Wow Judy! I should have "talked" to you before I started several off and on conversations with my doctor. Great info.
knottedup - I feel for you. I have pretty much been going through the same thing. Minimal information from my doc and when I do ask many questions he acts like I am wasting his time. I realize he is busy, but this is a frightening, difficult thing to struggle with. I even ended up mailing him a letter since I thought it would be better to have some answers in writing since he seemed to change stories after talking to him a few times. And, now that I have made a decision about what med I would like to start on, he is too busy to respond to my phone queries.
Apparently all GIs in my area are overbooked and do not have time to answer questions. Good luck!