Changing symptoms and increase in pain/nausea, anyone else's symtoms seem to be 'evolving'?

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Veteran Member

Date Joined Sep 2005
Total Posts : 769
   Posted 9/24/2007 6:09 AM (GMT -6)   

Hi guys,


I was just wondering if anyone else has noticed a definite ‘change’ in their symptoms since diagnosis. When I was first diagnosed 2 years ago, my symptoms were severe and constant watery diahorrea, weight loss, dehydration and occasional night sweats. Luckily, I didn’t experience much pain, the pain I did experience happened before my bowels worked. I would get a feeling of intense nausea and then have to run to the loo.


Now, two years on, my symptoms are very changed. The diahorrea is less in quantity, but I get regular pus and sometimes blood. But the main change is the pain. Whereas I used to have relatively little, now pain is my worst and most dreaded, debilitating symptom. It is a weird feeling, half nausea I'm-going-to-throw-up feeling, which sometimes makes me wish I did throw up to relieve the feeling, and half an intense burning feeling in my stomach, it often hurts even just to touch my tummy on the outside when the pain/nausea is really intense.


This pain/nausea combination is so intense that I find it difficult to talk when it happens and I often feel like I can’t move, if I happen to be in a shopping centre or out in the public somewhere. It is a scary feeling and very painful/nauseating, I just wonder why the symptoms would have changed like that? Has anyone else had this happen to them? Maybe the crohn’s has moved? It’s a mystery to me!


Hope you’re all well!







I hate this disease
New Member

Date Joined Mar 2007
Total Posts : 10
   Posted 9/24/2007 7:08 AM (GMT -6)   


The nausea/pain that you're describing was my first sign of Crohn's. THEN came the dires of the rear, and all the fun that's associated with it. (Though I have to say, my 1/4 mile dash to would probably now break land speed records. LOTS of practice on that one!) Once I got diagnosed and medicated, my body's "flush" button seemed to be deactivated, but the pain is definitely a constant reminder. Sometimes it's on my sides, but that severe stomach pain (definitely not an "ache") and the hit of nausea is probably the most debilitating. Have you tried throwing something like Nexium into your routine? I'm taking it twice a day-- I wonder if the pain is related to stomach acid some way. I know that in my case, all it takes is someone to call my stomach names and my whole system goes into "flush" mode. The stomach pain is definitely a trigger. Amazing how everything's connected, isn't it? (If I drink any alcohol at all, that pain/nausea is my companion for the next 24 hours. --And to think I used to be worried about hangovers! They would be the least of my problems!) Good luck! It seems as soon as we get over one hurdle, another one comes our way!

Regular Member

Date Joined Dec 2005
Total Posts : 259
   Posted 9/24/2007 10:18 AM (GMT -6)   
My flares used to be shorter and simpler with obstructions, 5 days in hospital and would clear up, no problem. Now I get pain and it goes on and on and I can't eat, sleep or function. I end up flat on my back for 10days or more in the hospital with around the clock pain meds, complete bowel rest, iv meds etc. I was told that I have an unsual pattern of Crohns disease recently whatever that means. A nurse told me in the hospital during my latest stay that Crohn's manifests itself in different ways in people. The abdominal pain is the worst for me too. I also take Nexium in the morning and that definitely helps with the nausea.
42 yrs, diagnosed Crohn's 1988, 2 bowel resections, 1 strictureplasty, 1 botched exploratory surgery, 1 emergency surgery for ruptured ulcer, Remicade every 8 wks, Immuran 100 mg, Protonix

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/24/2007 11:37 AM (GMT -6)   
This is a difficult one to answer. Not only are we all different in the way the disease manifests, but I think we all go through
periods of change. Certain things will happen that's never happened before. Me , for instance, started with disease in the
terminal ileum, even had several feet removed, and until recently, I thought that's where it would stay. I kinda knew and
understood the pain and symptoms of that. Now, it's moved to my mouth, stomach and sigmoid colon, giving me new and
difficult symptoms to cope with. All I can say, that's the nature of the beast. Some days it has a mind of it's own, and I guess
none of us will understand it.
I do think that the burning you are feeling could be acid in your tummy, if you are not already on some kind of acid reducer,
I would ask for some. If you already take them, maybe you need to change them. Good luck.

Too many years with CD
Two bowel resections, several obstructions.

Laughter is the brush that sweeps the cobwebs from our hearts

Veteran Member

Date Joined Sep 2005
Total Posts : 769
   Posted 9/24/2007 11:37 PM (GMT -6)   
Thanks for the advice guys, I wonder if Nexium is available in Australia? I haven’t heard of it over here but then again none of my friends or family would need to take it.

Perhaps I should ask the pharmacist for some anti-nausea medication? And the acid reducer sounds like a great idea too! These two ‘helpers’ would really be a blessing if they alleviated the symptoms.
I am working on getting my iron back up to help cope with the extreme fatigue because I find it very debilitating. One thing at a time I suppose. But I have been taking iron supplements for two years and still no change. Very frustrating.

It is comforting in a way to know that I am not alone in this pain/nausea cycle. It is very strange that the disease has changed in this way. My first major flare that landed me in hospital was very different, with less pain, more fever, bed rest, steroids, fluids and meds… this type of Crohn’s I think is more unpredictable and I don’t ‘trust it’ if you know what I mean … because it’s new and foreign to me at the moment. My own body is such a mystery to me!

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 9/25/2007 10:15 AM (GMT -6)   
Heck yes! I used to always have the LRQ pain, sometimes with D & nausea. Also, some rectal bleeding.
Then starting in 1995 the arthritis attacks began, slowly they have become worse, while the periods of classic gut involvement lessen. That is, I get fairly long remissions from intestinal problems, but my systemic probs continue even worse. And of course, the stones started in 2003. Ugghh!

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