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Laurie G
New Member


Date Joined Jul 2007
Total Posts : 11
   Posted 9/26/2007 6:41 AM (GMT -7)   
Hi there,
 
After a 4 month run of being extremely ill, I had surgery last Friday.  I had started Remicade and did two treatments, but I was one of the few that it didn't work for.  Our options were gone and we cut about one foot of intestines.  The surgery went well and I am at home now.
 
Has anyone had surgery and then been well for a long time with just preventative meds?  That is the thought right now
 
thanks so much.

dizzyd
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/26/2007 6:48 AM (GMT -7)   

 

 I had surgery 3 years ago.  Foot and a half small intestine and six inches colon removed.  So far so good with no meds.

Good luck


jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1131
   Posted 9/26/2007 6:54 AM (GMT -7)   
I had a small bowel resection 7 years ago next month and have been in remission since. Meds free going on 4 years. Good luck to you!

 .jb
 
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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/26/2007 9:38 AM (GMT -7)   
I have had two resections and the only Crohns meds I am on now is Asacol.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 9/26/2007 3:03 PM (GMT -7)   
I have had 3 very long remissions following surgeries. Only the last time was I on maintainance med (asacol) for a few months. I stopped it myself though. You seem like you breezed thru it. Good luck with your recovery.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/26/2007 4:46 PM (GMT -7)   
I iwsh I had a long remission post op but that wasnt in the cards for me. I am 3 months after my ostomy reversal, I had no issues til about a month after the reversal, the ostomy was done in Feb after a resection when my colon didnt wake up and I lost 1/3 of that too. I now am on humira and just started that last friday, I dont know if my bidy was getting better on its own once the fistula and abscess were able to drain and placing saline gauze into the opening or if the humira has already begun its work
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/29/2007 6:24 AM (GMT -7)   
I've had long remissions after surgery and short remissions after surgery and never took maintenance meds. I'm waiting for my GI appointment next week though to find out what I can take for maintenance. The thinking has changed, now they realize that while I thought I was in "remission," my disease was brewing. If I can get on maintenance meds, maybe I can hold off the disease for much longer, or even prevent another surgery. Depending on my liver and the meds, I'm going to give it a try. I hope I never have to go through another surgery.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 

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