truly sorry to hear of your issues...the sad part is that it is too often the common story here....
I had not really had a formed stool for many, many months...well over a year...I was losing weight and the doctors said my absorbtion was very low. I was not on amy meds and the gastro really was pressuring me to try remicade...instead I started taking LDN (low dose naltrexone). While the LDN was not the wonder drug for me that it has been for others...it did stop almost all of my "D". I had formed stool on a regular basis...I cut down from about 15, 20 or even more trips to the bathroom to about 5 or 6...twice a week I would spike up to 10 or 12...but still formed and the bleeding was weekly not daily. I was not happy with the final results and things just sorted stayed the same for a while...so I quit the LDN and have now started with Humira...again no miracles here for me, bu tit has only been 6 weeks (8 doses) and there is some improvement. I have stayed with formed stool and the bathroom trips have remained a pretty constant 5 or 6 a day...with bad days only occuring once every 10 days or so....
You have to figure out what is right for you...but I don't think starting with the LDN could hurt...it is very cheap...about $70 for 90 days ....1 pill per day. if it doesn't work, no harm no foul. I feel it is a very harmless drug and one that may give you some relief until you decide on a long range plan that would include help from your insurance company.
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade. Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old