I officially hate Humira pens!

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onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 9/26/2007 6:38 PM (GMT -7)   
I got my pens today, even though I told my GI I wanted the syringe. He said he felt more comfortable with me using the pens, so I told his nurse that I would try the pens, and I would see how it went. Anyway, I got two pens today. I told the nurse that I would like her to do one, and that I would do the second. She did the first one, and MAN, that hurt so much worse than the syringes that I got the first time! I clenched up my hand, and she said that she could feel my skin vibrate because of how fast the medication was being injected. Then, for the second one, the nurse was getting it ready for me, took off the purple cap, and accidentally hit the button, and $700 of Humira shot all over the floor. So, I ended up having her give me a syringe for the second shot.

This is why I didn't want the pens to begin with, so I'll see how it goes when I do it, but I may need to call my doctor back again and ask for the prescription to be changed to syringes.
Crohn's Disease for a year and counting
Imuran: 150mg
Humira: got 4 shots on 9/12, finally got approval on 9/21, next 2 shots on 9/26
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


canadachick
Regular Member


Date Joined Mar 2006
Total Posts : 59
   Posted 9/26/2007 6:42 PM (GMT -7)   
I agree! I think the pens hurt a lot worse than the syringes. I had to do the pens on my own because that's what I was sent in the mail (Mine are sent to me). At the doc office I used a syringe and they sent both when I got them in the mail later. Anyway, the first pen I used bounced off my stomach and the medicine went all over my living room. Now I'm scared of them and I'm struggling and begging other people to give them to me until I've used them all.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/26/2007 7:44 PM (GMT -7)   
interesting, I wanted pens, but my GI said they hurt more, so I start with syringes tomorrow. I am glad to hear they are better!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/26/2007 7:51 PM (GMT -7)   
I had my loading dose of 4 injections today. I was given the pens. The PA did the first one, and I did the next three. None caused any burning or discomfort. When he finished with the first injection he was really surprised when I said I felt nothing. Then he surmised that my neuropathy is preventing me from feeling it. However, I really feel the stinging of lidocaine injections I get for my joint injections. So who knows....sorry you all are having such difficulty.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/26/2007 8:21 PM (GMT -7)   
I'm all about the syringes; people IRL and my doctor and nurse told me the pens are painful. I see no reason to cause myself anymore pain that I already deal with and the syringe is so easy so I was glad I never had to endure the pen.
 
I hope you can get the syringes from now on.

onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 9/26/2007 8:49 PM (GMT -7)   
Well, I have to do at least one more month with the pens. Today was my 2 shot loading dose, but when I filled the prescription at the pharmacy, I was given 2 boxes, 4 pens, so I have a whole month's worth left. And, lucky me, next time the shot has to go in my thigh, which I'm definitely not looking forward to. I had to convince the nurse today to do the two shots in my stomach again. I just have a feeling that the thigh is going to be even more painful than my stomach.

Oh, and, almost 8 hours later, the pen injection site is still sore, and the syringe injection site never was...
Crohn's Disease for a year and counting
Imuran: 150mg
Humira: got 4 shots on 9/12, finally got approval on 9/21, next 2 shots on 9/26
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 9/26/2007 10:15 PM (GMT -7)   
DITTO! I hate the pens too! But then I am a control freak anyway! I usually inject in the thigh and pre-treat the site with an ice pack. I still keep my husband on stand by to hold my injection hand down in case I try and back out the syringe before the full dose is injected. I think it's just natural reaction to remove the source of the pain and squirt the serum all over the place. I, however, have yet to do this. My GI likes the pens most likely because she is sure I am receiving the exact dose prescribed. And since my GI's nurse is a bigger witch than myself, I get NO empathy when it comes to the burning. Boy, would I like to inject her just once with no ice pack!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/26/2007 10:22 PM (GMT -7)   
When I was using Humira I used the pens and I was very happy with them.
They seemed to hurt less then the syringes.
i think that it is just a personal preference.
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....mastectomy 09-14-2007 waiting on chemo possibility
seizure disorder .....all my life.
 
 
 
 
 


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/27/2007 3:49 AM (GMT -7)   
I went from remicade to humira and back to remicade a few months ago and am doing so much better now.  When I did try Humira, I also had the pens which brought a good sting.  During the loading stage, together with a P.A., we experimented to see which was the least painful spot for injection.  I found that the upper thigh about 6-8 inches (I have long legs so might be a little less on others) above the knee seemed to be the best spot for me.  The stomach was not fun because I already have such tender abdoman that I did not want to add any unneeded  pain to it.  The only downside was that I always seemed to get a nice bruise there.  Unfortunetely, the humira really made me sick, so I went back to my monthly remicade infusions.  Believe it or not, but I have actually had better success with my remicade after going off it and back on.  I have no bleeding and instead of it only last 1-2 weeks, it is now lasting close to the whole month.

genoist
Regular Member


Date Joined Mar 2007
Total Posts : 41
   Posted 9/27/2007 10:27 AM (GMT -7)   
I agree that the pens hurt like crazy, but I would still rather do the pen than a syringe as it is quick and easy. And even if it does sting like a hot poker, it is still more pleasant than sitting in the ER for 4 hours for a Remicade infusion.
Current meds: 100mg Imuran, Prilosec, Humira, fish oil, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.


Kanditron
Regular Member


Date Joined Oct 2006
Total Posts : 148
   Posted 9/27/2007 12:35 PM (GMT -7)   
wow this has proven to be very helpful for me since my doctor is wanting to put me on Humira in the next couple of weeks!! Yikes, I might go with the syringes. Thanks guys!
25 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
Located in my large intestines, stomach, and mouth.
Asacol 3 3x's a day reinstated 9/20/07
Colazal 3 3x's a day which was stopped 9/11/07
Can not tolerate Prednisone in the slightest amount
Imuran 100mg a day. Which I started 8/24. Stopped 9/11/07
Methylpred 40 mg a day.

myspace.com/kandice789


Lauren21
Regular Member


Date Joined Jan 2007
Total Posts : 200
   Posted 9/27/2007 1:32 PM (GMT -7)   
i think the pens are great! They are really easy to use and to me they dont really hurt at all.
22 year old female
Crohn's Disease (diagnosed 2006) taking Humira & Pentasa
Polycystic Ovarian Syndrome
Anxiety Disorder
Psoriatic Arthritis
Costochondritis
Using Darvocet & Lortab for Pain
Tigan for nausea
 
 
 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/27/2007 3:45 PM (GMT -7)   
I just did my first syringe! the nurse did two and I did two and it was easy and only had a bit of a sting. I am so proud of myself!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


genoist
Regular Member


Date Joined Mar 2007
Total Posts : 41
   Posted 9/27/2007 4:44 PM (GMT -7)   
I use an ice pack on my stomach before using the pen, and it really helps. It still stings like hell, but not nearly as badly.
Current meds: 100mg Imuran, Prilosec, Humira, fish oil, iron, calcium, magnesium, potassium, vitamin E, and b-12 shots.


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 9/27/2007 6:16 PM (GMT -7)   
I hate the pens as well.My GI scripts the syringe but there was one time when my pharmacy could not get the syringe so I had to use the pen never again if I have any thing to do with it.But I have known some that use humira that like the pens better.
Curley
.........
 


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 9/27/2007 11:14 PM (GMT -7)   

Never did the syringe for Humira...and have only done 8 pens....4,2,2...the first 6 in the stomach and the last 2 in thighs.  yes it hurts once the medicine goes in....but I am guessing that it would burn no matter how it is injected.

The pen causes the needle to go in so quick that I don't ever really feel the injection itself...and the burn passes after a minute or two.....I will stick with the pen since I have to inject myself sometimes...tonight was the first time...and it went fine.


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old


erin.K
Veteran Member


Date Joined Mar 2005
Total Posts : 3148
   Posted 9/28/2007 12:01 AM (GMT -7)   
Whoa! My deepest empathy to you all! I feel your "BURN"! LOL...I was on Humira 40mg every 4 days for 2 years for RA & Crohns.
The medication STINGS like the dickens!!!!!!
Kinda like the prefilled 50mg Enbrels, but worse.
What I found to be the best was...the Humira syringe...let it get room temp, I always injected SQ into the abdomen at a 45 degree angle.
The key thing for me was injecting slooooooowly. For some reason, the slower it went in, the less it stung.
I wish you all the best!
erin
Arthritis Forum Moderator & Co-Pilot
Active Severe Rheumatory Arthritis. AS. Crohns Disease. A.Chiari Malformation & right brain venous anomoly. Partial Complex Seizures (under control!). MVP & Tricuspid Valve Prolapse. Rheumatic heart & lung. Kidney Stones (oh joy). Previous Lymes Disease for 10 years.
Meds: Remicade 600mg Q3weeks; Intra-articular knee injections; 6MP; Mesalamine; Prednisone; Entocort; Meclizine; Azithromycin; Tigan; Reglan; LidoDerm; Diazepam; Diclofenac; Celebrex; Dilaudid; OxyContin. 


onebloodonelife
Veteran Member


Date Joined Feb 2006
Total Posts : 842
   Posted 9/28/2007 8:00 AM (GMT -7)   
I liked the syringe because it hurt, but it was more of a discomfort than anything else. But, the pen was awful, the injection site is STILL sore today, and this is two days later.

I just love how the nurse at my GI's office told me, "Oh, well, it doesn't hurt that bad, and if you put this ice pack on it, you'll barely feel it." I want to ask if she's ever done one of these pens, cause they hurt, and they hurt bad!
Crohn's Disease for a year and counting
Imuran: 150mg
Humira: got 4 shots on 9/12, finally got approval on 9/21, next 2 shots on 9/26
Dicyclomine and hyoscamine for intestinal cramping and spasms
www.myspace.com/onebloodonelife
http://studentwebs.winona.edu/catraun4902 <--This link will be changing, but for now it works!


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 9/28/2007 8:04 AM (GMT -7)   
when I had my first shots yesterday she said not to use ice, as it makes it sting more. I really felt almost nothing. I went to a 90 minute yoga class afterward, ate a mexican dinner and drank a margirita! I don't feel anything on the shot sites today, of course I don't feel any better...I wonder when that starts??
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and preparing to begin Humira.


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/28/2007 3:37 PM (GMT -7)   
i find the pens far less painful than a single bowel movement used to be (i now have an ileostomy)

however, i have experienced when they either go off early, or don't quite go in right, and then the shot is wasted! that is pricey! thank god Abbott labs sends me them for free! the pharma companies are not all bad!
"All we need is love....love is all we need"


crohnie42
Regular Member


Date Joined Dec 2006
Total Posts : 371
   Posted 9/28/2007 4:15 PM (GMT -7)   
My insurance will only pay for the pens.   I get my 4 loading doses on Tuesday
Michele
~~~~~~~~~~~~~~~~~
 
Female Dx'ed with Crohns Disease in 1992
Been on every med for crohns that exists
Several Fistula surgeries
Dx'ed with Colon Rectal Cancer March 2007
Dx'ed with Stage 2 Vulvar VIN
On Chemo and Radiation for 6 weeks


BullfrogKen
Veteran Member


Date Joined Nov 2004
Total Posts : 1351
   Posted 9/28/2007 4:56 PM (GMT -7)   
I've done both. The pens at first . . . use the syringes now. I'm never going back to pens.


I agree with everything Erin.K said . . . 'cept about the Enbrels, 'cause I never was on that.


And I follow the same techniques Erin.K does. Doesn't hurt . . . and I just had to get over jamming a needle into my belly. But hey, heroin addicts manage to do worse things to themselves, so I figured I'd somehow manage to do this, and I just do it. . . .

bilirubin
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/28/2007 5:02 PM (GMT -7)   
do not like the pens and the waiting for the sting - would much rather see whats going on!! - getting blood etc always hurts way less when i watch - a lot of pain comes from the anticipation factor!!

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/28/2007 5:08 PM (GMT -7)   
I have the pens and the nurse that gave me/ trained me with the loading dose 1 week ago warns of the plunger very easily being activated.  I found the needle didnt hurt on the pen at all it was the meds getting injected that burned like the dickens.  We warmed them to room temp, she did the 1st with no ice pack on my leg since some patients dont have the burning sensation to see if I am one that may get relief from the ice pack.  Well it burned so we ised the ice pack on that leg again for the 2nd shot and the other leg for the remaining 2 and I found that the icing of my leg for 10 - 15 minutes didnt help the burning sensation at all.  I was fearing the pain would be like the spring loaded imitrex shots which actually left a large bruise on my leg from even the sample teaching pen with no needle. 
 
They cant use my belly since it cannot be near stretch marks or scars.  I have that fistula/abscess area under my belly button and many new stretch marks from the pred and fluids from my hospital stays this year I have much more available fat on my legs that are further away from stretch marks.  When it comes time for me to have a child I wont have much room left for stretch marks, I have them on my butt, breasts, upper arms, stomach, over my pelvic nether regions, as well as both thighs and the calves of my legs.  Thighs are on both inner and outer
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Carol
Regular Member


Date Joined Mar 2003
Total Posts : 21
   Posted 9/28/2007 5:52 PM (GMT -7)   

I've never tried the syringes, but the Humira pens are really painful.  I can't imagine the syringes would be better.  With or without ice, I can't stick the pen into my stomach - there's been too much pain there from previous surgeries, so the pen goes into my thigh.  Then I put ice on afterward to prevent the redness from the injection site.  Can't really tell if the Humira is working - guess if I don't go into the hospital with an inflammation, it will be a success.  I'm also still taking Imuran and Pentasa - was also on Entecort but am trying to wean off because of constant migraines.

Carol

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