crohns for 35 years?

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daize
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 9/23/2007 5:44 PM (GMT -7)   
confused  I JUST HAD A COLONOSCOPY DONE ON THE 21ST. THE DR THAT PERFORMED IT TOLD ME I HAD CROHNS.  I HAVE LOOKED AT OTHER WEBSITES AND RECONIZED ALMOST ALL THE SYMPTOMS THAT GO WITH THIS DISEASE. I JUST NEVER HAD ANY OF THEM AT THE SAME TIME AND THE SEVERITY VARIED. I CAN REMEMBER SOMETHINGS FROM AROUND THE AGE 10 OR 11(SKIN TAG, ANEMIA,BEING THE ONLY SKINY PERSON IN MY FAMILY) AND THEN AS A TEENAGER THRU ADULTHOOD. DO YOU THINK IT IS POSSIBLE THAT I COULD HAVE HAD THIS FOR CLOSE TO 35 YEARS AND NOT HAVE SYMPTOMS THAT WERE BAD ENOUGH FOR SOMEONE TO FIGURE IT OUT? I ONLY KNOW ONE OTHER PERSON THAT HAS THIS SO I DONT HAVE ALOT TO GO ON OTHER THAN WHAT THE DRS TELL ME.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/23/2007 5:53 PM (GMT -7)   
Hi and Welcome to HealingWell,
It sounds like you could have a Crohn's for sometime. It some time takes time to diagnosed.
There are a lot of people here. You can ask questions.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13467
   Posted 9/23/2007 7:07 PM (GMT -7)   
After speaking with my gi intially, we figure I have had it a good 20yrs, possibly longer. Keep in mind, this is a disease that can be mild, with very little problems to severe. evens drs in er never gave it a thought, I was always told it was a virus, a bug i picked even the flu. Longesr running bouts you have ever seen.lol


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/24/2007 4:51 AM (GMT -7)   
Hi and Welcome to HW .It is hard to get a DX of CD but it is a good thing to know you have it so a person can get proper care. I had IBS for 27 years and noe CD how long it was CD I don't know but at least I know now .Hope you find this site usefull the people here are very nice and caring. How severe is your CD and what meds are you taking? lol gail

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 9/24/2007 9:00 AM (GMT -7)   
While I've never had confirmation from a doc, I suspect I've had this DD since 11 yrs or so... I'm now 46. I was hospitalized between the 5th & 6th grades with "duodenal ulcers", I bet if they did the testing today they would have DX me then.

IMHO, you could very well have had a milder version since then.
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/24/2007 9:07 AM (GMT -7)   
I wasn't diagnosed until I was 21 years old (it took 2 years of testing and changing doctors). I also was hospitalized with duodenal ulcers at 10 years old. My earlies memories are of running to the toilet and grabbing a pillow on the way to hold against my aching stomach. I also had continuous mouth ulcers as a child.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


daize
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 9/24/2007 3:25 PM (GMT -7)   
WELL THIS IS REALLY BLOWING MY MIND. THE MORE INFO I READ THE MORE I CAN SEE I REALLY HAVE HAD THIS JUST about ALL OF MY LIFE. FORTUNATELY I DONT HAVE THE CONSTANT POOPING CROHNS, (I LEAN TOWARDS CONSTIPATION) BUT I HAVE HAD PEROIDS OF VERY LOOSE BM(WAS TESTED FOR PARASITES,YUCK) TERRIBLE MENSTRUAL PERIODS, HAD A BOWEL RESECTION AT 25 (WAS TOLD IT WAS PID) TERRIBLE ABDOMINAL PAIN (WAS TOLD IT WAS IBS AND DIVERTICULITIS) UNEXPLAINED FEVER. NIGHT SWEATS AND PREMATURE MENOPAUSE. HAD CHRONIC FATIGUE, SEVERE JOINT PAIN(WAS TESTED FOR RA AND LYME) AND SOME OTHER GYNO SYMPTOMS. IN A NUTSHELL(LITTERALY) THEY TOLD ME IT WAS DEPRESSION AND PUT ME ON ANTIDEPRESSANTS. IM SURE AFTER ALL THIS CRAP I NEED TO BE ON THEM BUT I AM SO RELIEVED THAT FINALLY I HAVE A ANSWER TO WHATS BEEN GOING ON. (ALSO TEETERING ON THE FENCE BEING MAD AS HELL I WASNT TESTED SOONER).  I DONT HAVE AN APPOINTMENT WITH THE DR UNTILL OCT 4. IM NOT SURE WHAT KIND OF TREATMENT PLAN HE HAS IN MIND. ANY FEED BACK WILL BE GREATLY APPRICIATED. ONE LAST THING, HOW about DENTAL ISSUES RELATED TO CROHNS? IVE HAD A LIST OF THEM TOO (NO ONE ELSE IN MY FAMILY DID). THANKS!!!!!!

diabeticcrohn
Regular Member


Date Joined Jan 2006
Total Posts : 35
   Posted 9/24/2007 3:38 PM (GMT -7)   
Crohns can affect you in many ways and places, while I haven't personally had dental problems though Crohns I wouldn't rule it out.

DBC

Susanknits
Regular Member


Date Joined Sep 2007
Total Posts : 33
   Posted 9/24/2007 3:45 PM (GMT -7)   
I just joined the forum, and I was diagnosed in December, 2004 after years of being told i had IBS, and suffering with vague symptoms that didn't add up. I was told this past May that I've probably had it for 30 years. I had many of the same emotions you did and I still struggle.

As for the dental issues, I'm on a couple of meds that give me a yucky taste in my mouth. After having had only 2 cavities in my entire life, all of a sudden I'm getting them, and my kid's dentist agreed that anything that makes the mouth dry or causes acid (and if you have reflux) can wear away the enamel. he recommended pronamel toothpaste and a fluoride rinse along with daily flossing.

I was lucky to find a wonderful GI who also knows the top people at Mt. Sinai in NYC, so i know I'm in good hands. i hope you are too.

babybloo
Regular Member


Date Joined Aug 2005
Total Posts : 289
   Posted 9/24/2007 5:37 PM (GMT -7)   
daize,

I am right there with you girl. Not in the Chron's aspect but with the RA I have had for more than 10 years. Diagnosed only this last year. I was told so many things, from fibro-depression-psychogenic-and weight. I had all but given up until the day I could no longer walk. My ortho said something isn't right so I started all over again. Dx as Rheumatoid last year and have been slowing improving ever since.

The IBD isn't yet diagnosed but a hunch from my rheumy after normal BM's while on long term steroids.... It was amazing and had been years.... I want that back, but I don't want the steroids.

Good Luck and glad you finally have an answer. You are NOT crazy. Isn't it nice to hear that for once.

Theresa
dx: Rheumatoid Arthritis.  Duration: 10yrs. Dx'ed 2006.  Asthma, hypertension, hypothyroid
 
Meds: Methotrexate 25mg wkly, Arava 20mg, Rituxan infusion, Folic Acid, Fish Oils, Advil, Advair 250/50, Diovan HCT 160mg/25mg QD, Women's One a Day, tylenol PRN.
 
 


Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 9/29/2007 7:11 PM (GMT -7)   
Daize - I could have written your description of symptoms myself! I was diagnosed CD about a year ago, but I beleive I have had a mild form of it since about 16.

Oh well - except for the skinnny part and the skin tag part. LOL.
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