and ive been doing so well :( im so upset

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bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/28/2007 11:11 AM (GMT -7)   
so i have been doin ok they upped my remicade to 10mg/kg and ive been on prednisone (yuck), i still have dirreah all the time but i sometimes only go like once or twice a day! good right?!
well yesterday i had a BOWLFUL of blood and blood clots and same thing again today. i do have a fissure and hemmies but they have never bled like that only a little on the tp. so i dont think its those. plus my tummy just doesnt feel right.
so now i have to go for a colonoscopy :(:(:(. i hate those so darn much. i have the miralax and ducolax prep which isnt as bad as the fleet, i cant even swalloe that but i have problems drinking things and its probably a mental block but i just have such a problem doing it. plus the last time i had one i WOKE UP and they kept on doing it. im going to tell them flat out that it cant happen again that im scared it will but i just dont trust them to keep me in la la land after last time.
im just upset right now, any support would be greatly appreciated.
 
thanks
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/28/2007 11:29 AM (GMT -7)   
Make sure when you go in for your scope, before they do anything, let them know about your last experience and how much fear your are feeling. I had to do the same thing last time I had a scope because I was so traumatized by the scope I was awake with. They used pediatric equipment on me and made sure I was adequately sedated and everything went well. Good Luck!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 9/28/2007 11:32 AM (GMT -7)   
Hi bunny,I'm sorry to hear that you are not doing so well.I hope that everything goes good w/your colonscopy.Take care.
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


megamax
Regular Member


Date Joined Apr 2007
Total Posts : 217
   Posted 9/28/2007 11:38 AM (GMT -7)   
sorry to hear that you are not feeling well....good luck with the coloscopy
Megamax
 
 
35 yrs female, dx with crohn's on july 13th 07 increasing my  entocort 9mg 6mg tappering off . starting imuran 250 mg had a allergie reaction  can no longer take it  pariet ,dx with depression in 2002 ,effexor tappering off, welbutrin,resperidal and lemotrogine.
 
 


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/28/2007 1:22 PM (GMT -7)   

thank you guys, i know i might be being a baby about this but for some reason the whole process of a colonoscopy is traumatizing for me. even the drinking part. of all the things we go thru, and ive been thru a little thing like this seems so dumb to be worried about but i cant help it. but thank you so much for your replies, it makes me feel better

bunny


Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 


Malibu05
Regular Member


Date Joined Sep 2007
Total Posts : 98
   Posted 9/28/2007 2:24 PM (GMT -7)   
I'm so sorry. When I had my last colonoscopy I cried like a little baby because I had to drink all that stuff and I was so scared that I was going to be able to feel something. Lucky for me, everything went okay but the drinking stuff is absolutely horrible. Good luck and I hope everything turns out well!

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 9/28/2007 4:12 PM (GMT -7)   
I have alot of problems with drinking things, too and when I had to have my colonoscopy I had to try two times before I could get it all down. Now, I need to go for another one in a month, and I'm gearing up to have a big talk with the doctor about the swallowing. To people who don't have the issue or haven't done it before, it could be hard to understand, but everyone here seems to really get it.

I don't think it's silly to be "complaining" at all. You've got alot on your plate! Good luck to you.
44 years old, newly diagnosed after a "flare" and 8-day hospitalization in September 2007
Taking Pentasa, Prednisone, Prilosec and a multi-vitamin -- also Levoxyl for hypothyroid
Single working mom to three wonderful kids, ages 9 to 15.

So appreciative to have this forum -- it's all new to me!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/28/2007 5:57 PM (GMT -7)   
Hi Hope your bleeding has stopped by now .I never had that happen but I would be in need of support too .When I came out of the hos. in Jan I had to have the prep about 4 times in three months but it was the running to the bathroom half the night that I found tiring. I guess everyone sees things different when we get that done.Hoping someone is there with you if you are worried. Best Wishes and hope things get better soon. lol gail

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 9/29/2007 12:18 AM (GMT -7)   
i cldnt get all the kleen prep drink dwn the laxos were ok but the otha stuf mde me puke/cry,they dnt really try 2 mke that stuff tste nice,i was so scared bout my colonoscopy,but it went smoothly,i even watch them tke the biopsys.

bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 9/29/2007 8:39 AM (GMT -7)   
well im still bleeding every time i go and my frequency has gone up so something is goin on. i do hope it ends up being a fissure or a hemmie becasue after the recmicade and the pred i shouldnt have any problems further up. but i guess ill know monday, at least i dont have to wait and think about it forever, that helps.
 
bunny
Crohn's Disease Diagnosed 12/24/03 (Thats Right, Merry Christmas to me!)
 
Bipolar
 
Probable MS
 
 
 
 

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