whipple,s disease? - HealingWell.com Forum

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biz
New Member

Date Joined Mar 2007
Total Posts : 9

Posted 9/26/2007 10:37 AM (GMT -7)

greetings from bristol england.just had all my results sorted and i,ve no cd or uc but have something called whipple,s disease?doc said only about 1000 people in england have it[80% men]aged between 30-60 and the signs are the same as cd and uc.even the doc seemed confused by what they had found which made me feel helpless .anybody heard of this whipples before? many thanks,andy 36 bristol.

Mormor Vicky
Veteran Member

Date Joined Mar 2007
Total Posts : 638

Posted 9/26/2007 11:08 AM (GMT -7)

Sorry Andy, I never heard of it either. Good luck though. and I thought you were talking about Mr Whipples and toilet paper (an american commercial from the 70's.) "Don't Squeeze The Charmin"

Vicky / 47 years old

DX'd with Crohn's during a resection August 2006

DX'd with Steriod induced Diabetes November 2006

Considered in Clinical remission but have minor signs of disease activity

Daughter (26) also has Crohn's since she was 12.

Currently on 4000mg of Pentasa only for Crohn's

No longer able to take 6-MP because of Bone-Marrow Suppression

Cymbalta, Metformin, Lipitor

Post Edited (Mormor Vicky) : 9/26/2007 11:12:43 AM (GMT-6)

JaSanne
Veteran Member

Date Joined Oct 2006
Total Posts : 943

Posted 9/26/2007 11:29 AM (GMT -7)

Hi and welcome,

I've actually heard of this disease but didn't know much about it, so you piqued my curiosity and I went to a U.S. governmental website to see what I could find. The website I use for medical information is http://medlineplus.gov . Anyway, it linked me to this article that may help you understand what you're dealing with in case you're needing more information:

http://digestive.niddk.nih.gov/ddiseases/pubs/whipple/index.htm

I hope your doctor is able to successfully treat you, and that you will be getting better soon. -Joy

48 yr. old. Ileocolitis. CD since early teens, misdx'd until age 36. Hemicolectomy-left side in 2001. Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease. Recently dx'd scoliosis. History of endometriosis.

biz
New Member

Date Joined Mar 2007
Total Posts : 9

Posted 9/26/2007 11:52 AM (GMT -7)

many thanks and thank you for your time.i did a search and found plenty of imformation on wipples and can see why they thought i had cd or uc.i,m still confused that the doc at the hospital had not done is homework and sent me home with no drugs or proper imformation as all the websites i went on said wipple,s disease can be fatal?

JaSanne
Veteran Member

Date Joined Oct 2006
Total Posts : 943

Posted 9/26/2007 11:59 AM (GMT -7)

I read the same thing. That article said it's treated with antibiotics, so I'm thinking you need to call your doctor and find out why he's not treating you with antibiotics or anything. That's worrisome!

beave
Regular Member

Date Joined Mar 2007
Total Posts : 212

Posted 9/26/2007 1:28 PM (GMT -7)

When I was hospitalized twice last year, my doctors thought I might have Whipple's disease. It's a very rare bacterial infection with symptoms similar to Crohn's. But after lots of tests it turned out I have Crohn's.

There was a show on The Learning Channel here in the states about a man who was diagnosed with Whipple's disease. The show is called "Mystery Diagnosis," and it focuses on people with unusual diseases that take a long time to get figured out. Once they figured it out for him, they got him on the right antibiotics and he is doing really well.

Good luck with the treatment. Now that they know what it is, they should be able to treat it successfully with antibiotics.

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