I was just wondering if anyone else has noticed a definite ‘change’ in their symptoms since diagnosis. When I was first diagnosed 2 years ago, my symptoms were severe and constant watery diahorrea, weight loss, dehydration and occasional night sweats. Luckily, I didn’t experience much pain, the pain I did experience happened before my bowels worked. I would get a feeling of intense nausea and then have to run to the loo.
Now, two years on, my symptoms are very changed. The diahorrea is less in quantity, but I get regular pus and sometimes blood. But the main change is the pain. Whereas I used to have relatively little, now pain is my worst and most dreaded, debilitating symptom. It is a weird feeling, half nausea I'm-going-to-throw-up feeling, which sometimes makes me wish I did throw up to relieve the feeling, and half an intense burning feeling in my stomach, it often hurts even just to touch my tummy on the outside when the pain/nausea is really intense.
This pain/nausea combination is so intense that I find it difficult to talk when it happens and I often feel like I can’t move, if I happen to be in a shopping centre or out in the public somewhere. It is a scary feeling and very painful/nauseating, I just wonder why the symptoms would have changed like that? Has anyone else had this happen to them? Maybe the crohn’s has moved? It’s a mystery to me!
Hope you’re all well!
The nausea/pain that you're describing was my first sign of Crohn's. THEN came the dires of the rear, and all the fun that's associated with it. (Though I have to say, my 1/4 mile dash to would probably now break land speed records. LOTS of practice on that one!) Once I got diagnosed and medicated, my body's "flush" button seemed to be deactivated, but the pain is definitely a constant reminder. Sometimes it's on my sides, but that severe stomach pain (definitely not an "ache") and the hit of nausea is probably the most debilitating. Have you tried throwing something like Nexium into your routine? I'm taking it twice a day-- I wonder if the pain is related to stomach acid some way. I know that in my case, all it takes is someone to call my stomach names and my whole system goes into "flush" mode. The stomach pain is definitely a trigger. Amazing how everything's connected, isn't it? (If I drink any alcohol at all, that pain/nausea is my companion for the next 24 hours. --And to think I used to be worried about hangovers! They would be the least of my problems!) Good luck! It seems as soon as we get over one hurdle, another one comes our way!