Humira Questions...help

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ladybugcrohnie
Regular Member


Date Joined Mar 2007
Total Posts : 35
   Posted 10/2/2007 11:24 AM (GMT -7)   
My doc wants to start me on Humira.  I have been in a flare for a while now with no relief from Remicade or Predinsone.  Recently taken off of Asacol and 6MP and put on Colazel, but I don't feel like any of it is working.  Has Humira worked for any of you guys?  I have not had single formed BM for at least 6 weeks now and am making at least 12-15 trips a day to the bathroom, including several times during the night.  At least the Prednisone stopped the accidents and cramping.  I seriously thought I was going to have to start wearing diapers for a while.  Just needing some advice.  I am starting to get frustrated.  If Humira has worked for anyone, please let me know.  I am a young woman who wants to get better so I can start a family with my new husband. 
26 yr. old female
Asacol
Remicade
6 MP
Florastor (probiotic)
DX in November 2003
no surgeries to date


NorCalJP
Regular Member


Date Joined Jun 2007
Total Posts : 86
   Posted 10/2/2007 12:35 PM (GMT -7)   
Hi, sorry you are having such a rough time!

I started Humira after not responding to Pred and 6MP. I haven't noticed any positive effects yet, but it's only been three and a half weeks. Some people say that it helps them almost immediately. I hope you get the help you need!

Jana
Bipolar disorder
Appendectomy Nov '01
Dx Chron's summer '05
Yay Humira!, Vicodin as needed, Neurontin, Wellbutrin XL, Asacol 12pills/day, Ambien, Multivitamin

The most exciting phrase to hear in science, the one that heralds new
discoveries, is not "Eureka!" (I found it!) but "That's funny ..."
-- Isaac Asimov


MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 10/2/2007 12:41 PM (GMT -7)   
Ladybug - I have been on Humira since the end of April and it has helped me quite a bit. It has definitely decreased the D and urgency. I can't say that I am 100% better but compared to where I was five months ago I have come a long way. I actually gained about 8 lbs on Humira so you know things are not just going right through me anymore. I still need to stay away from greasy fried food and food high in fat but things are much better. It is worth a try, I saw improvement almost immediatly. Good luck and feel free to ask more questions as you think of them. Just an FYI - I am also on Imuran, Pentasa and suppositories. MB

ladybugcrohnie
Regular Member


Date Joined Mar 2007
Total Posts : 35
   Posted 10/2/2007 5:02 PM (GMT -7)   
Thank you for your responses.  I appreciate the support!  I still have to wait to see if my insurance will cover Humira.  I am willing to try anything at this point, but I am nervous about long term side effects from this medication.  Does anyone else have any reservations about that or have experienced anything from taking Humira?
27 yr. old female
Colazel
Remicade
Florastor (probiotic)
Fish Oil
DX in November 2003
no surgeries to date


ckmom
Regular Member


Date Joined Jan 2007
Total Posts : 67
   Posted 10/2/2007 5:52 PM (GMT -7)   

Ladybug,

I've been on Humira since March, and it has made a significant difference in my health.  I was sick for over a year, with no relief from entecort and imuran. 

There are lots of threads on Humira on this forum, and lots of people are on it, just search on Humira. 

There are side affects from taking this drug- some people have them, some don't.  I get fatigued for a few days after an injection, get an injection site reaction, red and rashy, and some minor nueropathy (tingling) in my fingers.  As for long term side affects, you'll have to way that out in your own mind.  It worries everyone, but being sick for so long is no way to live.  I had to make the choice for quality of life right now.  Make sure to talk out all your concern's with your gi.  Good health and good luck! 


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 10/2/2007 7:01 PM (GMT -7)   

Ladybug...

truly sorry to hear of your issues...the sad part is that it is too often the  common story here....

I had not really had a formed stool for many, many months...well over a year...I was losing weight and the doctors said my absorbtion was very low.   I was not on amy meds and the gastro really was pressuring me to try remicade...instead I started taking LDN (low dose naltrexone).  While the LDN was not the wonder drug for me that it has been for others...it did stop almost all of my "D".  I had formed stool on a regular basis...I cut down from about 15, 20 or even more trips to the bathroom to about 5 or 6...twice a week I would spike up to 10 or 12...but still formed and the bleeding was weekly not daily.  I was not happy with the final results and things just sorted stayed the same for a while...so I quit the LDN and have now started with Humira...again no miracles here for me, bu tit has only been 6 weeks (8 doses) and there is some improvement.  I have stayed with formed stool and the bathroom trips have remained a pretty constant 5 or 6 a day...with bad days only occuring once every 10 days or so....

You have to figure out what is right for you...but I don't think starting with the LDN could hurt...it is very cheap...about $70 for 90 days ....1 pill per day.  if it doesn't work, no harm no foul.  I feel it is a very harmless drug and one that may give you some relief until you decide on a long range plan that would include help from your insurance company.

 

Good luck

 


dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade.  Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 10/2/2007 7:24 PM (GMT -7)   
Humira has worked well for me .I'm glade that my Rheumy talked me into giving it a try.
Curley
.........
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 10/2/2007 8:51 PM (GMT -7)   
Humira has been a godsend to me. Started it in March; it was Humira or surgery and I opted for Humira. It's affordable, easy to administer, and I saw a turnaround in my health within 2 weeks.

lovepink
Regular Member


Date Joined Sep 2007
Total Posts : 182
   Posted 10/2/2007 9:16 PM (GMT -7)   
YES YES!!! Please give it a try. It has done nothing BUT good things to me!!! If you would like I would be more than happy to give you my e mail if you would like further support or help with this. I am 26 years old as well and you sound like me as far as your Crohn's goes. I have been on HUMIRA for about 7-8 months and am about 70% better that I have been in 6 years (since I got Crohn's). Highly recommend it!
GOOD LUCK!

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 10/2/2007 10:31 PM (GMT -7)   
Has it helped anyone with inflammatory arthritis sx? I am also about to start humira, am allergic to remicade. And I also haven't had formed bm for quite a while.
DIANNE
Diagnosed at age 19 with CD.
3 small bowel resections, 1 for perforation, 2 for strictures 
 


mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 10/3/2007 8:51 AM (GMT -7)   
I just had my loading dose of Humira on Friday, 4 syringe shots which burned like the dickins going in. So far I haven't noticed any positive effects from the Humira, but haven't suffered any adverse effects either. I am hoping that after a few weeks I will start to have positive effects from the Humira, I'm holding my breath because I've tried everything else. Give the Humira a try LadyBug, it just might work wonders for you. Hang in there!

Marci
Dx with CD March 2006
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