I'm so sorry that things are so rotten for you right now and I hope that your Docs can helpyou to get things back under control soon. I've used the generic for Levbid, hyoscamine on and off for the cramping that I frequently get. It never really made it go away completely, but it certainly did help the worst of it. Unfortunately, the cramping is about
all it's good for.
I think the test you are asking about
is the fecal calprotectin. That's a measure of a protein associated with inflammation from the stool itself. It can be helpful in determining if there is inflammation in the gut, but it's not at all specific to any particular site. Based on your symptoms and the CRP, it's pretty easy to guess that a calprotectin level would be evalvated too. I beleive that this test can only be done through Great Smoky Labs (or something similar). There is another test which I know can be done through Quest and the like, but the protein that measures is much less stable than calprotectin. I wish I could remember the stupid name of that one! UUUGGGHHH!!!! oh, OK, maybe it's lactoferrin.
I haven't been doing so well lately and so I have to admit that I'm either very confused, or hopelessly behind. I thought that you had been at the max dose of Remicade on the 4 week schedule and that you finally failed it and switched to Humira. Am I wrong? If that's the case, I'm not sure that I can see how going back to Remicade is going to improve anything.
Have you not seena Rheumy yet? Maybe I just assumed that with all the problems you'd had with your knees that you had been seeing one. again, I apologize for my brain fog. I have often wondered and I think even asked you, if you had been evaluated for Ankylosing Spondylitis. The mention of possible mixed connective tissue disease makes me wonder that again. Most Spondys suffer terribly with soft tissue problems for many years before the telltale signs of fusion begin to appear. My tendonitis, bursitis, synovitis and sclerosis predated my Dx by 25+ years. Has anyone tested you for HLA-B27? It's just one more blood test while they're at it and that may help to pinpoint what's really going on. Just a thought.
You've been through so much over the years. I really hope that you catch a break and get some good relief soon. (((hugs)))
Keah a.k.a. Wormy
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