In pain - Diet help?

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pokersponge
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/28/2007 8:16 AM (GMT -7)   
I am in a lot of pain on a daily basis and I need some advice regarding my diet.  I did not respond to Azacol and I am not on 9mg of Entocort and while it has helped some, it still does not seem to help at night (especially 4am until I get up).
 
I am eating a very bland diet, but I am still suffering from bloating and gas pains.  I have an internal pouch (my colon was removed about 5 years ago) and often have to go 10-15 times a day because I never feel like the pouch is empty and I always feel like I have to go.  I am also on a lomotil regimen to try to control the number of times I go.
 
Can I change my diet more to help?  Is there a better way to eat?  I have read on this site that many people are looking into or have tried the Maker's diet, but I don't want something gimmicky, I just want to be able to eat and sleep without getting up every few hours.
 
I have cut out the following:
 
All carbonated beverages
All spicy foods
All red sauces (marinera, lasagna, etc)
All nuts
 
My wife has also suggested that wheat gluten's may be the culprit.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/28/2007 8:20 AM (GMT -7)   
Have you seen a doctor? Do you know there's no strictures anywhere or disease? I think I would rule those out before I tried anything. You don't want to go on a high fiber diet if you can get an obstruction, and you don't want to take fiber away if you need it bulk things up. At this stage it's a guessing game, you need to find out why this is happening.
Judy
49 years old, CD since I was a child.    
Six resection surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


pokersponge
New Member


Date Joined Sep 2007
Total Posts : 6
   Posted 9/28/2007 8:25 AM (GMT -7)   
Yes, I have seen a doctor and had 2 endoscoy's that confirm inflamation. The biopsy's taken were both negative for disease.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 9/28/2007 10:55 AM (GMT -7)   
I use plain, natural live culture yoghurt to help with the pain and bloating from excessive gas. It contains naturally occurring probiotics, which help alter the gut flora in a good way. Sometimes after we have had surgeries that remove significant portions of our bowel we crohn's patients can run into difficulties with bacterial overgrowth, which contributes to gas formation, along with diet.

When I started using yoghurt i treated it like a medicine. I ate it because it was good for me. Now I love it. The flavour grows on you. I usually eat mine with some fruit -- bananas etc and sometimes a little honey. When I am having problems, I eat a tablespoon or two before every meal. Otherwise, I just have it in the morning with my breakfast.

Some other things that contribute to excessive gas production are dried beans and legumes.

Can you try to go on a liquid diet for a day or so to see whether this helps with gas and then start adding foods slowly back (along with the yoghurt). Keep a food/symptom diary for a couple of weeks and see whether there is a correlation between foods and symptoms.

You will have to become your own expert in this area as no two individuals react to food the same way.
Belleenstein:

30+ years living with Crohn's.

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