SLEEP DEPRAVATION

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angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/24/2007 8:41 PM (GMT -7)   
HI CRONNIES
                 God this is hell not being able to sleep im on so much meds you would of thought i would of been in a coma long before now even tried the herbal meds tonight no joy tried the hot chocolate just made me have 2 cups more not much wonder ive got bags under the eyes now that im back on the prednisolone could be down to the steroids any ideas on how to sleep would be extremely appreciated dont want to go down the vallium route!!!!!!!!!!!!!!!!
16.37am starting to turn night into day and day into night not a good sign
 
 
 
meds im on prednisolone,folic acid,domperidom,coedine phosphate,tramadol,
questren sachets,buscopan,methotrexate injections,anti dssssssssss
more than likely ive forgotten the rest lol
 
hmmmmmmmmmm think ill start writing a song about crohns disease yeah
 
 
 
 
 
 
 
 
 
 
 

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/24/2007 9:02 PM (GMT -7)   
I slept horribly on pred and watched movies all night long. I am sorry for you! ambian helped a bit and you might need something as no sleep could make one nuts! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/25/2007 12:26 AM (GMT -7)   
yoga put it this way i could open up another blockbuster thats exactly what i should do watch movies all night long b4 i was diagnosed i had no problem sleeping because i was working shifts once head hit the pillow i was out well now roles reversal does not help the crohns any my consultant said one of the best things for crohns is sleep i guess its ok if your have a regular sleep pattern but us chronnies dont.
you get the dvds ill get the popcorn i can eat that by the bucket load (one of my many luxurys i can still eat)smile
if i dont get some sleep soon ill go nuts my doc wont give me anytthing to make me sleep says im on enough meds.ill ask my consultant he may have a different opinion.got to sleep al 17.00 up at 18.00

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 9/25/2007 10:09 AM (GMT -7)   
Get some Tamazaphan. It helps me so much, I take one and sleep like a baby.  It's a mild sedative. In my opinion, I just get sicker when I lose sleep.  Every hour counts with us!


Jennifer
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Entocort, Prograf and Remicade.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/25/2007 11:35 AM (GMT -7)   
my next consultation appm is november ill explain to my consultant it may just be all the stress ive been under with family problems i normally dont have a problem only had 3 hrs yesterday i try to avoid sleeping during the day as i know i dont sleep at night and us chronies need all the sleep we can get my consultant might prescribe some meds for me.
i have read that while your on steroids it can affect your sleep pattern days when i can sleep for an eternity

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/25/2007 4:36 PM (GMT -7)   
I have used tylenol PM or benadryl...when that doesnt work I take an ambien
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/25/2007 4:43 PM (GMT -7)   

im on 40 mgs of pred and i DO NOT sleep. there have been t omes where i go 2 or 3 days without sleep and it really does suck. i have tried ambien, trazadone, lunesta, vistoril and forget benedryl nothing helps me at all. right now im taking rozerem which is basically expensive melatonin and that really doesnt help much, although sometimes i do get 5 hours. not enough but it suffices...

so anyhow although i can say i understand i cant help you im sorry babe. keep tryin ill try to send some sleep vibes if i can find em.

bunny


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


trickynikki
Regular Member


Date Joined Jul 2003
Total Posts : 481
   Posted 9/25/2007 6:58 PM (GMT -7)   
I couldn't sleep when I was on prednisone either. I ended up having to buy sleep aids. I just bought over the counter stuff and it worked fine for me. bunnypucker-did you check with your doc about melatonin? Someone gave me that when I was on a higher dose of prednisone, the bottle said people with autoimmune disorders shouldn't take it. Crohn's is an autoimmune disorder.


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/25/2007 8:32 PM (GMT -7)   
hmmmmmmm i did not know that tricky, i will definitely ask tho. do you have any idea why we shouldnt take it?
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 9/26/2007 5:54 AM (GMT -7)   

The less sleep I get, the quicker I go into a flare......

I'm one of the lucky ones that has never had to go on Pred., so I don't know how to deal with sleep loss from that.  I do have a friend that swears by vilarium (sp?) root.  It comes in pill form from the health food store.  You would need to check and see if it would react with any of your current meds.  There aren't any side effects (that she told me) except it makes some people dream weird.

Good luck getting sleep!


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/26/2007 6:02 AM (GMT -7)   
I'm still fighting the sleeplessness and I've been off the Prednisone now for about a month. I think my body just got used to not sleeping while I was on it and I need to retrain it. Tylenol PM and Benedryl do nothing for me, they actually make me more hyper. I'm going to see my GI next week and will discuss this with him, hopefully get something temporarily that will help train my body to sleep through the night again. I'm just not sure Ambien will help as I have short bowel, is it time released? Any suggestions would be appreciated.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/26/2007 8:31 AM (GMT -7)   
Be careful with the ambien.  I still have 2 days of my life that I can not remember, yet my family never will seem to forget.(lots of family jokes now)  I have never had a drop of alcohol in my life, but for the time that I was on it I am told that I was acting like a complete drunk.  Good luck and I hope it works for you, but make sure that others are around you when you take it.

Idolwild
Regular Member


Date Joined Sep 2007
Total Posts : 29
   Posted 9/26/2007 10:27 AM (GMT -7)   
I'm on 40mg Prednisone and cannot sleep either. My doc wanted to try Ambien but I've read too many wacky things about that drug - instead he gave me Temazepam. Works very well, I take it shortly before I want to sleep and when I close my eyes I just go to sleep, simple. Once the Pred is over with I'm sure I'll have some trouble weening off it (it's down side, addictive) but, in the end, ya gotta sleep.

Lisa430
Regular Member


Date Joined May 2007
Total Posts : 148
   Posted 9/26/2007 5:23 PM (GMT -7)   
Try Ativan- I could not sleep while I was on the pred and the Remicade seemed to make it worse for the first few days after the infusion. Ambien made me so wired I not only didn't sleep but felt hung over the ext day- really spacey. Ativan just sort of relaxes your whole body. It is in the valium family so it can be addictive, but the sleep deprivation makes everything worse.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/26/2007 10:39 PM (GMT -7)   
I know what you mean,,,note the time this was posted..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 9/27/2007 4:31 AM (GMT -7)   
desperate mesures ive resorted to desperate measures while i were in town yesterday i bought the nytol herbal tablets finally a decent nights sleep(smile)i took 2 tablets at 8 was fast asleep by 12 might not feel so much like a zombie now for any other cronnies that cant sleep i would reccomend nytol sleeping tablets they work for me but they might not work for everyone.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/27/2007 7:22 AM (GMT -7)   
Hi I sometimes thought of my bed as a torture chamber at times because of the night sweats and pred. I really found it hard but leaving the TV on in the bedroom or listening to music before bed helps get the mind from thinking .The more sleep we loose sometimes the more the mind keeps thinking .You could try that .When I was up on 40 it was winter so I kept the wood stove going I think just doing something I thought was useful helped settle my thinking .I did not stay in bed for hours but got up for awhile when I woke up and one thing I did was read all the forms here to see how others were doing then went to sleep. If this has been going on for a long time I would ask the DR. for something that would relax a person instead of sleeping pills if there not working. Best Wishes and try to let some of your frustration go you can do it . lol gail

Kal
Regular Member


Date Joined Jan 2008
Total Posts : 53
   Posted 3/3/2008 4:49 AM (GMT -7)   
I'm so glad that you brought this subject up!

Although i note that your sleep problem is due to medication (at least that's what i gathered), insomnia is what i have been battling since my last flare up. It's quite bad. After a round of EFT w/ Therapist I've been able to actually stay asleep however the whole reversed clock thing still is a pain in the you know what.

Like many of you i've been on lorazepam, trazodone etc and they have not worked... Anyways i just wanted to post that i was glad that you posted cuz you're not the only one out there with sleep problems, and It was nice for me to find out that i'm also not alone. :)
Kal - 24yr female
Hiatal Hernia, Crohn's, Anxiety, Anemia,
Meds: B12 Injection, Iron supplement, pantaloc (for hernia)


tiredcrohn
New Member


Date Joined Mar 2007
Total Posts : 11
   Posted 3/4/2008 7:07 PM (GMT -7)   
I've had the same sleeping problem even when I'm not on meds. I refuse to take sleeping pills so I take Calcium and Magnesium (taken in seperate pills or capsules) and the combo has helped me sleep like a baby! It was like...magic. A friend of mine, no crohnie, went to a massage therapist and he recommended the vitamin/mineral route. Just so happens that it works for me too. It's something that your body needs anyways and it has no side affects the next day.
Mellowed me out considerably. I was a nervous wreak before.
Hope this helps.
Crohn's survivor 8 yrs.

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