Remicade & Fissures???

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descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/24/2007 8:47 AM (GMT -7)   
Ok, so I am supposed to start my first Remicade infusion tomorrow morning.  I am not nervous just extremely anxious!  I have 2 fissures and I can't take the pain anymore.  Everyday I wake up knowing that I am going to have to go to the bathroom and pass "Razor Blades"! I'm tired!  I will deal with all the stomach cramps and diarreah that you throw at me and I swear I will not complain but this fissure pain has to go away!  People can't live in this kind of agony.  It's been 3 months and I have not had a pain free day.  I am 25 years old and I can't do ANYTHING!  I can't go out to eat because I can't just run in and start screaming in a bathroom if I have to go.  I can't go to anyone's house because I am so uncomfotable that I have to constantly change positions to either sitting or laying down or just walking around in a circle, and lets face it to anyone that does not deal with this disease and fissures will look at me like a nut!  I tried to clean this weekend and I would have to stop every 10 minutes because the pain is too much.  Bending down for me is a killer! .......... Ok now that I got side tracked and vented a little, my original purpose of posting this is to ask those of you who have treated fissures with Remicade, how long did it take to make them go away if they did at all??
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 9/24/2007 10:05 AM (GMT -7)   
when i had my fissure i was on remicade i never got any relief from the remicade but a little surgery did the trick for me .

descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/24/2007 10:16 AM (GMT -7)   
My doctor refuses to perform any surgery where she would have to take away any of my muscle!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


nazeha
Regular Member


Date Joined Aug 2007
Total Posts : 41
   Posted 9/24/2007 10:44 AM (GMT -7)   
i have three fissures. and the pain sucks. mine isn't quite as bad as yours. when i was on my medication (entocort and cipro) the pain down there instantly went away. as soon as i stopped taking them, it came back. that is the only thing that i have had success w/as far as fissures go.
good luck to ya!
Maya
Diagnosed with CD in Jan 07 after going to different doctors for fissures or what I thought were hemmeroids. After getting a colonoscopy they found out I had Crohns. I had no idea what the hell CD was, but once I read up on it, realized I've had mild symptoms since age 12. I'm now 19.
I have mild to moderate CD, and don't have many symptoms other than my 3 fissures, stomach pain after eating, diarreah, bloating, cramping, gastritis on occasion, and then other random health issues that are caused from CD like gingivitis for example.
Just got off of Entocort (too many side effects) and Cipro. I'm now trying the Maker's Diet as well as a bunch of vitamins and probiotics. Let's hope this helps a bit!
This site is great for support.
<3
 


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 9/24/2007 11:13 AM (GMT -7)   
Hi, I have been on Remicade for 3 years, along with methotrexate.  When I started my fissures were bad and I was barely functioning, it took a while, timing of treatments, dosage of both meds but it cleared my fissures.  Now I'm on maintenance and suffer the week before my treatment, but generally do okay otherwise.  I hope you start to feel better soon!  No one should have to suffer like that. 
 
 
Remicade, Methotrexate, Nexium, Iron, Folic Acid.

Malibu05
Regular Member


Date Joined Sep 2007
Total Posts : 98
   Posted 9/24/2007 2:18 PM (GMT -7)   
I feel your pain. My doctor never actually told me I had a fissure, but that I had a large ulceration toward the end of my rectum that was causing my excruiating pain. They could be the same thing, I don't know. But it felt like I was passing razor blades every time I went to the bathroom and before yesterday, I hadn't been out of the house in months. Yesterday, I finally decided to go to the mall with my mom and went to a few stores before I got the urge to go to the bathroom and had to hurry back home where I could use the restroom and had my pain pills and I could lay down. My ulceration is a lot better than it was 3 weeks a go and I've been on Asacol and Entocort. I think they both or one of them has helped me a lot. I am not completely better and still in a lot of pain though so, like you I too am starting Remicade very soon and hoping that it will bring a miracle! I know I didn't really answer your question but sometimes it just helps to know that you aren't the only experiencing that pain. I wish you luck though and hope that Remicade works well for you!

Krysta
Regular Member


Date Joined Jun 2007
Total Posts : 340
   Posted 9/24/2007 2:29 PM (GMT -7)   
I haven't had any relief from my fissure while on remicade. I just had my 3rd treatment. It actually has been worse since I am now having solid poops...
Finally Dx- April 13 2007 (age 26) ilio-crohn's-colitis. Surgeries:appendectomy, cholecystectomy, tonsillectomy, pinidal cyst removed,emergency abdominal surgery for hemorrhaging ovary from burst ovarian cyst, LEEPcervix, emergency abdominal surgery for grapefruit sized ovarian cyst removal, D and C of uterus, lumpectomy of breast.
MEDS: remicade, prednisone, Asacol TID, protonix, metformin, buspar, trazodone, multi V, B complex, flaxseed. Vegetarian, leaning towards vegan. no nuts, seeds, or wheat.
Many allergies. Polycystic ovarian syndrome, anxiety, depression, ITP 
Every tool is a weapon if you hold it right ~ Ani Difranco
 
 


safetymom
New Member


Date Joined Sep 2007
Total Posts : 1
   Posted 9/25/2007 7:19 PM (GMT -7)   

When I was reading your post, I felt like I was reading about me!  I'm not kidding!  I've had CD for 10 years and was honestly a very bad patient, due to the fact that my CD was really bad...Foward 10 years, two kids, masters degree and a fabulous but high demanding job= CD got worse.

Was in the ER 5 weeks ago (day before an event I was coordinating for 800 people).  Had a colonoscopy the followig Tuesday and began Remicade the week after that.

I have to tell you the week after the 1st infusion, I felt like a completely NEW PERSON, it was unbelievable...I hadn't felt that good in 10 years, but then the next infusion was 2 weeks ago and NOTHING...still feel like POOP, very bloated...really bloated and just feel sluggish.  I have to say though, my fistulas are under control.

I hope this helped. tongue


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/25/2007 8:21 PM (GMT -7)   
remicade made me feel good for the most part. took it at almost the beginning. but after being on it for several years i developed a fistula from my colon to my bladder which required surgery and the loss of 8 inches of my sigmoid colon. so basically, even though i felt better on it, it just masked the symptoms cos the disease got worse and i developed a fistula which if i didnt have surgery i would have died from a bladder infection since fecal matter was entering the bladder. so if you ask me now remicade sucks. doesnt work. just masks the symptoms but doesnt heal or cure the disease. that is my opinion.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
been on basically every med available, currently on colozal & 6-mp
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon

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