Newbie, suspected IBD.

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Scattered13
Regular Member


Date Joined Sep 2007
Total Posts : 53
   Posted 9/28/2007 10:46 AM (GMT -7)   
Hi,
 
I stumbled across this forum doing some research into IBD and you all very friendly and knowledgable.
 
I'm just turned 20 and went to my GP about 4 weeks ago after passing blood when going to the loo and experiencing diarrhoea and abdominal pain. As I was diagnosed with sero-positive Rheumatoid Arthritis last year (funnily enough about the same time of year!) she suspected some sort of IBD and made an urgent referal to a gastroenterologist. I saw him for the first time last night and he thinks I have either Crohn's or Ulcerative Colitis. I'm having a colonoscopy with biopsy and x-rays on Wednesday so should know more then. He thinks either my RA jump started some form of IBD or I had IBD all along, causing arthritis but my symptoms were masked by the high doses of steroids I was on to get the RA under some form of control.
 
Due to the RA I'm already on a lot of meds - Arava, Plaquenil, Prednisolone, Co-codemol and Diclofenac when needed. I don't take the diclofenac as my RA is being pretty good right now. When I was first diagnosed with RA I was on 20mg of pred. for about 3 months. I was first put on methotrexate (MTX) but was allergic to it and then sulfasalazine, which was ineffective. The Arava/Plaquenil combo seems to be working and I now have the pred. down to 7mg. It has been as I've reduced the pred. that symptoms for IBD have become more pronounced.
 
Medical stuff over: I'm a second year English Lit. and Creative Writing student, studying in Wales. It's the beginning of a new term and I have to miss all my first lectures of the year to try and sort this out. I'm feeling a little lost and am trying to find out as much info as I can really.
 
Thanks!
Scat.

mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 9/28/2007 12:40 PM (GMT -7)   
Hi Scat,welcome to HW.Sorry to hear that you have been dealing w/so much & how it has interrupted your schooling.I hope that everyting goes well w/your upcoming tests & that you get some answers quickly.Let us know how you are doing.Take care.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/28/2007 1:11 PM (GMT -7)   
Hi Scat, and welcome! Yes, it must be challenging to be at college and have to deal with everything you are dealing with. I also hope you can get some answers at your upcoming appointment. You are right--there is a lot of knowledge here! Good luck to you! Keep in touch!
EMom

Grateful for everyone's help here!

Mother to 15 year old boy just diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, and a good multivitamin.
Just starting the Maker's Diet.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/28/2007 4:53 PM (GMT -7)   
Welcome to HealingWell! I hope you don't actually need to be here, so I'm crossing my fingers & praying your symptoms are extreme pred withdrawl or something.
Unfortunately, college does seem to be a time when IBD shows its ugly face.

Sincerely,
Matthew

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/28/2007 5:29 PM (GMT -7)   
Hi Scat Welcome to HW you will find lots of caring people and knowledge here it is great not to be alone. I hope you don't have IBD but it is good you are getting tested and as you know lots of us have joint and body pain. Hope things go good for you with your studies and Best Wishes. lol gail

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 9/28/2007 5:39 PM (GMT -7)   
Hi Scat, my daughter is 19, found out she had Crohn's when she was 18 and in college.
 
I hope you don't have it, but if you do, then at least you will get the right treatment...which might help with all kinds of health issues you have had.

Scattered13
Regular Member


Date Joined Sep 2007
Total Posts : 53
   Posted 9/29/2007 12:37 AM (GMT -7)   
Thanks for all your replies! It's great to find communities like this.

Matthew - I wish it was due to pred withdrawal but with the exceptionally slow taper I'm on I very much doubt it! I'm meant to be dropping another 1mg of pred today but I don't know that it's a good idea. Any thoughts?

Once again thank you - it's to feel supported as I wait for a diagnosis. I hope you are all having a good day.

Scat.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/29/2007 2:08 AM (GMT -7)   
Hi Scat, Welcome to our World. You have found a great place to ask questions or just vent.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 

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