Crohn's Veteran -- My story

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EasyBlake
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/1/2007 5:18 PM (GMT -7)   
I dont know if this is any use to you guys... but I feel like telling my story... meeting some frienda..... and... yeah... haha....

Hello guys my name is Blake I am a 23 year old Crohn's havin' dude. I've had it since I was 10 and it definitely has changed my life... for the better in a lot of ways... but for the worse as well... ive never really talked about my Crohn's with people who have it....... and I never have met anyone with it... but everyone in my life knows about it and I am the most open person in the entire world when it comes to anything...

My doctor has always tried to get me to goto meetings or whatnot but I never did... I dont know why... just never felt the urge to...

Ill tell you a little about my life and what I do--

Like I said I was diagnosed when I was 10ish... dont really remember much of my life until maybe my senior life of highschool because I was constantly sick ... I had a throw up chair... that i would take out of class whenever I needed to puke... I was the sick kid of my highschool in the country of north carolina... I had lots of friends not many close ones though... I also had my fare share of kids making fun of me because I was so skinny usually jock jerks that now have knocked up their 'highschool sweethearts' and now paying child support to several babies mamas smurf

ANYWAYS haha.. im joking... sort of,.. my last year of high-school I stopped taking Prednisone and started taking Remicade -- my life totally changed... I was for the first time feeling 80% I started going out... I started meeting girls... going on dates.... going to parties... making friends everywhere... developing my personality... going to shows... etc etc etc... before this all I did was play videogames and watch anime hoping that one day one of the girls would pop out of the TV and become real and be my girlfriend... HA

true story. I went kind of wild for a few years... really wild... i guess because I never went and did anything for the first 17 years of my life. I started college and joined a band called Tokyo Machine... and found something that really made me happy... College never really took off because of random flares and my other priorities... like playing in a band.... etc etc etc

The band broke up and I started doing well in school for a while taking courses in Japanese and International Buisness... had some ups and downs with Crohns... stayed on remicade... only went to the doctor whenever I absolutely had to... I started my job with Apple computers... which I still have...

And then I remet my life passion... MUSIC... I started playing in a band called Mustang and played 60's rock n roll... all original songs.. this was last year... and toured a bit in the south.. we became pretty big underground sort of band... but then grew tired of the music we played... and started a new band which I currently play in Stone Figs... weve played everywhere on the eastcoast... played parties for a thousand people in new york DC Atlanta and miami and this halloween were playing in front of 3000 for charity for sick kids... everything is looking up... except my remicade is wearing off

im starting humira this week.. i hope it works... ive never taken any vitamins I havent really took care of myself at all in the last 5 or 6 years... I smoke, I drink, I stay up until 3am reguarly either because of school work or becuse im in some random city ... but I want to figure out something... some sort of diet... some control in my alcohol consumption my cigarette smoking... well see.....

I have to run now.. Im in a rush to make it to the pharmacy... but Ill post more later... its nice meeting you guys and I look forward to talkin with you guys int he future.....


im typing so fast there are probably countless spelling and grammar errors
sORRY folks!

Blake

stonefigs.com -- my band

http://myspace.com/shake_n_blake -- my myspace

jteezy
New Member


Date Joined Nov 2006
Total Posts : 10
   Posted 10/1/2007 6:49 PM (GMT -7)   
Sounds like you have a cool story. Similar (in a few ways) to mine and similar interests too. One difference being I am not in a band...actually, I am a DJ, so you probably do not like me. Finishing my last year of school here at UNC (chapel hill) and then off to China. I listened to one of your songs on myspace... not bad.

If I were you, I would pay attention to a lot of natural ways you can go about improving your health on here. Lots of different opinions on this site. I started taking a new approach after getting off the darn drugs. Its hard though. As someone else in the entertainment/nightlife biz I completely understand the "bad" habits we get... unfortunately for you and me, we have to pay a higher price for it than others do.

Gotta stop procrastinating and finish up this work.

EasyBlake
New Member


Date Joined Oct 2007
Total Posts : 2
   Posted 10/1/2007 7:13 PM (GMT -7)   
Man awesome!? What kind of DJ stuff do you do ... weve played withe several DJ's in Miami we played with DJ Flossatradamus (http://www.myspace.com/flosstradamus) and Royal Rumble from LA who are doing a remix of our new Great White Shark song (http://www.myspace.com/theroyalrumble) and weve played with Boys Noize from Berlin (http://www.myspace.com/boysnoizemusic) in new york city... and some chick that used to be in Le Tigre... fit for use (http://www.myspace.com/fitforuse)

the list goes on and on... in otherwords id probbaly like the music... thats what we do we make dance party music so DJs can remix it... its weird... ourown kind of genre... btu I have a hell of a lot of fun doing it...

its so hard to choose between my health and how much freaking fun i have touring the united states and partiying ahhh...



its weird were a band that opens for DJs and then huge parties ensue... But yeah exactly ... my brother goes to chapel hill and I go to unc charlotte.... so I am up there quite often... maybe we could do a party together? I dont really know any dancy bands from taht area so if you have any ideas it would be funnnnN!

im still having trouble getting off of the bad habits... we should be friends... id love to talk to you more about this.

blake

jteezy
New Member


Date Joined Nov 2006
Total Posts : 10
   Posted 10/1/2007 8:25 PM (GMT -7)   
j.todd.siena (AT) gmail.com send me an email. I would love to be as cool as some of the DJs you mentioned, but for now I dont have the money/time to produce my own beats and remixes. im sure youve done some parties at chapel hill, i would love to do one with you guys. i really enjoy electronic/dance music, but as a result of the market demand here in NC, i have to specialize in hip-hop and party music. it would be awesome to DJ something else for a change. you gonna be in town this thurs?

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 10/2/2007 12:58 AM (GMT -7)   
nice story blake. hang in there with your dreams.
randynoguts 



     http://www.geocities.com/randynogutsweb/

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