Crohn's and constipation

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shelbyjo70
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Date Joined Sep 2007
Total Posts : 6
   Posted 9/23/2007 8:17 PM (GMT -7)   
Is it TOTALLY unheard of for a Crohn's person to literally NEVER have diarrhea?  I am constipated all the time, and was diagnosed with Crohn's 12 days ago and I can't find much info on this... it all seems to be about diarrhea, which is obviously the more common affliction.... help??

edwina77
New Member


Date Joined Sep 2007
Total Posts : 15
   Posted 9/23/2007 9:11 PM (GMT -7)   
I don't think it's unheard of just rare. I bounce back and force between them.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/23/2007 9:15 PM (GMT -7)   
I have never had D...ever. and welcome!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 9/23/2007 11:57 PM (GMT -7)   
Welcome to Healing Well.
I've had both. When first diagnosed with CD 30 odd years ago I suffered mostly with D......somewhere along the line that changed....for the last 10 years at least it has mostly been C. When I have a really bad flare it starts out as C and changes to D as it progresses. Everyon is different. CD has many , many facets and symptoms to it.
Come visit us often, I'm sure you will find many answers to your questions from people who truly understand.
Mary
50 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.
 
 


Adria132004
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 9/25/2007 7:19 AM (GMT -7)   
I'm very, very curious to learn what symptoms you presented with in the absence of diarrhea that made your doctor's suspect Crohn's. I, too, have always tended toward constipation. I went to the surgeon for what I thought was hemorrhoids, but it turns out that it was several fissures with skin tags that make my surgeon strongly suspect Crohn's because of their appearance and location. I also had a very frustrating period of constant mouth ulcers a few years ago that lasted several months. Biopsy result from one of the fissures showed small granulomas and says IBD is a possibility. I was shocked since, like you, I've never had issues with diarrhea. I do not have a confirmed diagnosis yet, but I've been researching like crazy and can find very little about Crohn's with constipation. I desperately want to hear more from others with this particular symptom!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/25/2007 7:22 AM (GMT -7)   
When I was first diagnosed I had diarrhea, but after the first flare it was always C instead. That is until my first resection. Now its back to D.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Honeybun
Regular Member


Date Joined Aug 2007
Total Posts : 28
   Posted 9/25/2007 7:23 AM (GMT -7)   
I have Crohn's with constipation. Start eating lots of brown rice and veggies! It will really help you out.

KitKatBaker
Veteran Member


Date Joined Feb 2005
Total Posts : 1146
   Posted 9/26/2007 3:28 AM (GMT -7)   
I am usually constipated, but I also have periods of D in between.  I never had D in my life until my first big flare that led to my dx. 
Katina
Co-Moderator Crohn's Disease Forum
Co-Moderator Ulcerative Colitis Forum
 
Asacol 6/day, Prevacid 2/day, Acidophilus Complex Probiotics, Green Tea Extract, Flax Oil
 
Help support Healingwell!!!
 


shelbyjo70
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/26/2007 4:31 AM (GMT -7)   

Wow... I am overwhelmed and grateful for the many responses to my question.  Anyone ever feel like a freak of nature??? I bought a really wonderful book last night and it is going to be a big help to me.  I don't have time to go into all that I would like to say right now, because I have to get my fanny to work.  Twenty-one little first graders will be bouncing into my classroom in 45 minutes, and I need to beat them getting there!  (lol)  I am excited to have found this forum.  Thank you for jumping in to respond quickly.  I hope you all have a great day... please look for more posts from me.  I need ya'll!!  (Hey, you could be my "Crohnies"...) Ha!!


shelbyjo70
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/26/2007 4:32 AM (GMT -7)   
What is "dx"? It's looking like I am about to become bi-lingual! :)

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/26/2007 4:50 AM (GMT -7)   
I have experienced both D and contipation throughout my 4 years of being diagnosed with this fun disease.  My doctor actually told me that having both is a really indicator of crohns rather than colitis because it shows that you most likely have inflammation in the small intestine.  There are many medications that we take than help with the D, but very few that are prescribed for the constipation.  I have found that miralax had been the most gentle and effective medication when I am going through a period of contipation rather than D.  Diet is also something that has really help me relieve some of the pain.  Many people try the route of major laxatives, but for me personally it causes more trouble and pain than the miralax.  Of course, if you are really backed up do not hesitate to call your doctor, because that last thing that you want is a blockage that ruptures.

bad-bell
New Member


Date Joined Sep 2007
Total Posts : 16
   Posted 9/26/2007 5:23 AM (GMT -7)   
Thanks for posting this question. I, too, have just been dx with Chron's and was a bit confused given that everything I read refers to D when I'm lucky if I hit the bathroom once a week. I have often used diet, like extra extra raisin bran each morning, to help me out. But, I had my initial conversation with the Dr. by phone (my first appt with him is in a couple of weeks) and he suggested that a low fiber diet was best for Chron's. Now I'm thinking....I'll be backed up for a month! Hopefully, my appt with him will result in suggestions on making things better. Again, thanks for posting this!

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 9/26/2007 6:07 AM (GMT -7)   
First, "dx" means diagnosis/diagnosed. Second, BE CAREFUL WITH THE FIBER. Too much of the wrong kind can make a bad situation worse. Personally, I find that if I go a couple of days without a bowl of oatmeal, my C returns. If I have a bowl everyday, I have a movement everyday. (I hated oatmeal at first, now I've come to enjoy/almost crave it.)

I, too, am a constipated crohnie. It was because of my family history of colon cancer and finding blood in the toilet that I had my first colonoscopy. I had been having some abdonimal pain, but thought it was from poor eating. I was dx'ed from the results of the scope, but the guy was a horrible dr. So I found a good one and he started asking me all these questions: Do you have X? Have you had Y? It turned out all these little things that I thought were unrelated were all part of CD. (joint pain, ab pain, mouth ulcers, etc).

You're doing the right thing looking for answers. I put my head in the sand for about a year. All it did was make things more difficult on my body.

peggy619
New Member


Date Joined Jul 2007
Total Posts : 5
   Posted 9/26/2007 9:22 AM (GMT -7)   
I too, have always been constipated.  I was diagnosed after a colonoscopy with UC and then "upgraded" to Crohns after the biopsies.  It is very hard to find out info when you're constipated since D is so prevalent with this disease.  I even doubted the DX until my perianal abscess/fistula  brought me back to reality!   I've been maintaining the low fibre diet, but now have been slowly increasing the fibre, to see if that would help.  I also stay away from raw veggies and fruits for now.  The diet was a rude awakening for someone like me, who diets as a career--no more salads or fresh fruit :(  Sometimes if its really uncomfortable, I take miralax or Milk of magnesia.  Hope you're feeling better soon!!  Healing well and all the "Crohnies" here have been invaluable to me and will be to you too!  

shelbyjo70
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/26/2007 3:14 PM (GMT -7)   
I can't tell you guys how helpful it is to me to learn that I am not alone with the C. I was seriously doubtful that I had even been properly diagnosed because of the lack of info on the subject of C. The book I bought last night, called Crohn's Disease and Ulcerative Colitis, an Essential Guide for the Newly Diagnosed is really helpful. I am learning a lot. The author is a Crohn's patient named Jill Sklar. You should check it out if you are like me and you feel a little clueless.

I have to say, I have been surprised at how little information I have been given by my doctor. He has literally only told me the diagnosis (while I was still "drunk" with anesthesia after my oscopies,) and prescribed medication. My next appt. isn't until Oct. 11, so it's a long time to feel as though you are in the dark.

I feel like I finally have a diagnosis for ALL the health problems I have had for so long. It AMAZES me to learn of things it can cause... like eye swelling! Okay- I took allergy SHOTS for that, and when that didn't work, I was prescribed MIGRAINE medicine for "cluster migraines." The skin problems! HELLO - I am the only person I know who has EVER returned a Proativ Kit. I don't know of anyone else it hasn't worked for. Now, I learn that THIS is very likely Crohn's related. The sores in my mouth--- I have described it as feeling like my taste buds are swollen. I know that sound goofy, but it is the best way to describe it for me.

It is SO NICE to have a place where we can share things that we don't want to talk about, but need to. Thanks for being part of this. There have been so many more things that I feel like I understand now. I feel like I could write a BOOK right now about it all, but gee--- I don't want to put anybody off. I hope everyone has a good evening. I'll be checking back in later.

Mar1anneC
Regular Member


Date Joined Aug 2007
Total Posts : 79
   Posted 9/29/2007 4:41 PM (GMT -7)   
I go back and forth between C and D.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/1/2007 10:53 PM (GMT -7)   
My daughter never had D. Used to have C, but it went away when she started eating homemade yogurt, ate more fruits and vegies, and tried the SCD diet.

justarose4him
Veteran Member


Date Joined Feb 2004
Total Posts : 730
   Posted 10/2/2007 10:28 AM (GMT -7)   
I sound alot like Marie-Claire... dx over 25 years ago with chronic D for YEARS .... only the last 3 years or so that it had been some serious C - but thankfully after some tourtous time I am back the the C for a few days , then some D for a shot here or there...I will take it however it comes : -)

But, I have found that IF i stick to having an activa yogurt every day it really has helped.... i use the light kind ...not that it helps my weight , but i try ...

hope you find help : )
Dx with Crohns 23 years ago
1 surgery ; 15 years ago ... 
Cervical DDD and restless leg syndrome
Currently on ;  Requip ,  Diovan ( for high bp )
 


clickchick
New Member


Date Joined Aug 2007
Total Posts : 9
   Posted 10/2/2007 1:34 PM (GMT -7)   
I also have Crohn's with C and I never have D. So yes, it can feel very confusing when everyone else gauges their wellness by whether or not they are having D all the time. I have learned that if I drink tons of water, take fiber twice a day, and take 2 stool softeners every day I can keep from getting bad, since that will flare up my anal fissures, which is a bad thing! I just try to be grateful that I'm not having to deal with the D since I know how awful that can be for your quality of life.

Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 10/2/2007 1:53 PM (GMT -7)   
I usually have C for some weeks and then D for some days, then C again. Some years ago I had watery D every morning and maybe 5 - 6 more times a day, then it stopped and I had C for half a year. Now its more often C and D. Shorter episodes.

I have red that it's more likely to have D when Crohns is in the colon and the terminal ileum. Further up, f.i. in the jejunum it's more often C. Some of us we have inflamated patches on different places in the small intestines.
Ingrid
 
Diagnosed CD June 2007. Have been on a minor prednisone medication. Did make a difference while max dosed. Got my problems back when tapering.
 
Using Low Dose Naltrexone from sept. 2007. See yahoo.com. A member in the group "lowdosenaltrexone" at yahoo.
 
Use home made scd yoghurt containing a lot of probiotics - a benefit for the intestines. Don't use white sugar. No yeast in homemade breads.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 10/2/2007 3:40 PM (GMT -7)   

Hmmm...my daughter has Crohn's only in the terminal ileum, but no D.

Am interested in finding out more about why only a minority has C rather than D, but haven't been able to find related research. 


Daughter (19) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. In remission with Entocort 3 mg (one pill), SCD multivitamin, homemade yogurt, vit D3 800IU, 900+ mg calcium, B complex vit, 25 mg iron. Now on modified SCD (added rice and potatoes).  
 


Ohana
Regular Member


Date Joined Aug 2007
Total Posts : 89
   Posted 10/2/2007 3:47 PM (GMT -7)   

My problem had always been D a couple times a week and now since I have been Dx'd I've been getting C. Not sure if it's cuz I cut back on fiber (and eating in general) or what. But now my problem with the C is I seem to get so backed up that it effects my breathing. I have asthma and when I'm really backed up, I have a hard time catching a full breath. I've also had a lump in my throat at times. I'm not sure that my doc fully believes me but we're trying to deal with it. I just bought some Metamucil and some stool softeners.

Oh, and some days I'll have C with D right behind it waiting. That's the worst pain when the C has to come out before the D can. I can't believe I'm talking about this!!


Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)


Mitchy
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 10/3/2007 9:30 AM (GMT -7)   
I have also had periods of C and thought it just me, also have D, but not as ofter as C. It's finally great to see that others have had this problem. (you know what I mean!!!).

malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/4/2007 5:15 PM (GMT -7)   
Thanks for posting shelbyjo70. yep I too have more C than D. For me it's like the calm before the storm. I'll not go for a week and then go and go and go for a day or so and then go back to not going.

It's really frustrating but it makes me feel a bit better that others are like us.

Take Care
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds Asacol 3x day


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 10/4/2007 5:44 PM (GMT -7)   
When I had my "flare" it was all D, but now it's both and mostly C. Very frustrating! Still on low-fiber diet, so that's not helping...My GI seems most "interested" in the D. Not as many solutions for the C I guess.
44 years old, newly diagnosed after an 8-day hospitalization in September 2007 but symptoms for several years before that.
Taking Pentasa, Prednisone (tapering), Cipro, Prilosec, probiotics, calcium and a multi-vitamin -- also Levoxyl for hypothyroid (Dx 2004)
Gall bladder surgery in 1997.
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!

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