Anyone can't handle coffee??

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descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 6:29 AM (GMT -7)   
I cannot have coffee for the life of me.  I have proven it about 30 times now.  I have 2 sips and I am running to the bathroom in pain.  Why????  I am not a HUGE coffee drinker but I love to have my one cup in the morning on my way to work.  How can it react so quickly?  This is very frustrating especially since everyone around me thinks I am nuts and says that it is all in my head!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/25/2007 6:48 AM (GMT -7)   
I have the EXACT same problem. If I ever have C I take a shot glass or less size sip of coffee and I am going. I can't even handle the smell anymore without feeling sick. I bought ice tea from Dunkin Donuts and it smelled like coffee and I couldn't drink it. I miss coffee so much too. I decided to drink it once any way four years ago. A big frapaccino in the Las Vegas airport. I was sick my entire plane ride home. I havent touched it since except in the rare circumstances that I need to go. I don't know why or how but it is an instant laxitive for me.
25 Year old married female.  Diagnosed w/ CD 2 years ago, IBS for over 10 years before that, which was probably the CD.
 
I started getting a ton of junkmail after putting my myspace profile link on here.  Im taking it off but if you want to contact me just email me and Ill give you a link to my myspace.  Sorry!


athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 9/25/2007 6:58 AM (GMT -7)   
If I'm constipated, a sip of coffee and a cigarette, and I'm off to the bathroom!!!!!  I only drink decaf now, and I do miss regular coffee, but the pain is just not worth it. 
 
Christina

Sad Mom!
Regular Member


Date Joined Aug 2007
Total Posts : 58
   Posted 9/25/2007 7:00 AM (GMT -7)   

Hi,

I was just wondering, do you get the same reaction with decaf? Just wondering if this could help to get the coffee without the d reaction. Keep well!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/25/2007 7:01 AM (GMT -7)   
I have never been a coffee drinker, but always enjoyed caffienated soda's. Can't drink those anymore as they make me really sick.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 7:22 AM (GMT -7)   
ANY kind of coffee does it for me. I dilute my coffee to 1 part coffee and 3 parts water and it still does it. My nose just smells it and my tummy starts rumbling. I, however, can't go more than 2-3 days without having a diet soda. I have tried getting off of it completely twice just to see if I felt better and it actually made things worse. For some reason the carbonated drinks make me less gassy and bloated. Maybe I pass more gas and thats the reason I don't feel bloated but I know I can't go off of it completely.
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


TeachingAngel
New Member


Date Joined Sep 2007
Total Posts : 18
   Posted 9/25/2007 8:02 AM (GMT -7)   
i thought i was crazy, because just the smell of coffee makes me go. lol, i swear sometimes this disease is a real trip. i hate coffee but when i lived with my parents they would have the coffeemaker on early and off i would go. i never drink the stuff unless i'm constipated (rarely) and coffee does the trick.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/25/2007 8:09 AM (GMT -7)   
I thought the coffed wasn't agreeing with me since my last surgery, but through trial and error I realized it was the milk that I added, not the coffee. I switched to CoffeeMate (no dairy) and I haven't had any problems since.

I had a soda the first time since surgery a few days ago and the next morning I was sick as a dog. I never used to drink soda very often before the surgery, but of course now I'm craving it.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 9/25/2007 10:03 AM (GMT -7)   
I'm a big time coffee drinker, don't touch much of anything else. I don't get problems with it, but my beloved bowl of
cereal or ice cream is a huge no no. I sometimes wonder if lactose intolerance also come into play with this disease.
I never had a problem before dx...
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 10:09 AM (GMT -7)   
Lactose can play a HUGE part in this disease. I can't have it. I stick to lactose free milk and popsicles instead of ice cream. I will ocassionally have a spoonful of regular ice cream if I need that craving satisfied but that's it. It totally sucks! =(
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 9/25/2007 10:09 AM (GMT -7)   
I had that problem for a while and I learned that I could drink it ICED, and it would not bother me. Found out that fixing the way I like to drink it and pouring it over ice changed something in the chemical makeup and then I could drink it and not run.

I am in a better place today and can have a cup if I want, but I know I am still risking it. So I just make sure I am not going anywhere when I have it just in case.

But basically, try it iced. Found Hazelnut flavored either by creamer or the coffee beans taste the best over ice.

Good Luck
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 11:26 AM (GMT -7)   
Nope not iced either. I tried it iced and as a frapaccino and it took a little while longer but it still had the same effect. I don't know what I am going to do in North Carolina this winter without my hot cup of coffee! I can't do hot chocolate either! =(
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/25/2007 11:45 AM (GMT -7)   
I would just have to crawl in a cave and never come out if I couldn't have my morning java. When I first went to the doctor for "d" when I was 17 he told me I was lactose intolerent. I dealt with it for years. Then I was told I had IBS on top of that. At the age of 46 I found out I had Crohn's on top of all that but for some reason after my resection dairy doesn't bother me anymore. Maybe I had Crohn's or IBS all that time (29 years) and was never lactose intolerant. Can you outgrow it?
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 9/25/2007 11:56 AM (GMT -7)   
I am sorry to say, not a frapaccino. Straight over ice, I cannot do the frapaccino either, something about the way it is made. Making it and pouring it straight over ice was the only thing I could do. Could not do anything else. You might give it a try.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 12:49 PM (GMT -7)   
I have not made it at home and then poured it over ice so let's try it and see. I feel like I would like to crawl into a cave most of the day. Today I was just staring at my computer and my eyes were literally shutting! Luckily for me, my Husband is my boss and if I don't feel good he'll go easy on me!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/25/2007 1:19 PM (GMT -7)   
Does he get to send you home? That's the kind of boss I'd like to have.
Vicky / 47 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (26) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/25/2007 1:41 PM (GMT -7)   
I'll go home but only if I really am not functioning well! My phones don't stop ringing so I feel bad leaving him sometimes... then I start to get phone calls from clients that love to tell me there whole life stories and don't understand when I have to rush them off the phone. All my guilt pretty much goes away right there and then!
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/25/2007 5:33 PM (GMT -7)   
I as well can no longer drink coffee.It was so hard to give up nut it just wasn't worth it for me.I can drink tea though with no problem.
Curley
.........
 


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 9/25/2007 7:24 PM (GMT -7)   
I find that coffee affects me the way most other foods and drinks:  sometimes I'm fine and sometimes I feel sick and have D.  Can't really make heads or tails out of this DD.  So I just take it day by day and if I'm feeling ok I'll have a cup of coffee and hope for the best.  I really enjoy a cup of iced coffee in the warm weather.  Sometimes I wish I could find a definite link between what I eat or drink and how it affects me.  Then I would know what not to eat. I do however stay away from the definite no-no's like nuts, raw fruits and veges, seeds, etc.  This DD is soooo frustrating! 

boomer2006
Regular Member


Date Joined Sep 2007
Total Posts : 29
   Posted 9/25/2007 11:11 PM (GMT -7)   
coffee hurts me to regular and decaffe

edwina77
New Member


Date Joined Sep 2007
Total Posts : 15
   Posted 9/25/2007 11:57 PM (GMT -7)   
For the longest time I would get nausead and vomit from coffee. The only way I was able to drink coffee was to add 1 packet of hot cocoa to the cup of coffee. I also use lactaid brand milk. I also found that if I bought cheap coffee, it would make me sick. When I bought better quality coffee I no longer had to add the hot cocoa.
Now I allow myself 1 cup of coffee a day. I now but Folgers Gourmet BRand coffee
Crohn's
Bi-polar
Post Trauma Stress


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/26/2007 2:03 AM (GMT -7)   
Well for me I have no problem drinking coffee. If I drink hot cocoa I have to go to the bathroom.
So I stay away from cocoa
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 9/26/2007 5:54 AM (GMT -7)   
Wow! I have a lot of triggers, but coffee is not one of them. I practically live on coffee all day. And I don't get D from it. In fact it soothes me!
 
I guess I am one of the lucky ones. Sorry guys!
~Sukay~
 
Crohns Disease-Remicade since 1999, Methotrexate
Fibromyalgia & Arthritis
Bipolar & Panic/Anxiety-Trileptal, Xanax, Trazadone, Wellbutrin


descrapster
Regular Member


Date Joined Jun 2007
Total Posts : 155
   Posted 9/26/2007 6:17 AM (GMT -7)   
Well I am glad some of us can take coffee... Have a cup today in the name of all of us who can't! Make sure mine is really light and really sweet! =P
Descrapster
Diagnosed with CD June 15, 2007
Currently 2 Fissures and 1 Fistula...YAY! Seton Drain currently in.
8 Pentasa/day
Had to stop Flagyl because of numbness in my toes!
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/26/2007 1:24 PM (GMT -7)   
I can only have one cup when i'm doing well, otherwise I can only have one cup of decaf.
32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 

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