My 19 yr old daughter was 18 and in college when diagnosed. Her reaction was one of acceptance...actually, she was relieved to know it wasn't, as many docs had claimed, all in her head. But I don't blame your daughter for being angry. It's certainly a dirty trick to, just when a person is about to spread her wings and fly into her adult life, find out she has Crohn's.
Now is the roughest time for your daughter and family, trying out different meds to find what works for her. (Like her, my daughter never had D...she has Crohn's only in the terminal ileum and is now in remission thanks to Entocort.) Humira is not necessarily your only option for a next step. The following link takes you to info from the Johns Hopkins web site about the different meds that can be used to treat Crohn's:
Any mesalamine med like Pentasa (also Asacol and Lialda) can cause hair loss. Pentasa is considered to be a less effective but fairly safe med for Crohn's (at least compared to prednisone). However, in my daughter's experience, iron, B12, and serum folate dropped while she was on this med, even though she was on high supplements of all three vit/minerals. (Also, anybody on a med like Pentasa needs to take folic acid supplements.) If Pentasa works for your daughter, great. But if it doesn't then you might ask your GI whether it can be stopped. Because none of these meds are benign. If they aren't helping then, with their potential to interfere with the body's absorption of important nutrients, even the "safer" meds" like Pentasa can fight the body's ability to repair itself.
Post Edited (njmom) : 10/4/2007 1:24:38 PM (GMT-6)
It's certainly understandable for your daughter to be angry. I'm sure we've all felt that way about having Crohn's. Prednisone can cause mood swings for some people, and it's possible that it's intensifying her reaction. Her anger may be easier to deal with when she tapers off the Pred.
I was on hydrocodone for a while, and I hated it,too. It helped with my surgical pain, but it made me nauseous. Her GI (or whoever prescribed the pain meds) should be able to give you other options.
If you're at all concerned about the treatments the GI recommends, don't hesitate to get a second opinion. I changed doctors two months after my diagnosis because I didn't like his "let's wait and see how sick you get before making any changes" treatment plan. It was the best decision I could have made. Humeria has helped a lot of people, and surgery is an unfortunate reality for some Crohnies. But they aren't the only possibilities.
Good luck to you and your daughter. I hope things turn around for her soon.