Imuran and Lupus?

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myTYTY
Regular Member


Date Joined Sep 2007
Total Posts : 22
   Posted 9/24/2007 3:01 PM (GMT -7)   
We just spent another night at the ER and still have no answers as to what is making my son so sick. I was worried that he was having an allergic reaction to Bentyl, because he was dizzy, seeing double, and his joints were hurting so bad he could not walk. He began vomiting again, and the really bad pain is back in his tummy. So about 1:30 in the morning as I was waiting for the Dr. to get blood tests back I once again went over what changes have occured in the last couple of months that could cause him to spirl down like this. Because he had a rash arould his face, and the timing of him getting really sick(it always seems to happen at night)I began to look at his meds that he takes at night.... In Augest they increased his Imuran and we did notice an increase in the side effects again (increased nausea, hair loss, etc), but nothing that allarmed me. Then he got really sick 3weeks ago, the dr. put him on Bentyl this last week, he did a little better, and now he is worse then ever before. I called the Pharmisist this morn. and she said that it could be the Bentyl, and not to give it to him anymore. I mentioned that the only pattern I can find is that he gets sick after his nightly meds. She became really concerned and said that it could be the Imuran, that all of the symptoms he has matches with a drug induced case of Lupus. I have calls into all of or Dr. The Ped. called and said that it was out of his league, The Reumy is going to calling back again and the GI still has not returned my call. I am so frustrated! Has anyone else had a problem with Imuran?
 
 
My 11 year old son was Dx in may of 2007, but he had symptoms of CD at age 7. He was Dx with spondylitis in July of 2007, but had symptoms at age 2. I also have a 6 year old going through testing...
Currently taking: 2 grams of Pentasa 2x a day, Prevacid 30mg, Imuran 100mg, Dicloflonec 25mg 2x a day, Bentyl 10 mg 3x a day, Align (probiotic), and Phenergan prn.


myTYTY
Regular Member


Date Joined Sep 2007
Total Posts : 22
   Posted 9/24/2007 3:09 PM (GMT -7)   
I just got off the phone with the GI, she said that it definitely sounds like a case of drug induced Lupus. We are stopping the Imuran, and she wants to do another capsule scope on 10/08 to check the progression of the CD. I was wondering if anybody else had a problem with Imuran, but still needed an imunosuppresant, and what you are taking...
My 11 year old son was Dx in may of 2007, but he had symptoms of CD at age 7. He was Dx with spondylitis in July of 2007, but had symptoms at age 2. I also have a 6 year old going through testing...
Currently taking: 2 grams of Pentasa 2x a day, Prevacid 30mg, Imuran 100mg, Dicloflonec 25mg 2x a day, Bentyl 10 mg 3x a day, Align (probiotic), and Phenergan prn.

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