For those who've had problems with Asacol

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Regular Member

Date Joined Aug 2007
Total Posts : 89
   Posted 9/26/2007 8:53 AM (GMT -6)   
I am going to start using Asacol. I'm a bit worried about getting a reaction to it. I am traveling out of state, alone, in 3 weeks and am concerned about having a reaction while I'm gone.
It seems I read someone's post that said they used it for a while and then had a delayed reaction to it.

Can anyone tell what kind of reactions you've had to Asacol, immediate or delayed?
Dx'd CD in August 2007 - 42-yr-old wife and mom
Allergic to Entocort and Prednisone / Not sure what's next
Currently on Protonix, calcium and multi-vit; and Flovent (for asthma)

New Member

Date Joined Jul 2007
Total Posts : 5
   Posted 9/26/2007 10:52 AM (GMT -6)   
I've been on Asacol since April (12/day) with no reaction. They started me with Colazol, but that made me sick as a dogwithin the first week. How much time do you have to try it before you need to travel? Try not to worry just stay in touch with your doctor.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/26/2007 11:23 AM (GMT -6)   
I have been on Asacol for about 2 years now and have absolutely zero side effects. It has worked well to slow my D down and settle my gut some.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Veteran Member

Date Joined Mar 2007
Total Posts : 1019
   Posted 9/26/2007 2:21 PM (GMT -6)   
Reactions to Asacol are unusual.  Yes, they do happen for some people, but odds are you won't have a reaction.  It's considered one of the safer Crohn's meds.

Regular Member

Date Joined Sep 2007
Total Posts : 98
   Posted 9/26/2007 3:39 PM (GMT -6)   
I haven't been on Asacol very long (about a month) but I haven't had any reactions to it. It's actually helped me a lot.

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 9/26/2007 3:42 PM (GMT -6)   
no reactions in 5(?) years.

32 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

Regular Member

Date Joined Feb 2007
Total Posts : 56
   Posted 9/26/2007 3:43 PM (GMT -6)   
It made me 100 percent worse.  So good luck.

Elite Member

Date Joined Feb 2004
Total Posts : 20558
   Posted 9/26/2007 3:50 PM (GMT -6)   
A couple of hours after taking my very first dose of 4 pills I broke out into a full body rash, along with fever, chills and sweating as well as nausea, I called my doc and said to stop taking them, I'm allergic.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Jun 2007
Total Posts : 86
   Posted 9/26/2007 5:13 PM (GMT -6)   
I take 12/day. The only side effect I've noticed is increased hair loss in the drain. :-)

I've been on this dose for almost a year. Good luck to you, I hope it works!
Bipolar disorder
Appendectomy Nov '01
Dx Chron's summer '05
Yay Humira!, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov

Regular Member

Date Joined Aug 2007
Total Posts : 65
   Posted 9/26/2007 6:32 PM (GMT -6)   
I was on it for about a year. It also made my hair shed much faster than normal and became very thin (really upsetting--I was a 17 year old girl at the time...!). It took 2 years for my hair thickness to get back to normal after getting off the Asacol...also, it did not seem to help my Crohn's at all...on Remicade has.

Good luck! Hope it works for you! :-)

Veteran Member

Date Joined Feb 2004
Total Posts : 730
   Posted 9/27/2007 11:53 AM (GMT -6)   

Asacol made me sicker they kept upping the doses....

da...finally when i stopped taking it I felt good...and my hair stopped falling out by the handfuls...but obvioulsy its not bad for everyone...

As for me, I wont take it again

Dx with Crohns 23 years ago
1 surgery ; 15 years ago ... 
Cervical DDD and restless leg syndrome
Currently on ;  Azathrioprine 150 mg , Requip and Ambien CR 6.25, Celebrex,  Diovan ( for high bp )

Regular Member

Date Joined Jul 2007
Total Posts : 73
   Posted 9/27/2007 12:41 PM (GMT -6)   
Been on Asacol for 3 months and it has done nothing to me and nothing for me yet. Hope you have better luck.
Munchkin 81
26 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
currently taking 9mg Entocort EC and 1200mg Asacol 3xday
Aciphex 20mg 2xday  Iron, B-12, and folic acid

Regular Member

Date Joined Aug 2007
Total Posts : 277
   Posted 9/27/2007 1:41 PM (GMT -6)   
With Asacol, i too have noticed more hair loss than normal, and it works great for stopping the diarreah but then my new problem is that now I have problems with constipation.

I brought it up to my GI and he told me to continue on it until oct 31st and we will reevaluate and see if I need to move up to immuran.

Good luck to you!
Newbie - 35 yrs old Diagnosed: 08/03/07
Meds Asacol 3x day

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 9/27/2007 7:19 PM (GMT -6)   

While my daughter was on Pentasa. and then Asacol, and then Pentasa again, her levels of vitamin D, iron, and B12 all took a nose dive in just weeks.

I insisted on blood test before starting mesalamine, and then we checked weekly progress. Quite frankly, I was shocked to see how fast her hemoglobin (due to plummeting iron stores) could drop while on mesalamine. 

She also developed an abnormally low white blood cell count, otherwise known as leukopenia, while on mesalamine. She came down with mono while this happened, so we haven't ruled out mono as the cause of leukopenia. All I can say is that the leukopenia vanished within two days of stopping Pentasa, but of course she still had the mono. Also, if you check medical literature, you will see multiple warnings saying that leukopenia is not typical of mono, and that mono tends to cause higher than normal, not lower than normal, white blood cell count.

If I hadn't insisted on weekly blood tests while she trialed mesalamine, we wouldn't have even known about the leukopenia, much less the drops in D, B12, an example, within six weeks of starting mesalamine, her hemoglobin went from a healthy 14.8 to an anemic 11.9. 

I'm not saying you shouldn't give the med a try...I'm just saying that blood levels need to be checked weekly in the first few weeks you start it, because not all reactions are obvious, right away.

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