colonoscopy showed no crohns

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New Member

Date Joined Sep 2007
Total Posts : 9
   Posted 10/4/2007 10:52 AM (GMT -6)   
confused  well i got back my results from colonoscopy today. the surgeon said there was no evedience of crohns.Yipee!. i still have upper and lower gi symptoms that are closley related to crohns. is there any other test out there to confirm whether or not it is. im hoping for ibs or something simular to that but my symtoms dont seem consistant with ibs. i have scheduled a appointment with my pcp to discuss this but sometimes drs dont want to go against their colleagues diagnosis. (oh yea the surgeon only read the biopsie reports and didnt seem interested in speaking to me about what other concerns i have, isnt that typical?). im sure some of the other symptoms i have had could be related to common conditions but they add up to ibd or crohns(here they are skin tags, anemia, underweight, constipation, bowel obstruction, loose stools(not the dreaded d word) tested for parasites both times, came back negative, fatigue, severe joint pain, night sweats, bloody mucus between bowel movements, abcesses that had to be drained on my buttocks, (thought they were boils).  any info would be appreciated. thanks, daize confused

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 10/4/2007 12:41 PM (GMT -6)   
A colonoscopy is valuable but not conclusive in testing for Crohn's Some patients have active disease in the small intestine, which the scope does not reach. You may want to consider a pill camera look in there, or a small bowel x-ray series.

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 10/4/2007 12:51 PM (GMT -6)   
Agreed with what Mike says, because you could have CD in your small bowel...your symptoms are CD related....abcesses, anal skin tags, should be sure to get a small bowel follow through as well.

My bum is broken....there's a big crack down the middle of it!  LOL  :)

Regular Member

Date Joined Jun 2006
Total Posts : 267
   Posted 10/4/2007 12:57 PM (GMT -6)   
Couldn't agree more that you definately need to get a small bowel x-ray done to check your small intestine. Talk to you PCP and gastroenterologist and insist on it, the docs are there for you-not the other way around. Take care-best wishes!

Diagnosed with CD March 2006

Regular Member

Date Joined Mar 2006
Total Posts : 494
   Posted 10/4/2007 2:40 PM (GMT -6)   
My colonoscopies are fine too.  Get the video capsule test and they can actually see your terminal ileum, if you really want to know if you have crohns.
Diagnosed 1/06
CD of Terminal Ileum
Taking Pentasa, Prograf and Remicade.

Veteran Member

Date Joined Jan 2004
Total Posts : 598
   Posted 10/5/2007 2:44 PM (GMT -6)   
My colonoscopies are fine and a small bowel follow through (although it was a couple of years ago) was also fine. I have been to 3 gi doctors and the third was willing to do a trial of medication. he felt that would be a better test (in this situation) than the pill camera which gives a "fly by view" Or the problem can also be just on the microscopic level and the pill camera can't do biopsies. I asked at my last appt "is there any other condition that would respond to pentasa the way I have" and I was told that it was unlikely, that this was a fairly specific medication. So, based on that I have "IBD, indeterminate, probably CD of the small intestine"

So, like everyone has said, don't rely on a colonoscopy with the symptoms you have. It's not enough.
10 years, many tests, 3 gi doctors, no diagnosis yet.  Pentasa 1000mg 3x day

Regular Member

Date Joined Jul 2007
Total Posts : 161
   Posted 10/7/2007 3:44 PM (GMT -6)   
I agree that this can be so hard to conclusively diagnose, but what does everyone think of the Prometheus blood test?

I don't think my diagnosis would be Crohn's at this point except that I was given this blood test did predict Crohn's (predicted IBD, specifically Crohn's as upposed to UC) and it is supposedly pretty accurate.
36 year old mother of a fabulous toddler named Mara. Symptoms began after Mara's birth, with widespread pain/stiffness and mucus in stool. Had seen blood in stool for years prior but believe (and still suspect) hemorrhoids and/or fissures for this particular manifestation.


Diagnosed with Crohn's July 2007. The only visible areas of inflammation via scope were my stomach, rectum, and somewhere else in my colon (was too out of it to hear where, exactly). Pill cam, SBFT, CT Scan all were normal.


On Specific Carbohydrate Diet (SCD) since late July and seeing improvement in "output" quality and hopefully therefore absorption. Taking SCD legal supplements: B vitamins, Folonic Acid 800mg, EnZym Complete DPP IV Aid by Kirkman, and Saccaromyces Boulardii (a probiotic yeast).

Current biggest complaints: LRQ fullness and burning now gone. Gastritis symptoms are also quiet now. What was horrible right hip and low back pain has subsided about 60%. I'm pretty much feeling normal since the SCD/Supplements/Naltrexone but the fatigue still occurs and I in no way think I do not have more symptoms in my future.

Regular Member

Date Joined Feb 2004
Total Posts : 106
   Posted 10/7/2007 7:55 PM (GMT -6)   
I was just hospitalized for the 4th time for my CD. The GI's did a colonoscopy while I was there, along with the colonosopies they did in June '07, Jan. '07, Nov. '06, and July '06 -- NONE of them showed "active Crohn's Disease".
They did find massive scarring and fistulas, and the most recent one showed a fissure (which they did NOTHING about!!! GRRR confused )
I guess the CD is just in our heads and we like taking all those darn pills! lol...
"People who mind don't matter, people who matter don't mind." ~ Dr. Seuss
~Crohn's Dx'ed at 17 (2004), Multiple hospital stays, every test there could be (as we Chronies know!, on Pentasa, Purinethol, Nexium, Neurontin --for Fibromyalgia, Cymbalta, Trazadone, Klonopin, and Vicodin/Bentyl prn Pain~
D.O.B. 7-15-1986
I'm 21 now! wOoT!

Veteran Member

Date Joined May 2003
Total Posts : 2480
   Posted 10/7/2007 11:42 PM (GMT -6)   
i agree with the rest.
crohns can be active on a microscopic level, it may even be located in another area that the colonscopy doesn't reach. typically, we've got 18 feet in there, the scope only goes like three? bloodwork doesn't always show it either.
a pill cam or upperGI smallbowel followthru might be another option for you to consider.

New Member

Date Joined Oct 2007
Total Posts : 1
   Posted 10/17/2007 7:14 AM (GMT -6)   
hi i had realy bad inflammation of colon they didnt check anywere else at the time they said possible ibd but reckon it was selmonela ive suffered for years now im bloated all the time cant stop burping get really bad abdominal pain and feel tired all the time i had colonoscopy recently and it was normal?? im waiting for barium follow through and cat scan. i think i maybie have crohns.

Regular Member

Date Joined Oct 2007
Total Posts : 77
   Posted 10/17/2007 10:55 PM (GMT -6)   
Five years ago I had extreme neasea.  I was dry heaving and passing out.  I was in horrible pain.  After a day of Hell and a calm weekend the doctor sent me for a CT scan during which they injected iodine into my vein.  Immediately the technician started asking me questions about what part of the country I was from and if my family had a history of Crrohn's Disease.  He said my Ileum was inflamed and he refused to let me leave the facility until I got a prescription for Asacol from my doctor.  I took it for a week and then for some reason I thought it had quite working and was hurting me.  The doctor told me to stop taking it but ordered a small bowel follow through and a colonoscopy.  Both tests showed nothing.  My GI doctor was baffled, but told me to eat fiber and call me if I had any other symptoms.  Five years later I thought I was having an apendicitis attack and the emergency room doctor ordered a CT scan.  This time I was told that a long section of my ileum and over half of my colon was inflamed.  Once more I was sent home with Asacol.  This time however the doctor sent blood work to California for special Crohn's related testing and it came back IBS:  specifically Crohn's.  My new GI doctor said that he could do another colonoscopy, but it probably would not tell the complete story and may show nothing at all.  He said that based on my past history, the blood test and the CT scan that I definately have Crohn's.  So, I guess that diagnosis is something that can be based not just on one test, but on the sum of many events, blood work and tests.  I'm still trying to figure out how to deal with the knowledge that I have Crohn's.  On Friday they are doing another small bowel follow through and I'm wondering if it will show anything at all.  I agree that if we weren't in pain why would we be willing to take so many pills each day!!!!  My boss thinks that I obsess too much about medical issues.  I can't help wondering how she would deal with the pain of Crohn's!!!  I'm sure she would change her tune and be a lot more sympathetic!!!! 

Regular Member

Date Joined May 2006
Total Posts : 167
   Posted 10/17/2007 11:05 PM (GMT -6)   
If its not CD it could be IBS, they are similar, yet some of your symptoms do point to CD over IBS.

The pill camera and barium will show more, i'd get those to be 100%. Also blood work will sometimes show your white blood cell count and if its off, they can find out if your inflammed (not always shows tho)

Good luck :)
22 with CD and using Pentasa 500mg 3x daily, so far so good

Regular Member

Date Joined Jan 2012
Total Posts : 44
   Posted 2/2/2012 4:39 PM (GMT -6)   
I alos had a colonoscopy resulting in...Oh everything looks good....Had a samll bowel follow through to show Chrons in the small intestine. Colonoscopy is great for many reasons but can "miss" CD

Good Luck
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