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pattymary
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 9/30/2007 1:56 PM (GMT -7)   
I am desperate! My almost 8 year old has been sick since she was five. It started with a vague stomach ache that turned into excruciating bouts of pain. I thought it was appendicitis but they kept finding other infections and would give her tons of antibiotics and she would be fine. The last bout i made them give her a cat scan it was appendicitis and it had ruptured. I thought ok we are fixed it was the appendix all along. No it started again right after she got better from the surgery and infection. This brought us to the pediatric gastro. Test after test has showed nothing she is scheduled for a colonoscopy next Monday. These are her symptoms terrible stomach pain that lortab wont take away, bouts of diarrhea that sometimes has no color, bouts of fatigue, she is either freezing or is having hot sweaty flashes, she had blood this week it was just a little but it had the consistency of mucous, she says her bowels feel like they are on fire and crampy. This last bout she lost five pounds and can't put it back on. I have to carry a bag of pain pills wherever we go cause you never know when it is going to hit. Could this be crohn's? I would appreciate any comments. Thank you for your time!

lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 9/30/2007 2:33 PM (GMT -7)   
Hi. Yes this could def. be Crohn's. It sure sounds like my Crohn's. This is how it can start and or be for a long time. I have had it for almost 6 years now and am now 27 years old. This is exactly what I go through with my Crohn's and flare-ups. There is hope if it is Crohn's. Find a good GI Dr. now and doing a Colonoscopy ASAP is what you need to be doing right now. Fatigue comes along with Crohn's. Get her iron checked ASAP as well. You always want to be careful though @ her young age. She could be iron deficient which will cause Fatigue and this is normal for Crohn's. I sure wish I could help more.....
Let me know if I can help in any way please. Good Luck with everything! Do not give up! Stay positive for your 8 year old.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/30/2007 3:52 PM (GMT -7)   
Welcome to Healing Well, pattymary! I'm so sorry that your daughter has been so ill. As a mother myself, I totally understand the frustration and worry that goes with having a sick kiddo.

I think you are on the right tract with the colonoscopy. It really gives the GI the best view of the interior of the colon and possibly the lower end of the small bowel. While her symptoms are like those found in Crohn's, it is impossible to known until the testing is complete. Hang in there! I hope the docs find the cause of her problems quickly.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/1/2007 5:56 AM (GMT -7)   
Hi Patty Welcome to HW and am glad you got her to a specialist and that she is gettting a scope to see what is going on with her.The sweats can be a part of CD that's for sure. You"ll have to see what her GI says .Keep in touch and let us know how things are going. How is she eating now? lol gail

pattymary
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 10/1/2007 7:26 AM (GMT -7)   
We are having a bad attack today. Her pain is coming and going. Half and hour a little pain the next half hour screaming pain that is not being controlled by lortab. Waiting to hear from the doc on whether she needs to go to the er. Keep your fingers crossed!

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 10/1/2007 12:38 PM (GMT -7)   
Hi Patty if her pains are that bad I would take her to emerg. sounds to me that whatever is wrong with her needs more attention then she can get at home. Maybe they can get things under control enough so that the pains can be managed. They can also do test there if needed. lol gail

myTYTY
Regular Member


Date Joined Sep 2007
Total Posts : 22
   Posted 10/1/2007 12:56 PM (GMT -7)   

Patty, I just read this thread and i am so sorry you are going through this! I have been there and it is so hard to watch your child suffer. I hope that you are able to get the answers you seek and excellent care for your daughter. You are in my thoughts and prayers.

Nat


My 11 year old son was Dx in may of 2007, but he had symptoms of CD at age 7. He was Dx with spondylitis in July of 2007, but had symptoms at age 2. I also have a 6 year old going through testing...
Currently taking: 2 grams of Pentasa 2x a day, Prevacid 30mg, Prednisone 5 mg, Align (probiotic), and Phenergan prn.

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