Don't be discouraged. Remicade makes me very cranky-I get joint pain and headaches and it makes me feel old-I take benydryl a few nights after to try to alleviate some of the symptoms. It also gives me a lot of gas and gas pains so you don't feel very much like being touched!
It is very hard to deal with fistulas and have a healthy sex life,IMO. My H & I just did it last month for the 1st time since Oct. 2006! TMI-sorry. but when you have an open sore in your butt that is draining, you don't feel very sexy and being a woman, it is very close to the area you use so it hurts sometimes. That can make a young person very depressed. That was a big part of my depression.
Try to talk to him but if he won't open up, just be there. My husband leaves me alone when I am really upset or sad but he tries to make me laugh and do little things like get me something good from the grocery store to cheer me up.
Feel free to email me-it's in my profile if you want to ask any questions.....
Best to you and your BF!
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07. Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.