those with CD and constipation.. what do you do to help you go???

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prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 10/3/2007 10:43 AM (GMT -7)   
The thread for those who have any degree of constipation is interesting.  I was wondering, besides the CD meds you  take what else do you find helpful??  What has your GI recommended.  I think that the more we share.. the better informed we are!  Prof


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 10/3/2007 10:53 AM (GMT -7)   
Well I have always been a fan of using stool softners. They have worked the best for me to get things moving again. And I don't get the cramps like I do with laxatives.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


immunosci
Regular Member


Date Joined Jun 2006
Total Posts : 326
   Posted 10/3/2007 11:05 AM (GMT -7)   
My gastro initially recommended Metamucil or Citrucel. Neither helped much. He then prescribed Miralax (generic name is glycolax). Miralax is now available over-the-counter at any drug store. It's a powder that you put into a drink of some kind. I don't think it has much of a flavor, if any. However, if you don't get it mixed well it can be a little gritty. I found it to be the most help. I started out on one capful a day and have had to move up to two capfuls (one AM and one PM). I hope you find some relief!

Jen
-Formal diagnosis of Crohn's Disease in ileum in July 2005.
-Experienced what were most likely flares for 12-15 yrs.
-6-MP, protonix, cymbalta, wellbutrin, trazadone, miralax, allegra, celebrex


yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 10/3/2007 1:02 PM (GMT -7)   
I use glycolax and my best hint is mix it into something warm like tea or coffee if you can drink them, even warm water works better than cold.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


ckmom
Regular Member


Date Joined Jan 2007
Total Posts : 67
   Posted 10/3/2007 1:45 PM (GMT -7)   
Since I've been on Humira, and everything has healed up (thank goodness), I've had very bad constipation. I had heard that taking laxatives can make you become dependant upon them? Does anyone know if that is true, and if glycolax/miralax does that too?

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/3/2007 2:12 PM (GMT -7)   
my gi says it is fine to take glycolax forever. I figure if I am dependant, oh well...it is either that or explode :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


ckmom
Regular Member


Date Joined Jan 2007
Total Posts : 67
   Posted 10/3/2007 3:42 PM (GMT -7)   
Thanks yogaprof! I'll check with gi, to see if he agrees. I need something, and the fiber he suggested just isn't working!

BTW, your bio says: "In December had adhesions cut through a laparoscopy". Are the "adhesions" scar tissue? I just had a scope and my gi says there is no inflammtion left, just scar tissue, which has narrowed the passageway! I'll discuss it further with him at my follow up, but was curious to find out if that's what you had, and if there is any way to fix it.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/3/2007 7:55 PM (GMT -7)   
I had three pelvic surgeries in my 20s, the last one was a hysterectomy. then 20 years later I was diagnosed with crohns, but my GI suspected adhesions. they can't be seen through any test except a surgical look. adhesions are scar tissue that are like rubber bands that attach anywhere and cause all sorts of trouble! I am not sure what your doc saw in the scope, but I know adhesions can cause narrowing and pain.
keep asking questions anytime. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


redrose
Regular Member


Date Joined Feb 2007
Total Posts : 138
   Posted 10/4/2007 7:28 AM (GMT -7)   
I was unable to take the Miralax so my doc prescribed Kristolose. It mix it with water every morning and it works great.
Redrose

Undiagnosed symptoms for many years. Dx w/ Crohn's in 12/06. Sm. Bowel resection (60cm.) 1/07
current meds: Imuran, pred., pentasa, kristalose, probiotics, omega 3, temazipam, oxycodone for continuing pain

Count your blessings - not your problems


prof
Veteran Member


Date Joined Feb 2003
Total Posts : 1195
   Posted 10/4/2007 3:06 PM (GMT -7)   
Can taking 2 stool a day cause hard stools??? Weird thing.... my stools are harder lately.. feels like they are STUCK.. I do 'go" tho. In the morning. I seem to have many bowel movements mostly softer??? Are stool softeners making my bowels NOT work??? Scared prof


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 10/4/2007 3:53 PM (GMT -7)   
they shouldn't make you not work. they just add liquid to them, as far as I know.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.

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