Wow, I am so sorry you are suffering so much. My only suggestion is the one you are already doing, and that is taking baths as hot as you can stand them. Sorry I'm not much help. Hope you get feeling better soon.
Been living with Crohn's Disease for 32 years. Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium. Resections in 2002 and 2005. Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.