First it seemed like my bad eye seemed to get tired faster. Then I found myself closing that eye when I read. Next, it felt like there was a winker in it. Finally, it hurt and I just could not see as well in that eye, formerly 20/20. It was sensitive to light but it was never red.
I went to my eye Dr. intending to get the cataract removed I was also forming.
He dilated the eye and said there was a "Mass" in that eye and referred me to a retina specialist. Not good news. 20/200, legally blind
The retina guy said it may be Melonoma until he connected it to my Crohns, appearing in a small percentage of Crohns cases. Maybe it is conected, maybe not. It is an autoimmune desease and people get it who don't have Crohns.
When he said the treatment was Prednisone, I resisted,citing my past experience. "Then you will lose the eye," he said.
After 3 months 0f 80mg per day, the hole has healed and the retina has attached. 20/70 now.
Retired male in late 60's. Perforated Colon in 92. Diagnosed as Ulcerative Colitis in 93. Uncontrolled flareup in 97 dictated J-pouch surgery. 04 Capsule endoscopy diagnosed as Crohns not UC. Emergency surgery in 05 to remove lodged camera capsule. Biopsies positively diagnosed Crohns at that time. 12/06 Unsucessfully tried Naltrexone(LDN). 2/07 developed scleritis of the eye, tearing and detaching the retina. Treated with high doses of Prednisone. 6/07 Eye is healing and currently taking Entocort counting on the residual (non-systemic portion) treating the eye. In October if eye is stabilized, will need cataract removal (obviously old steroid associated). Then surgey to the back of the eye to remove scare tissue caused by the detachment. The upside? Right now I only have to clean one side (lense) of my glasses.
Married with 4 grandkids.