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angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/23/2007 8:33 AM (GMT -7)   
sad  oh how i love crohns disease il have to think of some lyrics i could write a song!!!!felt fine yesterday had even packed to go down to my partners this morning when i woke up i felt like hellagain!!!!!!!!!! so whats new its as though my bodys telepathic im not mean to have a life.
body feels as though ive done 12 rounds with tyson im 99% sure ive got a chest infection now after just recovering from swollen glands now and i cant stay off the loo think ill have to decorate bathroom again maybe turn it into a second bedroom since im always in there might even install a tv.
8is it just me or do we all live in our pjs i could open up a pj store (HAHA)
Last year my partner had booked a holiday to dubai for my 40th birthday well surprise surprise i had h date with the emergency ward instead i was devastated this was a holiday of a lifetime so now we dont book anymore holidays im jinxed its as though my bodys aware when im wanting to enjoy myself does this ever happen to anyone else surely it cant just be me.
 
guess im just having another duvet day hmmmmmmm every day for the past 2 months have been duvet days sad im dont think us chronnies are mean to have a life ok done complaining tired just tired talking to myself as i live alone i hope everyone is well.guess ive got the blues

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/23/2007 10:08 AM (GMT -7)   
Hi angelang Sorry to here your not feeling well. Yes we all have our up's and down days. You are never alone
we are always here for support. I hope you feel better soon.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/23/2007 10:11 AM (GMT -7)   
you poor thing, it is terrible to not be able to do something you look forward to. I hope you feel better and can do somthing fun soon!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/23/2007 10:28 AM (GMT -7)   
ty teddy yoga guess there are some days when i feel i could jump of the nearest bridge lol and todays one of them.im not normally like this just that i always seem to be apart from my partner these days this has got to be one of the worst years ever more apart than what we are together sometimes i think whats the point of me being in a relationship how he tolerates me ill never know lol 4 years and counting witnout him id fall apart literally.im glad i found this website it truly does lift your mood and at the end of the day we are all in the same boat with this disease we all need someone to talk to about our problems its ok tlaking to other people but ive found they dont really understand.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/24/2007 5:41 AM (GMT -7)   
Hi Know the feeling of sitting and sitting. What about your meds what are you on and why aren't they helping? We all need lap tops at least it would give us something to do but I am worried as to what kind of post we would be reading(smile) .Why doesn't that man of yours travel up to see you or are you better off when alone on those days? Wow that trip sounded nice maybe pred' would hold you when going away for a bit but then there would be the weaning.If you feel you don't have a life maybe your meds aren't working enough.lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/24/2007 11:23 AM (GMT -7)   
I feel like I can't make any kind of plans anymore. I will be feeling better than I have in a longtime, then make plans, and I get sicker than a dog. Never fails. So nope, your not alone.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/24/2007 12:25 PM (GMT -7)   
hi gail the meds are working dont get me wrong its just that my immune systems always low and im prone to everything thats going around now .he does not travel up to be with me simply because i tell him not to because when im ill i just want to die peacefully i cant be bothered with anyone.
i was on pred for well over a year 20mg i only started weaning myself off last year before i began the methotrexate injections my meds do work if they were not working i would of been in hospital long before nowthe last time i was admitted was november 06 but i agree you cant plan ahead my cousins got fibromyalgia as well i symthise having both ive little reason to complain take care

curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/24/2007 1:02 PM (GMT -7)   
I am sorry that you are not feeling well.I wished that there was something I could do to make you feel better.

<<<<<<<<<<<<<<<<<<<<HUG>>>>>>>>>>>>>>>>>>>>>>>>>

I hope a hug will help.As to thye bathroom and PJ's yes I have seen times that was all I was wearing was PJ's because I never left the house unless I had a doctors appointment.I think that most of us Crohnies at one point or another has thought about putting a TV in the bathroom.
Curley
.........
 


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/24/2007 2:50 PM (GMT -7)   
curley <<<<<<<<<<HUGS>>>>>>>>>>>>>>>>>>>>

Hopefully ill be be able to get back up to the hospital on friday to begin my treatment again got my bloods this week as well my consultants going to have a field day with me in november then again maybe not ive been so stressed out lately with family problems lately thats contributed towards the crohns as well.
But as he says if you catch infections you cant have the methotrexate because of certain anti biotics god helppppppppppppppppppp lol i need a life hopefully ill be on the mend again soon until next time lol.ty for your kind words curely its truly aprreciated puts a smile on my face
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