Does anyone have trouble tolerating probiotics?

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/25/2007 2:28 AM (GMT -7)   
Good morning, everyone!  I know they say probiotics are good for us, but I seem to have trouble tolerating them.  They make me very bloated and gassy.  Maybe you have to take it for a long time for those symptoms to go away.  Maybe I just need to give it a chance.  Are they really that important?  I am currently taking a probiotic called NOW, with L. Acidophilus and B. Fidum.  Maybe it's just the Crohn's causing gas and bloating, and I'm blaming the probiotic.  It also seems to give me indigestion.  Does anyone have any suggestions?  Maybe it's all in my head, lol!  Thanks!  Julie :-)
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/25/2007 4:51 AM (GMT -7)   
Wow. That's weird. Those are the symptoms they're supposed to alleviate! I've taken them for years and not had any trouble. I feel like they've helped my son immensely. Yes, maybe it's worth waiting to see if these symptoms disappear. May be a coincidence. Possibly another brand? I don't know...
EMom

Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.
Just starting the Maker's Diet.


Skjura
Regular Member


Date Joined Jun 2007
Total Posts : 210
   Posted 9/25/2007 5:39 AM (GMT -7)   
Hi, have you red Elaine Gottschalls sites about her SCD diet and her suggestions about what kind of probitics Crohnies should avoid and what to use? If not, here it is: Avoid any probiotics containing the name Bifidobacterium bifidus, either of them. Those just mentioned makes the intestines worse, they make an overgrowth of bacterias. (makes u worse with diarrhea and bloating) she says. Use instead probiotics like these: Lactobacillus bulgaricus, Streptococcus Thermophilus, Lactobacillus Acidophilus. There are also other combinations that are fine.
Here are Elains diet: www.scdiet.com

Some also use a yeast called: Saccaromyces Boulardii. Thise one may break down bacteria like clostridium difficile.

Anyway, if u buy probiotics, avoid also the boxes that have mixed FOS within. You may find out more by reading about the diet.
To learn more about probiotics, read:
http://www.phototour.minneapolis.mn.us/candida/summary.html

Good luck,
from Ingrid :-)

Post Edited (Skjura) : 9/25/2007 6:38:34 AM (GMT-6)


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/25/2007 6:55 AM (GMT -7)   
I started taking a probiotics because one of my biggest complaints now is stinking gas. I asked my GI about them and he said it couldn't hurt and just might help. It has seemed to make a difference. I still have gas but at least I'm not clearing the room anymore. I asked him about it since I never had that problem before my resection, when my CD was out of control but have it now while I'm suppose to be in remission. I thought it was from the meds I was taking and he said it was more likely from only having half a colon. Just for your FYI.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 9/25/2007 7:05 AM (GMT -7)   
Watch some of the ingredients in the probiotics. I was so sick from VSL#3 the unflavored packets. One of the ingredients is corn starch which I can't tolerate at all hence the gas, bloating and loud growling noises. VSL#3 also makes capsules that do not have other added things in them that I can stomach.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/25/2007 12:46 PM (GMT -7)   
maybe you should try another probiotic. I use Garden of Life brand. Also, keep in mind that some probiotics might help detoxify, so that might aggravate symptoms temporarily.

killerzoey
Regular Member


Date Joined Jul 2007
Total Posts : 161
   Posted 9/25/2007 2:36 PM (GMT -7)   
Along the line of what Ingrid said, I have read a quote by Elaine Gottschall, author of "Breaking The Vicious Cycle", stating that the use of probiotics can actually do harm unless you are simultaneously starving the bad gut flora through diet. I have no link to the quote and no link to anything showing this scientifically, but thought I'd pass along the gist of what I heard.

I was taking probiotics before starting the Specific Carbohydrate Diet and I, too, felt horribly bloated and backed-up in an odd way (not constipated, just that things weren't moving along. Maybe small bowel related?) Anyway, I started the SCD and its home made yogurt which is loaded with probiotics, and lo and behold, no problems at all. As you see in my signature, I also take S. Boulardii and digestive enzymes, all of which I believe help. But I started those weeks after the diet, so I know the diet in itself did most of the work.
36 year old mother of a fabulous toddler.

STARTING LOW DOSE NALTREXONE SEPT. 26TH www.lowdosenaltrexone.org. Also see: http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&cmd=Retrieve&list_uids=17222320

Diagnosed with Crohn's July 2007. I believe it's in the right side of my colon.
Tapered down off Entocort mid August. Now on Asacol 2400, Protonix 40mg/day.

On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and slight burning. Gastritis symptoms are quiet now. What was horrible right hip and low back pain has subsided about 60%.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 9/26/2007 2:38 AM (GMT -7)   
Thanks to all of you for the replies.  I noticed that the last probiotic I used to take didn't contain B. Fidum.  Maybe that's the problem....  I might also try making the homemade yogurt.  Thanks again!  Julie :-)
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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