Has anyone heard of a test called Octreoscan????

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haljas
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Date Joined Sep 2005
Total Posts : 617
   Posted 9/24/2007 4:18 PM (GMT -7)   
Hey there gang,
 
Sorry for the long period that I have not been on...Please if anyone has any info....I was originally scheduled to try Botox injections for gastroparesis, this would be injected in the pyloric sphincter...I got a call on Thursday pst from GI receptionist and she said that GI is cancelling my Botox as there is an issue with bloodwork,,,my Gastrin levels are too high adn I am now scheduled for this Octreoscan...Apparently this is for stomach tumors/////I am scared stiff, if anyone can shed some light on this test and if anyone knows about gastrin levels pls respond.....
 
I have this test on Oct 16th and it takes 3 days to do...Very rare here in Canada....and from what I have read pretty rare in US as well...
 
Please help........From misdiagnoses of CD last year and steroid treatment to tumors......
 
Thanks "
Cyndi

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 9/24/2007 5:38 PM (GMT -7)   
Gastrin is a hormone produced by cells in the stomach that stimulate the production of gastric acid.  There are a lot of different reasons for an elevated gastrin level: just a few are ulcers, pernicious anemia, kidney problems, gastritis, certain medications, and Zollinger-Ellison syndrome (this is a rare produces neuroendocrine tumors).  Did they tell you how high your gastrin level was?  Do you have a copy of the labs?
 
The OctreoScan is used to image neuroendocrine tumors.  If you have ZES, there's treatment for it.  So don't get too nervous yet.  I know it sounds scary but you have a while to go before you get any results and you don't want to make yourself nuts! 
 
The scan consists of getting an injection of tracer one day, and then coming back the next day for pictures.  Sometimes people have to go back the third day as well for additional pictures. 
Co-moderator - IBS Forum


haljas
Veteran Member


Date Joined Sep 2005
Total Posts : 617
   Posted 9/24/2007 5:55 PM (GMT -7)   
Hey there Sarita,
 
Thanks for the reply....the receptionist said something about tumors, but I wasn't really paying any attention, but she didn;t say anything else either...I was just so bummed that my botox was being cancelled, and not knowing why...
 
I have been checking different sites and can't seem to find a good one for details....
 
I will keep searching ,,,thanks for the input...
 
Cyndi

yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 9/24/2007 6:57 PM (GMT -7)   
Cyndi,
I know nothing, but I wanted to wish you well. It was good to see your name on HW! Betz
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


haljas
Veteran Member


Date Joined Sep 2005
Total Posts : 617
   Posted 9/24/2007 7:16 PM (GMT -7)   
Hey there,
What the heck has been happening with you??? I have started on this facebook thing and can't stop....Are ya on it???

I am just hoping that this is the end to all these tests , just so tired of it all, but you know what I am saying,,,unfortunately all to well....

Let me know how it all goes for you,,
Cyndi

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/24/2007 8:07 PM (GMT -7)   
I am on facebook, in theory, but never check it :) just use it to check photos that my kid puts up of me!
email me and I will fill you in. Betz
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/24/2007 8:29 PM (GMT -7)   
I also have high gastrin levels, my doc thinks it's down to cd in the stomach. Has anyone suggested this to you?
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


haljas
Veteran Member


Date Joined Sep 2005
Total Posts : 617
   Posted 9/25/2007 4:50 AM (GMT -7)   
hey there Vicky,
 
No one has said anything to me, just called me cancelled my botox and said that I need this test , related to tumors.....
 
I am so nervous..
 
Cyndi

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/25/2007 6:58 AM (GMT -7)   
and you have to wait until the 16th? I hope you can talk to someone sooner than that to find out what you need to know, B
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.

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