM (GMT -7)   
You are so courageous.  You made me stop feeling sorry for myself as I read your story.  I am praying for you.  My sympathy on your loss.  With all of the surgeries and medical problems you've endured over the years, I know that you have God's Grace.  So continued blessings is headed your way and I'm sure you'll be able to handle your dad's business even though the lady tried to handle it her err way.  God bless you and continued healing to you.
Toni
30 years CD; asacol; remicade; imuran; folic acid; vicadin; proctofoam, etc. als.

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/25/2007 6:18 AM (GMT -7)   
I feel God's grace everyday.
SOmetimes, I think He gets tierd of hearing me beg. For a long time I pleadd and begged GOD, ESP., WHEN IT CAME TO MY SON, Ihad quit praying and was litrally begging Him, but HE answered my prayers so many times.

Other then my son the Crohns has been my biggest cross to carry, It is a horrible thing to carry around everyday, it impacts evrything we do, believe me, I am not as couragious as I may seem, I too have my pity party days, But I believe we have to have those somedays, in order to get through the next day.

I went to the doctor yest, she took off the badages my chest IT looks like I got shot with a .44, it is so amazing what the medical profession can do. I am looking forard to the reconstruction, I told the plastic surgeon I do not want Jenna Jameson boobs but J-los would be nice lololololol
I have surgery on the 10th to get them, at first I wasn't going to, I am glad I choose to have reconstruction now, I would hate to loo at this everyday, it would only remind me of the cancer, when I think the new (girls) will remind me of survival!!!!!!
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life.
 
 
 
 
 


tlw
Regular Member


Date Joined Nov 2006
Total Posts : 87
   Posted 9/25/2007 8:02 AM (GMT -7)   
I can relate to the pity parties. I have had my share. As a single mom to a 14 year old son, it is hard. I try not to make him suffer by my illness. I stay home a lot and still feel obligated to chaperone him and his friends when necessary. Last month, I had a very bad experience. Was taking him and his friend to an event and it was very hot outside. I felt an accident about to happen and stopped immediately to go to a public restroom. It was too late. I had pooped in my pants. By the time I tried to clean up as much as I could and returned to the car, I was gassy too. I rolled down all of the windows in the car and hurried back home. The kids didn't say any-thing. My son is used to my smelly outbursts but his friend isn't. I'm hoping he thought my son had a bad fart. lol. When I was at church sunday, I had to run out immediately because I felt an accident coming. Some of the members know about my disorder so when they see me run out like I did, they usually know why. One of them called me later that day to see if I was ok. She said she figured I was having a 'bad moment'. I'm glad medically everything is working out for you but after 30 years of dealing with this disease and it's at it's worse now, I am losing my confidence in medicine. I'm just discouraged.

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/25/2007 8:34 AM (GMT -7)   
I am so sorry you are going through such a difficult time.
I understand so well, your obligation to your son.

My son was about 14 too when I was first dx'd with Crohns....then right after that the thyroid cancer, it was difficult.
He would come home from school and I was always on the couch, I felt so much guilt for so long that I missed the games, dances etc., I even blamed myself for his action when he choose to do bad things..... It took along time for me to forgive myself, or rather, not to blame myself.

For while I was on the couch trying to recover, he was getting in trouble....But now I know better, I do not blame myelf anymore...If anything me having cancer and this terrible disease should have made him do better...NOW days he is a better person becasue of it...He has empathy and is a good person .....for that I am so thankful.
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life.
 
 
 
 
 


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/26/2007 6:17 AM (GMT -7)   
TLW...what I am trying to say is that, I believe that your illness will make our son a better person, He will be able to be
a more caring person, for he has seen his own mother suffer with this disease, he will have sympathy and empathy for those less fortunate....H will be fine, and one day you both will look back and have alot to laugh about athough it oesnt seem that way now.

He will be fine.....all becasue of you!
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life.
 
 
 
 
 

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