I have been away for awhile but wanted to check in and say hello. I got my official diagnosis of "inflammatory bowel disease, probably crohn's of the small bowel, based on positive reaction to medication" . Colonoscopies have always been normal and they never did the capsule endoscopy because he felt a trial of medication would be more reliable in my case. I've been taking 500 mg pentasa three times a day since early May and it has worked very well. I don't think about my gut much. Instead the problem is my feet- I have awful tendonitis. The podiatrist diagnosed it as atypical plantar fasciitis (no heel pain, all forefoot which refers pain up and around the lower legs), insisted it was a biomechanical problem, and the only thing he could recommend are custom orthotics at $400 which "might help" . I decided to hold off on those, have tried everything else. I just recently bought a $60 pair of orthotics from a shoe store chain which seem to be helping more. I do yoga, sit with my feet on ice packs and just recently got a prescription for ultram. I'm thinking of adding acetominophen to it as I've read that the combo seems to work better, as is often the case in many other pain killers. I suppose the next step is back to the rheumatologist but the gi office said NO NSAIDS. (I know this is somewhat controversial) so????? I don't know what is down the road but at least someone has decided what is wrong with me.
Hello to everyone!
By the way, Back when I visited the forum regularly we had a discussion about current travel restrictions and food requirements with IBD. I traveled by plane in June. Restrictions on liquids included a maximum of 3 ounce containers, somethng like that. Well, everything on the market is 4 ounces minimum. I had a separate lunch pack and when the inspector saw it, yelled out to another to inspect it personally. I just told him "I have a disease and can not eat airport food" He asked me what disease that was and I said "crohn's". He said "ok, have a nice day" So, that was that. I didn't have a letter from my doctor (not required) but I had my meds and the info sheets that come with them describing what it is prescribed for but they weren't necessary. I had items like yogurt, fruit cup, applesauce and a small juice.
10 years, many tests, 3 gi doctors, no diagnosis yet. Pentasa 1000mg 3x day